Publications and collaborations

Al Sayah F, Jin X, Short H, McClure N, Ohinmaa A, Johnson JA. A Systematic Literature Review of Important and Meaningful Differences in the EQ-5D Index and Visual Analog Scale Scores. Value Health 2025;28(3):470-476.   PMID: 39694263.

Humphries B, Pullenayegum E, Ohinmaa A, Jack S, Feng X. Exploring the feasibility of using discrete choice experiment (DCE) to elicit preferences among children and adolescents: Protocol for a convergent parallel mixed methods study. BMJ Open 2025;15(4):e097598. PMID: 40204324.

Fuhrmann AC, Cordova FP, Al Sayah F, Johnson JA, Paskulin LMG. Health-related quality of life of people receiving venous leg ulcer treatment with compression therapy. Wound Practice and Research. 2025; 33(1). PMID: N/A

Fair O, Ali AB, Haener M, Plotnikoff K, Schaaf N, Schmitt-Boshnick M, Soprovich A. Use of patient-reported outcome measures (PROMs) in primary care-based mental health programming: an environmental scan of Alberta, Canada. BMC Prim. Care. 2025;26(1):71.  PMID: 40089665.

Al Sayah F, Alam A, Short H, Ohinmaa A, Lahtinen M, Malo S, Johnson JA. Norms for the EQ-5D-5L among the general adult population in Alberta, Canada. Qual Life Res. 2025 Jan;34(1):219-230. doi: 10.1007/s11136-024-03804-y. Epub 2024 Nov 2. PMID: 39487883; PMCID: PMC11802591.

Ohinmaa A, Wen J, Currie GR, Benseler SM, Swart JF, Vastert SJ, Yeung RSM, Marshall DA. Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis. Qual Life Res. 2024 Aug 14. doi: 10.1007/s11136-024-03682-4. Epub ahead of print. PMID: 39141175.

Nystrøm V, Ohinmaa A, Linqvist Leonardsen A-C. Continuity and coordination of health care services in Canada and Norway - an interview study across various health care personnel. BMC Health Services Research 2024;24(1):1494.  PMID: 39609843

Soprovich AL, Short H, Ali AB, Brower K, Ohinmaa A, Johnson JA. Using Patient-Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study. Health Sci Rep. 2024 Dec 30;8(1):e70308. PMID: 39741745.

Johnson JA, Itiola A, Rahman S, Smith C, Soprovich A, Wozniak LA, Marshall DA. (2024). Exploring patient perspectives on EQ-5D-5L data visualization within an individualized decision aid for total knee arthroplasty (TKA) in Alberta, Canada. BMC Musculoskelet Disord 2024;25(1):183. https://doi.org/10.1186/s12891-024-07304-5. PMID: 38424523.

Roy LM, Neill A, Swampy K, Auger J, Campbell SM, Chatwood S, Al Sayah F, Johnson JA. Preference-based measures of health-related quality of life in Indigenous people: a systematic review. Quality of Life Research, 2024;33(2):317-333. PMID: 37715878.

Ernstsson O, Heintz E, Nordenskjold A, Johnson JA, Korkmaz S, Zethraeus N. Association between pulse width and health-related quality of life after electroconvulsive therapy in patients with unipolar or bipolar depression: an observational register-based study. Nord J Psychiatry 2024;78(2):137-145. PMID: 38079191.

Yan J, Xie S, Johnson JA, Pullenayegum E, Ohinmaa A, Bryan S, Xie F. Canada Population norms for the EQ-5D-5L. Eur J Health Econ 2024;25(1):147-155. PMID: 36828968.

Xie, F., Xie, S., Pullenayegum, E. et al. Understanding Canadian stakeholders’ views on measuring and valuing health for children and adolescents: a qualitative study. Qual Life Res 33, 1415–1422 (2024). https://doi.org/10.1007/s11136-024-03618-y

 Wu X, Ohinmaa A, Maximova K, Veugelers P. Health-related quality of life in relation to health behaviour patterns among Canadian children. Children 2024; 11(3), 346:1-14. https:// doi.org/10.3390/children11030346

Short H, Al Sayah F, Churchill K, Keogh E, Warner L, Ohinmaa A, Johnson JA. The use of EQ-5D-5L as a patient-reported outcome measure in evaluating community rehabilitation services in Alberta, Canada. Health Qual Life Outcomes. 2023 Nov 17;21(1):125. doi: 10.1186/s12955-023-02207-w. PMID: 37978502; PMCID: PMC10657124.

Fuhrmann AC, Cordova FP, Dennett E, Paskulin LMG, Johnson J.  Economic evaluation of compression therapies in the treatment of venus leg ulcers: a systematic review protocol. Wound Practice and Research 2023;31(2):82-86.  PMID: n/a  

Yan J, Xie S, Johnson JA, Pullenayegum E, Ohinmaa A, Bryan S, Xie F.  Canada Population norms for the EQ-5D-5L. Eur J Health Econ 2023 doi: 10.1007/s10198-023-01570-1. Online ahead of print.  PMID: 36828968.

Marshall DA, Trenaman L, MacDonald KV, Johnson JA, Stacey D, Hawker G, Smith C, Durand D, Bansback N. Impact of an online, individualized, patient reported outcome measures based patient decision aid on patient expectations, decisional regret, satisfaction, and health-related quality-of-life for patients considering total knee arthroplasty: results from a randomized controlled trial. J Eval Clin Prac 2023;29(3):513-524.  PMID: 36575631.

Baragar B, Schick-Makaroff K, Manns B, Love S, Donald M, Santana M, Corradetti B, Finlay J, Johnson JA, Walsh M, Elliott MJ.  “You need a team” – Perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care: A qualitative study  JPRO 2023;7(1):3.  PMID: 36662325.

Roy, LM, Neill, A, Swampy, K, Elder Auger, J, Campbell, SM, Chatwood, S, Al Sayah, F & Johnson, JA. Preference-based measures of health-related quality of life in Indigenous people: A systematic review. 2023. https://doi.org/10.1007/s11136-023-03499-7.

Schick-Makaroff K., Wozniak L.A., Short H., Davison S.N., Klarenbach S., Buzinski R., Walsh M., Johnson J.A. How the Routine Use of Patient-Reported Outcome Measures for Hemodialysis Care Influences Patient-Clinician Communication CJASN Nov 2022, 17 (11) 1631-1645; DOI: 10.2215/CJN.05940522

Elliott M, Baragar B, Schick-Makaroff K, Manns B, Love S, Donald M, Santana M, Corradetti B, Finlay J, Johnson JA, Walsh M.  “You need a team” – Perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care: A qualitative study.  J Patient Rep Outcomes2022 (forthcoming).

Derkach M, Al Sayah F, Ohinmaa A, Svenson LW, Johnson JA. Comparative Performance of the EuroQol EQ-5D-5L and the CDC Healthy Days Measures in Assessing Population Health. J Patient Rep Outcomes. 2022;6(1):64. Published 2022 Jun 13. doi:10.1186/s41687-022-00474-7

Al Sayah F, Lahtinen M, Simon R, Higgins B, Ohinmaa A, Johnson JA. The impact of COVID-19 pandemic on health-related quality of life of adults visiting emergency departments and primary care settings in Alberta. Can J Public Health. 2022 Feb;113(1):96-106.PMID: 35015286.

McClure N, Xie F, Paulden M, Ohinmaa A, Johnson J. Small differences in EQ-5D-5L health utility scores were interpreted differently between and within respondents. Journal of Clinical Epidemiology 2022; 142:Feb 01:133-143. PMID: 34737062.

Wen J, Jin X, Al Sayah F, Short H, Ohinmaa A, Davison SN, Walsh M, Johnson JA. Mapping the Edmonton Symptom Assessment System-Revised: Renal to the EQ-5D-5L in patients with chronic kidney disease. Qual Life Res. 2021 Jul 19. doi: 10.1007/s11136-021-02948-5. PMID: 34278540

Wen J, Jin X, Al Sayah F, Johnson JA, Paulden M, Ohinmaa A. Economic evaluation on sucrose octasulfate dressing for treating patients with diabetic foot ulcers in Canada. Canadian Journal of Diabetes. 2021 Jul 9:S1499-2671(21)00193-3. doi: 10.1016/j.jcjd.2021.07.001. Epub ahead of print. PMID: 35148951.

Wen J, Jin X, Al Sayah F, Short H, Ohinmaa A, Davison SN, Walsh M, Johnson JA. Mapping the Edmonton Symptom Assessment System-Revised: Renal to the EQ-5D-5L in patients with chronic kidney disease. Qual Life Res. 2021 Jul 19. doi: 10.1007/s11136-021-02948-5. .PMID: 34278540

Al Sayah F, McAlister FA, Ohinmaa A, Majumdar SR, Johnson JA. The predictive ability of EQ-5D-3L compared to the LACE index and its association with 30-day post-hospitalization outcomes.  Qual Life Research 2021 (epub ahead of print) DOI: 10.1007/s11136-021-02835-z.  PMID: 33974221.

 McClure NS, Paulden M, Ohinmaa A, Johnson JA. Modifying the quality-adjusted life year calculation to account for meaningful change in health-related quality of life: insights from a pragmatic clinical trial. European Journal of Health Economics 2021 (epub ahead of print).  DOI: 10.1007/s10198-021-01324-x.  PMID: 34089409.

Short H, Al Sayah F, Ohinmaa A, Johnson JA. The performance of the EQ-5D-3L in screening for anxiety and depressive symptoms in hospital and community settings.  Health Qual Life Outcomes 2021;19(1):96.  PMID: 33741011.

Chemli J, Drira C, Felfel H, Roudijk B, Al Sayah F, Kouki M, Kooli A, Razgallah Khrouf M. Valuing health-related quality of life using a hybrid approach: Tunisian value set for the EQ-5D-3L. Qual Life Res. 2021 May;30(5):1445-1455. doi: 10.1007/s11136-020-02730-z. Epub 2021 Jan 14. PMID: 33447958; PMCID: PMC8068700.

Schick-Makaroff, K., Wozniak, L. A., Short, H., Davison, S. N., Klarenbach, S., Buzinski, R., Walsh, M., & Johnson, J. A. (2021). Burden of mental health symptoms and perceptions of their management in in-centre hemodialysis care: a mixed methods study. Journal of patient-reported outcomes, 5(1), 111. https://doi.org/10.1186/s41687-021-00385-z. PMID: 34709470.

Wu Xiuyun, Veugelers P, Ohinmaa A. Health behaviour, health-related quality of life, and mental health among Canadian children: a population-based cohort study. Frontiers in Nutrition 2021; 8:638259; 1-11. doi: 10.3389/fnut.2021.638259 (IF 3.365). PMID: 33777992.

Saravana-Bawan B, Warkentin L, Ohinmaa A, Wagg A, Padwal R, Clement F, Holroyd-Leduc J, Khadaroo R. Patients reported outcomes in an elder-friendly surgical environment: Prospective, controlled before-after study. Annals of Medicine and Surgery 2021; 65: May: 102368: 1-6. PMID: 34026101.

APERSU team authorship in the JPRO supplement:

• Dean S, Al Sayah F, Johnson JA. Measuring value in healthcare from a patients’ perspective. J Patient Rep Outcomes 2021;5(Suppl 2):88. PMID: 34637001.

• Al Sayah F, Lahtinen M, Bonsel GJ, Ohinmaa A, Johnson JA. A multi-level approach for the use of routinely collected patient-reported outcome measures (PROMs) data in healthcare systems. J Patient Rep Outcomes 2021;5(Suppl 2):98. PMID: 34637031.

• Al Sayah F, Jin X, Johnson JA. Selection of patient-reported outcome measures (PROMs) for use in health systems. J Patient Rep Outcomes 2021;5(Suppl 2):99. PMID: 34637010.

• Davison SN, Klarenbach S, Manns B, Schick-Makaroff K, Buzinski R, Corradetti B, Short H, Johnson JA. Patient-reported outcome measures in the care of in-centre hemodialysis patients. J Patient Rep Outcomes 2021;5(Suppl 2):93 (Correction in 5:115). PMID: 34637030.

• Marshall DA, Jin X, Pittman LB, Smith CJ. The use of patient-reported outcome measures in hip and knee arthroplasty in Alberta. J Patient Rep Outcomes 2021;5(Suppl 2):87. PMID: 34636973.

• Churchill K, Warner L, Keogh E, Al Sayah F. Implementation of EQ-5D-5L as a routine outcome measure in Community Outpatient and Specialized Rehabilitation Services. J Patient Rep Outcomes 2021;5(Suppl 2):103. PMID: 34637018.

• Brower K, Schmitt-Boshnick M, Haener M, Wilks S, Soprovich A. The use of patient-reported outcome measures in primary care: applications, benefits and challenges. J Patient Rep Outcomes 2021;5(Suppl 2):84. PMID: 34636988.

Zhao H, McClure NS, Johnson JA, Soprovich A, Al Sayah F, Eurich DT.  A longitudinal study on the association between diabetic foot disease and health-related quality of life in people with type 2 diabetes.  Can J Diabet 2020:44(3);280-286.  PMID: 31669187.

Thomas S, Johnson J, Xie F.  3125 steps to perfect health: A nonparametric approach to developing the EQ-5D-5L value set. Qual Life Research 2020:29(11);3109-3118. PMID: 32705459.

Johnson JA, Al Sayah F, Buzinski R, Corradetti B, Davison SN, Elliott MJ, Klarenbach S, Manns B, Schick-Makaroff K, Short H, Thomas C, Walsh M. A cluster randomized controlled trial for the Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY): A study protocol. BMC Health Services Research 2020:20(1):731. PMID: 32778102.

Jin X, Al Sayah F, Ohinmaa A, Marshall D, Johnson JA. Responsiveness of the EQ-5D-5L and EQ-5D-3L in patients following total hip or knee replacement. Quality of Life Research, 2019; 28(9):2409-2417.

Zhao H, McClure NS, Johnson JA, Soprovich A, Al Sayah F, Eurich DT. A longitudinal study on the association between diabetic foot disease and health related quality of life in people with type 2 diabetes. Canadian Journal of Diabetes 2019 (forthcoming).

Tawiah A, Al Sayah F, Ohinmaa A, Johnson JA. Discriminative validity of the EQ-5D-5L and SF-12 in older adults with arthritis. Health and Quality of Life Outcomes 2019; 17:68.

Jin X, Al Sayah F, Ohinmaa A, Marshall D, Smith C, Johnson JA. The EQ-5D-5L is Superior to the -3L Version in Measuring Health-related Quality of Life in Patients Awaiting Hip or Knee Arthroplasty. Clinical Orthopaedics and Related Research, 2019; 477(7): 1632-1644.

Soprovich A, Ingstrup M, & Eurich D. The frequency and availability of population-specific patient reported outcome measures and minimal clinically important differences among approved drugs in Canada.Health and Quality of Life Outcomes 2019. 17:4.

Kashem T, Al Sayah F, Tawiah A, Ohinmaa A, Johnson JA.  The Relationship between Individual-Level Deprivation and Health-Related Quality of Life.  Health and Quality of Life Outcomes 2019;17(1);176.  PMID: 31783859.  

Al Sayah F, Ohinmaa A, Johnson JA. Screening for anxiety and depressive symptoms in type 2 diabetes using patient-reported outcome measures: Comparative performance of the EQ-5D-5L and SF-12v2. MDM Policy and Practice 2018; doi.org/10.1177/2381468318799361.

Al Sayah F, Yeung RO, Johnson JA. Association of Depressive Symptoms and Diabetes Distress With Severe Hypoglycemia in Adults With Type 2 Diabetes. Can J Diabetes. 2019 Jul;43(5):316-321. doi: 10.1016/j.jcjd.2018.11.002. Epub 2018 Nov 14.

Short H, Al Sayah F, Ohinmaa A, Johnson JA. The relationship of neighborhood-level material and social deprivation with health-related quality of life. Quality of life Research 2018; 27(12):3265-3274.

Zhao H, Johnson JA, Al Sayah F, Soprovich A, Eurich D. The association of self-efficacy and hospitalization rates in people with type-2 diabetes: a prospective cohort study. Diabetes Research and Clinical Practice 2018; 143:113-119.

McClure N, Al Sayah F, Ohinmaa, Johnson JA. Minimally Important Difference of the EQ-5D-5L in Adults with Type 2 Diabetes. Value in Health2018; 21(9):1090-1097.

Crick K, Al Sayah F, Ohinmaa A, Johnson JA. Responsiveness of the anxiety/depression dimension of the 3- and 5-level versions of the EQ-5D in assessing mental health. Quality of life Research 2018; 27(6):1625-1633.

McClure N, Al Sayah F, Xie F, Luo N, Johnson JA. Instrument-defined estimates of minimally important difference in EQ-5D-5L index score for Canadian, Chinese and Spanish scoring algorithms. Value in Health 2017; 20(4):644-650. PMID: 28408007.

Al Sayah F, Xie F, Qiu W, Johnson JA. Comparative Performance of the EQ-5D-5L and SF-6D Index Scores in Adults with Type 2 Diabetes. Quality of life Research 2017;26(8):2057-2066. PMID: 28364183.

Al Sayah F, Johnson JA, Ohinmaa A, Xie F, Bansback N.  Health literacy and logical inconsistencies in health state valuations: Results from the Canadian EQ-5D-5L valuation study.  Quality of life Research 2017; 26(6):1483-92. PMID: 28124280.

Al Sayah F, Bansback N, Bryan S, Ohinmaa A, Pullenayegum E, Poissant L, Xie F, Johnson JA. Determinants of Health Preferences in the Canadian EQ-5D-5L Valuation Study. Quality of life Research 2016 Jul;25(7):1679-85.

Al Sayah F, Qiu W, Johnson JA. Health literacy and health related quality of life in adults with type 2 diabetes: A longitudinal study. Quality of life Research 2016, 25(6):1487-94.

Al Sayah F, Mladenovic A, Gaebel K, Xie F, Johnson JA. How dead is dead? Qualitative findings from participants of combined traditional and lead-time time trade-off valuations. Quality of life Research 2016, 25(1):35-4

Xie F, Pullenayegum E, Gaebel K, Bansback N, Bryan S, Ohinmaa A, Poissant L, Johnson JA, on behalf of the Canadian EQ-5D-5L Valuation Study Group. A time trade-off-derived value set of the EQ-5D-5L for Canada.  Med Care 2016;54(1):98-105. PMID: 26492214.

Xie F, Pullenayegum E, Gaebel K, Bansback N, Bryan S, Ohinmaa A, Poissant L, Johnson JA. How different are composite and traditional TTO valuations of severe EQ-5D-5L states? Qual Life Res 2016;25(8):2101-8.  PMID: 26875190.