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transplant life

Date: September 15, 2023

I have felt like both physically and mentally, off and on, for the last 12 months and yesterday I was told, I’ve been given too much of my new infusion medication from day 1, a year ago.

I’ve literally felt like I was going insane some days. I haven’t been myself. I’ve struggled with multiple effects, physically and mentally, that everyone just tossed up to the obvious immune compromised life. I’ve been sick, a lot this year, and no tests came back concluding what caused it. Now I know.

I’ve struggled to be a wife, mom, friend and have wanted to crawl out of my own skin, often.

So much more going on, but wanted to share this as an awareness post. If someone you love is, different, struggling, it could be their meds.

Still grateful for my gift, but processing these feelings is going to take awhile, especially since I’m in the middle of testing some things that were probably caused by this mistake.

Love to you all

photo taken by my daughter on glacier day of our Alaskan cruise.

Grateful that my family can love me and see me for who I truly am, despite the ups and downs of #transplantlife. 💜