Resources

PROMs Tip Sheet 

Click this link to download the tip sheet.  The APERSU Patient Engagement Network developed this PROMs Tip Sheet to help patients better understand the value of Patient-Reported Outcome Measures (PROMs).

APERSU Webinars

February 25, 2026. EQ-5D Bolt-On Toolbox: An introduction.

March 19, 2026. Insufficient or inappropriate? Validity of the EQ-5D-5L for Indigenous People in Canada.

April 29, 2026. Evaluating Workers' Compensation Board (WCB) programs using the EQ-5D-5L: Impacts on health and return to work.

February 26, 2025. Title: Development of minimal and optimal outcome measures for adult and paediatric chronic pain, Alberta     Pain Strategy Outcome Working Group. 

March 27, 2025. Title: Can patient-reported outcome measures really improve patient care? A closer look at the evidence. 

April 30, 2025. Title: What do we know about health-related quality of life in Alberta? Insights from EQ-5D-5L population norms.

December 9, 2020. Title: The use of routinely collected PROMs data in Primary Care Networks in Alberta

July 30, 2020. Title: The use of routinely collected PROMs data at Cancer Control Alberta
Webinar materials: Presentation Slides

May 28, 2020. Title: The use of routinely collected PROMs data in Community Rehabilitation in Alberta
Webinar materials: Presentation Slides

March 26, 2020. Title: “How can we use routinely collected PROMs data to support decision-making within the healthcare system?“
Webinar materials: Presentation Slides

September 5, 2019. Title: “Minimally Important Difference (MID) of patient-reported outcome measures (PROMs): What it is, and when and how to use it?”
Webinar materials: Presentation Slides

June 20, 2019. Title: “Disease-specific PROMs: When and how to use them?“
Webinar materials: Presentation Slides

April 25, 2019. Title: “The use of PROMs/EQ-5D in economic analysis”
Webinar materials: Presentation Slides

February 27, 2019. Title: “Comparing PROMs/EQ-5D data with population norms”
Webinar materials: Presentation Slides

June 27, 2018. Title: “The Use of EQ-5D in Clinical Practice (focus on primary care)“
Webinar materials: Implementation of EQ-5D Assessment in Clinical Practice – Guidelines Summary

May 11, 2017. Title: “EQ-5D in Program Evaluation“

June 15, 2016. Title: “Collecting, analyzing and interpreting EQ-5D data”

Seminars

Mixed methods development of experimental EQ-5D-5L toolbox bolt-ons for vision and cognition. Given by Brendan Mulhern, June 16, 2026. 

Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction. Presented to PCN Physician Leads Forum, January 30, 2016. 

Podcasts

The University of Calgary ISPOR Student Chapter, in collaboration with the University of Alberta, is proud to present a new podcast series in Health Economics and Policy: Informing and understanding healthcare decision-making in Alberta and abroad. The fourth podcast in the series is now available! The Measurement of Health-Related Quality of Life features Dr. Fatima Al Sayah, Research Associate with the Alliance for Canadian Health Outcomes Research in Diabetes (ACHORD) research group, School of Public Health, University of Alberta, and Research Manager of Alberta PROMS and EQ-5D Research and Support Unit (APERSU).  

http://healtheconomicspolicy.podbean.com/

Videos

External Resources

EuroQol Group: http://www.euroqol.org/

Health Quality Council of Alberta (HQCA): http://hqca.ca/studies-and-reviews/health-outcomes-measurement/

Canadian Institute for Health Information (CIHI): https://www.cihi.ca/en/health-system-performance/quality-of-care-and-outcomes/outcomes/patient-reported-outcome-measures

Institute of Health Economics (IHE), Canada: http://www.ihe.ca/

The University of British Columbia (UBC), Patient Reported Outcomes Blog: http://patientreportedoutcomes.ca/

Mapi Research Trust: http://www.mapi-trust.org/

PROQOLID: https://eprovide.mapi-trust.org/about/about-proqolid

National Health System (NHS), UK: http://digital.nhs.uk/proms

National Centre for Health Outcomes Development at the University of Oxford (NCHOD): http://nchod.uhce.ox.ac.uk/

Office of Health Economics (OHE), UK: https://www.ohe.org/

International Society of Quality of Life Research (ISOQOL): http://www.isoqol.org/

International Society For Pharmacoeconomics and Outcomes Research (ISPOR): https://www.ispor.org/

Health Technology Assessment International (HTAi): http://www.htai.org/

Health Measures: http://www.healthmeasures.net/index.php