Resources For  

Western NY, USA Information,

Centers, 

 Beginners and Children,

  Organizations


Here on the Western NY, USA Information, Centers, Beginners/Children And Organizations  Resources  page you will see each section titled for you and that title is hyperlinked.

 When you click on that title it will automatically take you to the following section.

This section is intended for everyone! Here you will see websites which also fall into another category, or categories, but are primarily  located in Western New York or New York state.

Care Coordination Organizations

 

Health Home Care Management services and Basic HCBS Plan Support are provided by Care Coordination Organizations (CCOs), which are new entities that were formed by existing providers of developmental disability services. At least two choices are available in each county.

 

Seven new Care Coordination Organizations began providing Care Management services on July 1, 2018.

 

●      Advance Care Alliance

 

●       Care Design NY

 

●    LIFEPlan

 

●         Person Centered Services

 

●      Prime Care Coordination

 

●       Southern Tier Connect

 

●       Tri County Care

 

Map of CCO Coverage Areas (Download)

 

This section is intended for everyone. Here you will see physical places and services to receive assistance regarding Autism, US and International centers included. This includes schools, universities, treatment centers and more. 


My Giant Steps (Illinois) 

Since our inception in 1996, Giant Steps has been focused on providing education, therapeutic and recreational programs for Elementary, Junior High and High School students with Autism Spectrum Disorders (ASD), their families and the community.

Giant Steps is currently designated as a therapeutic day school in the State of Illinois licensed and certified to exclusively serve students with a primary diagnosis of Autism.

Our goal is to improve a child's ability to interact, communicate, and develop academic and daily living skills through a one-on-one integrated approach encompassing:  Autism Education: Every student attending the Day School at Giant Steps has an Individualized Education Program (IEP) to meet their specific needs and goals within four service domains: cognitive learning and awareness, communication abilities, social/emotional development, and motor skills.

Training: The Autism Training Center (ATC) provides guidance and support to families touched by autism. The ATC offers consulting, training and seminars for individuals and families touched by autism, as well as schools, community organizations, early intervention centers, respite providers, police, paramedics, and emergency workers.

Therapy: Speech/communication therapy, occupational therapy, neurologic music therapy, social work and applied behavior analysis are available in a one-on-one approach tailored to each students needs.

Specific physical and creative sessions include dance therapy, yoga, fitness training, social and interactive groups, piano and music lessons.

Recreation: Our Rec Center provides after school activities that complement our education curriculum, including a computer lab, sensory and motor rooms, and dance and yoga areas, art and express yourself centers, as well as fitness facilities.

Life Skills: The adult day program offers opportunities for adults with autism to participate in a work environment and to develop necessary job skills to foster greater independence. 

The National Autism Center

The National Autism Center is May Institute’s Center for the Promotion of Evidence-based Practice. It is a nonprofit organization dedicated to disseminating evidence-based information about the treatment of autism spectrum disorder (ASD), promoting best practices, and offering comprehensive and reliable resources for families, practitioners, and communities. 

In 2009, the National Autism Center completed an unprecedented multi-year project — the National Standards Project — to establish a set of standards for effective, research-validated educational and behavioral interventions for children on the spectrum.

These standards identify treatments that effectively target the core symptoms of ASD.

The resulting National Standards Report is the most comprehensive analysis available to date about treatments for children and adolescents with ASD. It is a single, authoritative source of guidance for parents, caregivers, educators, and service providers as they make informed treatment decisions.

In 2015, we released a new review and analysis of treatments for ASD based on research conducted in the field from 2007 to 2012.

This report provides an update to the empirical treatment literature (as published in the National Standards Report in 2009) and includes studies evaluating treatments for adults (22+), which have never been systematically evaluated before now.

The National Autism Center resides on a campus shared by May Institute’s corporate headquarters, the May Center School for Autism and Developmental Disabilities, the May Center for Evaluation and Treatment, and a Day Habilitation Program for adults with disabilities.

Located on that campus are more than 40 doctoral-and master’s-level professionals, representing one of the country’s largest on-site concentrations of clinical expertise in ASD.

The Center is also APA-approved internship site, drawing talented doctoral students from across the country.

Guided by a Professional Advisory Board, the Center brings concerned constituents together to help individuals with ASD and their families pursue a better quality of life.

ESP You and Me (ESP) 

Extra Special People, Inc. (ESP) was founded in 1986 in Watkinsville, Georgia to create a community of support for individuals of all abilities. Our founder, Martha Wyllie, noticed an unequal amount of opportunities for children with disabilities, beginning ESP as one week of summer camp for only 21 participants.

Since our humble beginning, we have grown to now serve over 500 participants from over 30 counties in Georgia through 8 weeks of summer camp, annual after school enrichment programs, and ongoing family support.  ESP serves participants beginning at birth and with no upper age limit, welcoming participants with diagnoses of Cerebral Palsy, Down syndrome, Autism, Traumatic Brain Injury, Spina Bifida, and many more. Here at ESP, participants are never turned away because of their ability.

Our specialized programs enable our participants to thrive with swimming, dancing, arts and crafts and cooking; family support, retreats, dinners, counseling, and holiday events.   For two decades, we conducted all programming in a 1,600 square foot gym, with the number of participants growing each year. The demand for more space grew as the gym limited the scope of our services and created accessibility barriers. In June of 2016, after a $3 million capital campaign, we opened the doors to a new 14,000 square foot Activity Building and renovated our original gym. As a result of two new spaces, ESP enrollment grew 25% immediately, allowing us to serve the hundreds of participants who now call ESP home.

The need for quality programming and recreational facilities for individuals with disabilities continues to grow, with ESP being the only program of our kind in the region. Knowing the need to serve more participants, more often, ESP grew the following mission-driven growth programs:  In 2014, ESP was gifted a 70-acre camp property in Jackson County, Georgia with a vision for it to become the country’s first universally accessible overnight camp, parent respite center, and recreation facility.

In 2016, we expanded our programs through the launch of Java Joy, a mobile coffee cart that employs adults with disabilities. This program has expanded not just in our area, but across the state and country, with new Java Joy locations opening starting December 2019.  And in 2019, identifying a need for increased recreation and play between children with and without disabilities, our community rallied together to support the creation of the ESP Miracle League, what will soon be a fully accessible baseball field and playground in Watkinsville.  ESP will continually strive to grow in our capacity to serve the thousands of individuals with disabilities in our region and provide new, innovative, and accessible experiences for kids and adults of all abilities in our community to thrive.  

Here you will see resources For Beginners And Children. Primarily, this section is intended for anyone just starting out on their  Autism journey or the chronological age range from birth to 9 years old but the developmental age may be different so individuals may be older and still benefit from resources from this section based on the developmental age of the individual.

The type of resources include books, websites, doctors, and more.

The Forum Institute Environmental and nutritional strategies for safe pregnancies and healthy children (P2I)

 

The Forum began as a division of the Northwest Autism Foundation. NWAF had worked with great success to validate the previously novel concept that autism is at least partly the result of environmental factors – and therefore a condition that can in many cases be prevented and/or treated.

How It Began In 2004, NWAF, in cooperation with Massachusetts General Hospital, raised $1.5 million to establish the Autism Treatment Network (ATN).

Initially involving experts in various medical disciplines at six treating hospitals,

ATN was the first network of its kind to bring together physicians of diverse specialties in order to bridge gaps in knowledge and thereby improve treatment for individuals with autism spectrum disorders (ASDs).

Today ATN remains the premier university ASD research program.

The Forum’s mandate was to broaden the intellectual and scientific base of NWAF’s message by convening think tanks of leading researchers and then publishing results. 

Autism: One Part of a More General Problem Through the work of its think tanks,

The Forum gained a new perspective: autism appeared as a special case of a more general public health problem – the increasing incidence of problem pregnancies and of serious, chronic disorders among infants and young children.

The Forum also learned that the relevant scientific and medical research communities had accepted for years that environmental factors were chief causes of much of this public health problem.

Means had even been developed and tested whereby a woman contemplating a baby could be guided through toxin avoidance, proper nutrition and other healthy behavior choices and thus dramatically increase her odds of a healthy pregnancy and of a healthy baby.

But these means remained largely unused.

Medical practitioners ignored them and the general public was unaware they existed.

Publicizing the Science The Forum then chose to become an independent foundation whose first project is to publicize effectively the science of healthy pregnancies and infants – and to offer mothers-to-be a specific, step-by-step regimen designed on the basis of that science, that they can follow on their own or with a trained medical practitioner.

This is Preconception-to-infancy, or P2i for short.

What’s Next for The Forum? 

Once its P2i initiative is underway, The Forum will launch other public health initiatives into the public consciousness.

First up will be the One-Year Project – which will build on the “Early Identification” paper (cited above), under the leadership of co-author and Forum director Dr. Doreen Granpeesheh.

Ask Dr. Doreen

Ask Dr. Doreen is a segment on the show autism live  where viewers can ask her questions every Wednesday from 10:00 to 11:00 AM Pacific time or 1:00 till 2:00 PM Eastern Standard time.

Sorted by category are the answers to viewers questions and if you don't see your question listed then right into the show to get your question answered.

Dr. Doreen Granpeesheh is the Founder and Executive Director of the Center for Autism and Related Disorders (CARD).

Dr. Granpeesheh received her Ph.D. in Psychology from UCLA and is licensed by the Medical Board of California and the Texas, Virginia and Arizona State Boards of Psychologists as well as having her Behavior Analyst license by the Arizona and Nevada State Boards of Psychologists.

Dr. Granpeesheh holds a Certificate of Professional Qualification in Psychology from the Association of State and Provincial Psychology Boards, is a Board Certified Behavior Analyst and has been providing behavioral therapy for children with autism since 1979.

She is a member of numerous Scientific and Advisory Boards including the US Autism and Asperger’s Association, the Autism File journal, Autism 360/medigenesis and the 4-A Healing Foundation.

Dr. Granpeesheh is also an active member of the Autism Human Rights and Discrimination Initiative Steering Committee, on the Practice Board of the Association for Behavioral Analysis International, and on the Oversight Committee of the Department of Developmental Disabilities for the State of Arizona.

In addition, Dr. Granpeesheh currently co-chairs the Early Intervention sub-committee of the North Los Angeles County Taskforce of the Senate Select Committee on Autism and Related Disorders.

Dr. Granpeesheh has had numerous scientific publications on issues concerning the diagnosis and treatment of Autism and currently oversees the behavioral treatment of over 1000 patients through CARD’s 20 clinic sites across the globe.

The Autism Community in Action (TACA)

In September 1999, the word “autism” rang through my ears like a cannon shot across the bow.

My husband and I knew something was not going well with our son Jeff, but we would have never guessed it was autism. 

Following that fateful visit with the neurologist, we visited many other professionals including medical doctors, speech pathologists, audiologists, and behaviorists.

The list seemed endless. The common message we were given: Autism has no hope, no cure. In fact, the first three medical doctors recommended that my family find “institutional placement” for Jeff who was the ripe old age of 2½ years at the time.

Refusing to give up on our son, my husband and I spent hundreds of hours talking to any and all parents of a child diagnosed with autism, reading dozens of recommended books, watching countless hours of educational videos, and of course, surfing the internet constantly.

We were determined that our beloved son would grow far beyond his label and that he would have a future that was wonderful and amazing despite his autism diagnosis. Early on, the most important step for us was to GET BUSY. It was up to us, HIS PARENTS, to make a difference for his future. 

The early days of our son’s diagnosis were frustrating. Those countless hours spent researching, reading, talking – wasn’t there a better way? Wasn’t there SOMEONE who had already done the same research and search for answers before, who could have brought us up-to-speed much sooner for us to help our son faster?

Fast forward to November 2000, when our daughter Lauren (at the advanced age of 16) recommended that we start a parent support group.

Both my husband and I felt we were not qualified but we definitely wanted the company of other families going through the same struggles for social gatherings and to share information, especially new research and treatments options as they became available.

We also hoped to build a community where parents would be inspired by each other’s steadfast hopes for their children’s futures and who would be passionate about autism education for themselves and other similarly struggling families and raising awareness in the general public.

TACA began with a small handful of families in a living room in 2000. 

By the end of 2017, we serve over 55,000 families around the United States. From a grassroots beginning in Southern California, TACA expanded nationwide and now has a physical presence via our Chapters in 27 states and a virtual presence in the rest of the nation. 

Where is my son Jeff now? He is in his early 20’s, got into his first choice college, learning same curriculum as his typical peers with a great grade point average.

He still has a part-time aide. He talks, makes jokes, gives out hugs, loves concerts, plays guitar, socializes with typical friends, and is an active member of the society with a bright future.

He also happens to be the sweetest, kindest person I know and is practically always smiling. That is a far cry from his early diagnosis and the initial prognosis for his future.

TACA’s goal is to provide education, support, and information to parents to help their children diagnosed with autism be the very best they can be, with the hope of recovery.

Today, there are many, many treatment options that help alleviate many of the symptoms suffered by our children diagnosed with autism.

Let us share our collective, hard-won knowledge and experience with your family so your child’s treatment can begin right away.

Ask about the autism journey because we are families with autism who have already “been there and done that” with many of our children.

Some of us are still working hard everyday with our children for whom we never give up hope. We are Families with Autism Helping Families with Autism.

The autism journey is not an easy one. It’s a marathon, not a sprint; so take each minute, hour, or day, one at a time. It will be difficult, but it will also be incredibly rewarding, because it will change your life, your family’s life, and most importantly, the lives of your children with autism to all enjoy a brighter future. 

I wish all families treating and caring for their children with autism the very best possible outcomes for their children as they continue forward on the autism journey. 

Dr. Stephen Shore 

Dr. Stephen Shore (born September 27, 1961) is an autistic professor of special education at Adelphi University. 

He has written the books that include: College for Students with  Disabilities, Understanding Autism for Dummies, Ask and Tell, and Beyond  the Wall.

Currently, he serves on the board of Autism Speaks,  and is one of the first two autistic board members in its history,   looking to improve the potential of those on the autism spectrum.

He  once headed the Asperger's Association of New England and was on the  board of the Autism Society of America.    Diagnosed  with "Atypical Development and strong autistic tendencies" and "too  sick" for outpatient treatment Dr. Shore was recommended for  institutionalization.

Nonverbal until four, and with much support from  his parents, teachers, wife, and others, Stephen is now a professor at  Adelphi University where his research focuses on matching best practice  to the needs of people with autism. 

In  addition to working with children and talking about life on  the autism  spectrum, Stephen is internationally renowned for presentations,   consultations and writings on lifespan issues pertinent to education,   relationships, employment, advocacy, and disclosure.

His most recent  book College for Students with Disabilities combines personal stories and research for promoting success in higher education. 

A current board member of Autism Speaks, president emeritus of the Asperger's Association of New England, and advisory board member of the Autism Society, Dr. Shore serves on the boards of the Asperger Syndrome and High Functioning Autism Association,

The US Autism and Asperger Association, the Scientific Counsel of OAR, and other autism related organizations. 

Future Horizons  Amazon 


Your child has been diagnosed with Autism Spectrum Disorder and you are feeling overwhelmed and alone. Suddenly you need to become an expert in treatment, diet, language development, social skills, special education law, insurance and a million other things! What you’d really like to know is how to deal with Aunt Martha’s questions at the family reunion!


Autism: Parent to Parent is your guide to all of this and more. Veteran parent Shannon Penrod hosts Autism Live, the #1 rated Autism Podcast worldwide, now she is giving you all her best resources, strategies, tips and information to help you and your child survive and thrive. Autism: Parent to Parent covers everything you need to know such as:


What do you say to pushy relatives?

How do you get the best treatment options?

How do you deal with school?

Most importantly, how do you deal with all the emotions that come with day-to-day life?

Ms. Penrod covers all a parent of an individual with ASD needs to know, with honesty, humor and humility while empowering you to rise to meet all the challenges and triumphs on your journey.

Organizations

This section is intended for: anyone who wants to volunteer and donate in their Autism Community. Here you will see facilities and foundations that you can support, but may not be able to physically go to for services, like a center. The types of organizations include: sports organizations, film studios, charities and more. 


Camp Pegasus


Participant profile: Well-regulated behaviorally independent neurodiverse children with ADHD, autism, learning differences, and anxiety. Campers are broken into two age groups: 4-5 year-olds (pre-K and K), and 6-8 year-olds (first grade and up).  

 Duration: Six weeks, broken into three 2-week sessions from July 8th-August 16th  Meeting time: Half-day summer social skills intensive program: 9am-12pm  

 Location: The offices of the Art of Friendship/Child and Family Art Therapy Center: 600 Haverford Rd. Haverford, PA 19041  MINI-PEGASUS- ART OF FRIENDSHIP IS THE SOCIAL SKILLS SUMMER “CAMP” PROGRAM THAT PRECEDED AND SPAWNED CAMP PEGASUS! FEATURING…

 Small group size & ratios: up to six children in the 6-8 year-old groups; up to five children in the 4-5 year old groups; each group has two staff: one therapist and one assistant.  Daily social skills lessons from Mike Fogel’s Art of Friendship Social-Coping Curriculum (used at Camp Pegasus & The Art of Friendship social skills groups)  

Structured activities for successful social practice: Art Therapy, Music Therapy, Free Play with Coaching  Our ultra-positive social skills training approach featuring Targeted Positive Reflection (T.P.R.), our original positive reinforcement token-economy system, carnival style reward system, and compassionate social coaching.  Beloved Camp Pegasus community-building traditions such as singing the CP Morning Anthem, The Goodbye Song, Relaxed snack together, and Wacky Wednesday themed dress-up events.   Our loving atmosphere and a sense of belonging to an accepting & encouraging community that ”gets” your child  Parent support & training: 

 You will receive daily emails detailing the social lessons and language so you can reinforce them at home.

 Plus, Mike Fogel provides workshops to empower parents and caregivers to support your child and reinforce their acquisition of social and emotional coping skills.

Tuition: 1 session fee = $1,275; any 2 sessions = $2,550; all 3 sessions = $3,825  (3% discount is offered when you pay by cash or check)  

The Global Autism Project

It began with people showing up at my door looking for the lady who knew what autism was. 

What I heard from one mother inspired me to take action immediately. 

“When I learned it was autism, I would have preferred the diagnosis was that of a terminal illness.

It’s taken me years to get to the point of even talking about it without breaking down,” she told me.

Many others in the community expressed similar fears and explained that in Ghana (and many other countries around the world) the locally accepted belief is that these children were possessed, taken by ‘bad spirits’ and autism, tore families apart due to fear and lack of information more than anything else.

Though each parent felt alone and isolated, they were not.

A variation of the same story was shared over and over again.

The details of these stories (and the mosquitoes) kept me up at night.

After many conversations with families of kids with autism in Ghana, I realized that something had to be done.

Someone had to help. As I attempted to find an organization dedicated to providing training services that would be able to work in Ghana, I was faced with the harsh reality that it simply did not exist.

In 2003, no organization existed that was able to come to Ghana to provide services for an affordable price or with any plan for sustainability or ‘lasting change’ in place.

That is until mid-November of 2003 when the Global Autism Project was born!

At that time, I met ‘Auntie Serwah’– a parent of a child with autism who had started the Autism Awareness Care & Training center in Ghana.

The Autism Awareness Care & Training center was a beacon of hope for families, a safe space where families could share their deepest struggles and a place providing education for these kids, with very few educational resources and in many cases limited training.

It is where I began work.

And by began work, I mean I began volunteering in the Autism Awareness Care & Training Centre in Accra, Ghana and with local families whose children were learning and making progress for the first time in their lives.

I also realized that, I knew that as much as I loved Ghana, I wasn’t going to be there forever.

From the outset, my involvement was in training the staff and families who were going to be working with these kids long after I was gone.

My dream, even then, was to bring hope to every mother in every country who ever felt like an autism diagnosis was a death sentence.

My mission was to provide training to every community where people were working to help these children live better lives and be accepted by their communities.

The Global Autism Project is a now a global movement of passionate, dedicated individuals coming together to provide lasting, meaningful change for communities around the world.

It’s an international network of people who not only care for but are equipped to teach people with autism.

We’re empowering a generation to understand and accept autism and it’s exciting!  There are 70 million people in the world with autism. 85% of them live in developing countries. We have a ways to go!  Let’s do this.