Chronic Lyme Disease

Patient's Symptoms

CONTINUED- Part 3

HERXING

What meds are you taking?

How long before herx?

Worse than last herx?

Fever or chills?

Depression, wimpy, whiny?

Sleep more or rest more?

More pain and where?

Problems that were the worst?

How long did it last?

Did anything help it?

Any functioning during herx or bed/home bound?

Did you stop medications at all or back off?

Allergic reaction to any meds?

BLADDER

Bladder hesitancy

Bladder frequency

Loss of bladder awareness

Urinary retention

Incontinence, dribble

Symptoms of UTI

Blood in urine- visible- or by test

Dark colored urine- like cola

Dark colored urine- like strawberry soda

Urine foamy- like soapy

Strong smell of ammonia in urine

Strong smell of urine

MENSES

PMS symptoms exaggerated- ver much so.

Early menopause symptoms that lasted for years.

Spotting

Irregular time, early or late

Irregular amount of flow- flooding

Cramping/pain

Disturbed estrogen and/or progesterone levels

Loss of sex drive

Bloating

Moodiness, wimpy, whiny

Missed periods

Flooding 10 days to 14 days

Flooding month round- non-stop for months to years

Very high estrogen levels, very low progesterone.

STOMACH, INTESTINES

Pain in stomach or intestines

Abdominal bloating

Abdominal pain and cramping. like perhaps ulcer pain

Nausea, gagging

Vomiting

Spastic and painful colon and muscles inside colon painful

Colon spasms- pain strong enough to wake me up from sleep

Stomach acid reflux- burning

Indigestion and burning not caused by food

Loss of day time appetite

Every few weeks vomiting spells with headaches for a week or more

Eating barely anything for days- then like a light bulb went off- I feel starved and eat anything and everything around me

EYES

Photosensitivity to certain kinds of light, such as:

A. Flickering light by fluorescent lights- causing seizures, panic attacks, misery, violent behavior, craziness, crying, or other inappropriate responses

B. TV or computer screens sensitivity to where I can’t watch or use them

C. Headlights of oncoming cars or shining reflective lights hurt eyes and confuse me

D. Halo’s around lights, especially headlights, and reflective street signs

E. Moon- see double or triple moons

Swelling around eyes and eye lids

Eyes water for no reason and light makes them water more and hurt

Blurry vision

Double vision

Floaters- triangle shaped or rectangled shapes- dark box with dots inside on clear background- white, silver or black colors

Yellowish, greenish, or white discharge from eyes

Eye pain

Eyes aching

Eyes itchy

Eyes burning

Foggy covering over eyes

Can’t focus far to near or back again- sometimes all day long

Like looking through a white film over everything I see

Left eye can’t turn to the left

Dark circles (sometimes purple) under eyes and swelling or puffy

Black eyes

Purple/black eyes with yellow skin on the inside corners

Black eyes with blister-like bumps at edges

Transient blindness or blind spots in center of vision

Sensations that the light is fading out or getting dull

Argyll-Robertson pupil- left side

Unequal pupils

Pupils don’t close together at the same time

Sunlight hurting eyes to the point of pain, tears, dizziness, and nausea

HEART

Blood pressure too high or low (max and min- 240/140 high to 40/nothing)

Irregular heart beat or skipping beats

Fast pulse, weak, thready

Thudding or thumping heart beats here and there, especially laying down at night

Squeezing chest pain or like someone is standing on my ribs feeling

Like bra is too tight feeling

Skipping beats or dancing

Heart beats hard and thuds with light activity

Fluttering fast heart while laying down at night or while trying to get up in the morning- like heart is trembling

Must move by holding onto things and only from chair to chair and heart is acting up

SINUS

Food allergies from leaky gut- different ones- any better/worse

Sinusitis and clogged up

Postnasal drip- constant

Allergic or chemical hypersensitivity's problems

Soaps, gas, fumes, pine trees, perfumes, new car interior, new clothes smell, candles, etc make me feel very sick

Overly dry sinuses

Very thick and sticky phlegm (clear).

HAIR AND FINGERNAILS

Hair loss in circle patches or general thinning

Hair growing faster than normal

Fingernails break easily and lose strength

Fingernails growing fast and strong

Body hair growing faster or slower

TMJ

Ice pick type pain in one ear or the other

Jaw pain like a severe tooth ache

Clenching teeth day or night or both

Jaw popping out of joint

Jaw overlapping at joint

Jaw pain R or L

Tooth pain- upper- lower- right- left

Lip numbness or tingling or half of lip numb

Tongue- loss of strength or movement- paralyzed on one side

Difficulty swallowing or chewing food or liquids- choking often

Gums swelling and fluid filled pouches along bones and gums

Ear and face pain from jaws hurting

Continual accidental biting of tongue (ver hard) when talking or trying to chew

Jaw bones pop out of joint and that hurts

BONES

Water on the knees, swelling, or knee pain

Bone pain anywhere (especially very tender shins, arm bones, leg bones)

Gout-like pain in toe- sharp stabbing pain

Dislocating shoulders without reason other than from muscle spasms

Pain in hip bones (pelvis bones and edges) and tender to touch

Sharp pain in tailbone when trying to sit

Feels like one hip is fused with the other.. not two separate ones

Swelling over the bones in elbows

Arthritis pain in joints

Fluid filled lump at the base of my tailbone- size of a golf ball- eventually breaks open and drains internally.

Very painful shin splints- not just in front, but sometimes on outsides of calves, inside calves or in the back of lower legs. Too painful to walk for weeks at a time. Repeated episodes.

LYMPH NODES AND GLANDS

Swollen glands in neck or behind or below ears

Swollen lymph nodes and extremely tender along breast bone

Swollen nodes in groin area

Swelling nodes in groin and infected/draining

Swollen nodes in arm pits

Other swollen lymph nodes/glands

Swollen, puffy, painful spleen. (Yes, I CAN tell Dr. Dummy- had it before several times)

Kidney pain on either side

LUNGS AND CHEST

Light cough

Pressure in upper chest, below the center of the neck. In upper sternum and across, from shoulder to shoulder.

Noticing VERY shallow breaths, like I am hibernating

Difficulty breathing. Shortness of breath feeling, like not getting enough air when I breath.

Feeling like diaphragm is not wanting to move on its own

Hyperventilating spells if sitting or standing upright that are severe enough to seek medical assistance

Shortness of breath- panting

Rib soreness and pain or muscle spasms

Burning pain between ribs. VERY painful making entire rib cage hurt badly.

Feeling as if I have to remind myself to breathe. Many episodes of it. Very scary.

Ribs twisted out of place from muscle spasms or inflammation and they become very painful. Like a stabbing pain.

Rib muscles spasm and shift ribs out of place so they overlap each other. They also twist out of place along the sternum causing sharp pain when ribs meet sternum.

EARS AND HEARING

ALL noise startling and annoying to the point of maddening

When phone rings I jump, badly startled

Ringing in ears

Buzzing in one or both ears

Pain in and behind right ear. If I lightly pull on the outside of my ear- something breaks loose and drains inside my head. Like ice pick pain accompanies it- shooting and stabbing. Extremely bad pain.

Off balance- walking sideways when trying to go straight and legs crossing over each other instead of moving forward

Can’t watch TV or understand it or I don’t have the attention span to follow it

Strain to see TV and it hurts eyes and/or ears

Furnace running and refrigerator humming noise sounds very loud and makes me lose focus and be unable to think right

Can tell music is on, hear it, but don’t “absorb” it. Sounds like annoying noise sometimes.

Can’t listen to the pitches in women’s voices sometimes without wanting to scream

Voices sound faint or distant or muffled

Can’t pick up voices if there is any background noise

Hypersensitivity to sounds

Noises are loud and echoing

Loss of hearing and must have things turned way up to hear them.

Use of phone causes ears to turn red and burn badly

If wind blowing across ear (like window down driving in car) it makes me very ill.