Written in 2013 after I finished 8 rounds of chemo and got used to a new me and new daily routine.
I really love my woolly hat
I wore it during chemo
to keep my bald head warm at night
(It's not my favourite green, though)
It has the word "POW!" on the front
which was a funny thing
a friend of mine would say a lot
when work was full of WIN.
I had a painting with that phrase
hung on the office wall
And tried to find fun things to do
when work was still my call
But I became a ball of stress
as work and love unravelled
I needed to escape the many
problems that we juggled.
I struggled with unhappiness,
but after a long while,
got renewed hope for future fun
and I began to smile.
So you may understand
my sadness that the time was brief
before my diagnosis,
and how I shook with disbelief
I sat alone in hospital,
being brave and sturdy
as the bottom fell out of my world:
"Breast cancer, in my thirties".
Keeping calm and writing notes
did help me process better
the great stream of information,
from consultants and their letters
"Is there anybody with you"
was my only warning sign;
The news not good? I understood
and greeted them wide-eyed.
"Your cancer's spread to the lymph nodes
so you're on the chemo list"
"how soon?" I asked, and in a flash,
I was sat with an oncologist
Four each of FEC and Taxotere,
and another op to go
the nurses were all kind, and said
"you are so brave, you know"
I made the most of time before
my course of treatments started
With trips, and friends, and family,
at fun and lively parties.
Informing everyone at work
seemed the best thing to do:
I didn't want it getting weird
when it's obviously not 'flu
As calm as anything, I sat,
explained the situation:
The chemo, hair loss, wig and then
avoiding all infections.
I worked as much as I could stand
and it did help quite a lot,
though it was sometimes difficult
with concentration shot.
The needles took their mental toll
and tears became more frequent,
by August I was glad to have
a third week between treatments.
I took a Nice Young Man with me
to walk along the Seine,
a trip I'd longed for many years
to undertake and plan.
Paris was a stunning trip
and whilst it wasn't easy,
I took pics from the Eiffel Tower
and walked the Champs-Élysées.
Then the chemo-brain kicked in
at work, during September.
Stood at a colleague's desk, red-faced,
struggling to remember
what seconds earlier had been
such an important question,
that I had waited minutes
for her to end her conversation
For several months just eating right
took lots of motivating
my food tasted of rusty socks,
and was only fit for leaving
The "POW! " hat got pulled down at night
to cover up my eyes;
a bald head, and no eyelashes,
were reasons for me to hide
By October there were very few
hairs left on me at all;
the cold wind whipped my face
and made my eyes a waterfall.
I staggered blindly when outside,
needed help to cross the road,
and gradually it seemed I was
becoming my own ghost.
It became a struggle
just to function normally;
my bathroom breaks a horror,
I tried hard not to scream.
Finally, I reached the end
of chemo's devastation,
and took the BRCA blood test
to uncover a mutation.
It was no great surprise to me
(young relatives had died).
My cancer had genetic cause;
I was glad it was defined.
I went to Cornwall at New Year
to recover from it all;
and asked a friend if she and I
could run away, at all?
"In a little VW camper van?"
And both of us were longing
to drive across a continent,
with very few belongings.
And then... my job, the stumbling block,
no longer was a problem!
So taking time to make some trips
would be my compensation.
I booked my op for February:
Mastectomies / reconstruction.
Had lots of friends to visit me,
to aid recuperation.
I announced it on the book of Face;
my friends all shared my gladness
that I was able to get well clear
of all the cancer madness
I still do grieve for what was lost
and now replaced with saline
It's cold and strange but I am told
the scars will fade in time.
Tamoxifen's a daily chore
to help prevent more cancer:
bones ache and I am hot AND cold,
or sometimes quick to anger.
Last night I tried my trusty hat
to cover up my eyes,
but my brain was having none of it
and wide awake stayed I
So tears fell on my woolly hat
when I wrote this today
I haven't had a wink of sleep
and I've got a busy day
But I really love my POW! hat
'Cos I wore it during chemo
It kept my bald head warm at night
(It's not my favourite green, though)