Conference Presentations

The performance of the EQ-5D-5L, EQ-HWB, and PROMIS-10 in screening for anxiety and depression symptoms in the general adult population in 15 countries. Short H, Al Sayah F, Janssen MF, Lubetkin EI, Viney R, Johnson JA. EuroQol Early Career Research Meeting, March 11, 2025, Barcelona, Spain.

Listening to patients in primary care practice: Using Patient-Reported Measures (PROMs and PREMs). Brower K, Kiryanova V, Schmitt-Boshnick M, Sidhu S, Soprovich A. Workshop. Primary Care Strategic Forum, May 1-3, 2025, Edmonton, AB.

A network of patient partners: the story of APERSU’s Patient Engagement Network model. Soprovich A and Wilkinson G. (Oral presentation). AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Click, share, advocate: A social media toolkit for patient partners in healthcare research. Singh A. Workshop. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

PROM-ising Perspectives: Engaging patients to shape outcome measures. Duquette D, Kiryanova V, Sidhu S, Soprovich A. Workshop. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Al Sayah F. PROMs: How to walk the talk? ICHOM Conference, October 21-22, 2024, Amsterdam, The Netherlands.

Wen J, Yao P, Liang W, Ohinmaa A, Jin X. Parameter uncertainties in mapping algorithms: A case study of mapping PedsQL Generic Core Scales to EQ-5D-Y-3L among children with neurofibromatosis type 1. ISOQOL 2024, Oct 13-16, 2024, Cologne, Germany.

Al Sayah F. EQ-5D evolution into health systems. Oral Presentation. EuroQol Academy Meeting, Copenhagen, March 6-7, 2024. 

Soprovich A. Harnessing data visualization techniques to enhance patient decision-making using a Sankey diagram. Northwest SPOR Collaborative Forum Workshop, May 23 & 24, 2024. Calgary.

Roy LM. Exploring relevance of the EQ-5D-5L with Urban Indigenous People Living in Alberta, Canada. EuroQoL PhD Network invited oral presentation. June 05, 2024.

Al Sayah F, Soprovich A. Enhancing the use of patient-reported outcome measures (PROMs) in Alberta. Physician Learning Program Fishbowl presentation. June 11, 2024. Edmonton.

Roy, LM, Neill, A, Swampy, K, Elder Auger, J, Campbell, SM, Chatwood, S, Al Sayah, F & Johnson, JA. (2023, March 7th). Preference-based measures of health-related quality of life in Indigenous people: A systematic review. EuroQoL Early Career Researcher Meeting, Milan, Italy. 

Wen J, Currie GR, Marshall DA, Ohinmaa A. Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis. 3rd EuroQol Early Career Researchers Meeting, March 7, 2023, Milan, Italy.

Johnson JA, Itiola A, Rahman S, Smith C, Soprovich A, Wozniak LA, Marshall DA. Patient Perspectives on EQ-5D-5L Data Visualization within an Individualized Decision Aid for Total Knee Replacement (TKA) in Alberta, Canada. 40th EQ Plenary 2023. Paper Discussion. Rome, Italy. September 20-21, 2023.

Al Sayah F., Short H., Ohinmaa A. & Johnson JA. Shaping the path forward: Stakeholder’s perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems – insights from Alberta, Canada. 40th EQ Plenary 2023. Paper Discussion. Rome, Italy. September 20-21, 2023.

Soprovich AL, Affleck E, Pathak S, McBrien K. What’s the value? Integrating multiple sources of data to provide quality care to patients. Northwest SPOR Collaborative Forum 2023. Panel Presentation. October 3-4, 2023.

Marshall DA, Wen J, Currie GR, Benseler SM, Swart JF, Vastert SJ, Yeung RSM, Ohinmaa A. Responsiveness of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis. Oral Presentation. International Society for Quality of Life Research (ISOQOL) 30th Annual Conference, Calgary, AB, October 18-21, 2023.

Al Sayah F, Short H, Ohinmaa A, Johnson JA. Shaping the path forward: Stakeholder’s perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems – Insights from Alberta, Canada. Oral Presentation. International Society for Quality of Life Research (ISOQOL) 30th Annual Conference,Calgary, AB, October 18-21, 2023. Qual Life Res, 2023;32(Suppl 2):S49.

Soprovich AL, Short H, Al-Bakir A, Brower K, Johnson JA, Ohinmaa A. Using patient-reported
outcomes in clinical program evaluation: Two program examples measuring health-related quality of life in primary care. Oral Presentation. North American Primary Care Research Network (NAPCRG), San Francisco, USA. October 31-November 4, 2023.

Soprovich A. Selecting patient-reported outcome measures (PROMs). Family Medicine Forum 2022. Toronto, Ontario. November 8-12, 2022.

Soprovich A. Selecting appropriate patient-reported outcomes (PROMs) for your research. North American Primary Care Research Group (NAPCRG) 50th Annual Conference. Phoenix, Arizona. November 18-22, 2022.

Soprovich A. Overcoming common challenges to using patient-reported outcome measures (PROMs) in primary care. North American Primary Care Research Group (NAPCRG) 50th Annual Conference. Phoenix, Arizona. November 18-22, 2022.

Schick-Makaroff K, Wozniak L, Short H, Davison SN, Klarenbach S, Buzinski R, Walsh M, Johnson JA. How the routine use of PROMs for hemodialysis care influences patient-clinician communication: a mixed methods study. 54th Canadian Society of Nephrology (CSN) Virtual Annual General Meeting, May 12-14, 2022.

Wen J, Al Sayah F, Simon R, Lahtinen M, Johnson JA, Ohinmaa A. A longitudinal analysis on health-related quality of life during the COVID-19 pandemic in Alberta, Canada. 2nd EuroQol Early Career Researchers Meeting, Apr 20, 2022.

Le CY, Troung LK, Holt CJ, Filbay SR, Dennett L, Johnson JA, Emery CA, Whittaker JL. Measuring Health-Related Quality of Like in Active Youth: A Systematic Review.  World Physiotherapy Congress, Virtual Event, April 9-11, 2021. 

Le CY, Truong LK, Holt CJ, Filbay SR, Dennett L, Johnson JA, Emery CA, Whittaker JL. The search for the holy grail: a systematic review of health-related quality of life measures for active youth. Canadian Physiotherapy Association Congress2021, Virtual Event, May 14, 2021.

Schick-Makaroff K, Wozniak L, Davison SN, Klarenbach S, Buzinski R, Walsh M, Johnson JA. How the routine use of PROMs for hemodialysis care influences patient-clinician communication: a mixed methods study. 28th Annual Conference of the International Society for Quality of Life Research.  Qual Life Res 2021;30(Suppl 1):3102:S132. https://doi.org/10.1007/s11136-021-02976-1

Al Sayah F, Lahtinen M, Simon R, Higgens B, Ohinmaa A, Johnson JA. The Impact of COVID-19 pandemic on health-related quality of life of adults visiting emergency departments and primary care clinics in Alberta. EuroQol Academy Meeting, March 1, 2021.

Soprovich A. Selecting appropriate patient-reported outcomes (PROMs) for your research. North American Primary Care Research Group (NAPCRG) 49th Annual Meeting. November 19-23, 2021.

Soprovich, AL, & Al Sayah, F. Using patient-reported outcomes (PROs) in your clinical practice. The College of Family Physicians of Canada, Family Medicine Forum. November 4-7, 2020.

Soprovich, AL, Brower, K., & Schmitt-Boshnick, M. Illuminating patient voices: Using patient-reported outcome measures (PROMs) at multiple levels. North American Primary Care Research Group (NAPCRG) 48th Annual Meeting. November 20-24, 2020.

Schick-Makaroff K, Wozniak L, Short H, Davison S, Klarenbach S, Buzinski R, Johnson J. Burden of mental health symptoms and perceptions of their management in hemodialysis care: a mixed methods study. [Poster Presentation] 27th Virtual Annual Conference of the International Society for Quality of Life Research (ISOQOL), October 19-23, 2020.  Qual Life Res 2020;29(Suppl 1):S49.

Al Sayah F, Lahtinen M, Bonsel G, Ohinmaa A, Johnson JA. A multi-level approach for the use of routinely collected patient-reported outcome measures (PROMs) data in health systems. 27th Virtual Annual Conference of the International Society for Quality of Life Research (ISOQOL), October 19-23, 2020. Qual Life Res 2020;29(Suppl 1):S194.

Al Sayah F, Churchill K, Warner L. Using routinely collected patient-reported outcome measures (PROMs) data in evaluating community rehabilitation services in Alberta, Canada. Virtual ISOQOL 27th Annual Conference, Oct 19-23, 2020.

Jin X, McClure NS, Al Sayah F, Ohinmaa A, Johnson JA. Minimally Important Differences for EQ-5D instruments: A Systematic Review of Estimates in Published Literature.  [Poster Presentation]  4th EuroQol Academy Meeting 2020, Prague, Czech Republic, March 3, 2020.

McClure NS, Xie F, Johnson JA. Unpacking small differences in the EQ-5D-5L health utility scores: Are you better, worse or the same?  [Poster Presentation]  4th EuroQol Academy Meeting 2020, Prague, Czech Republic, March 3, 2020.

Wen J, Jin X, Al Sayah F, Short H, Ohinmaa A, Johnson JA. Mapping the Modified Edmonton Symptom Assessment System – Renal onto EQ-5D-5L in patients with chronic kidney disease.  [Poster Presentation] 1st EuroQol Early Career Researchers Meeting 2020, Prague, Czech Republic, March 1, 2020.  

Jin X, Al Sayah F, Ohinmaa A, Johnson JA. Estimating minimally important difference of the EQ-5D-3L and -5L in patients following total hip or knee replacement: An exploratory analysis of a novel approach using the misery index.  [Poster Presentation] 1st EuroQol Early Career Researchers Meeting 2020, Prague, Czech Republic, March 1, 2020.