Conference Presentations

Ali A-B, Haener M, Lines K, Plotnikoff K, Schaaf N, Simon, R, Soprovich A, Villarroel-Ocando H ( PCN Working Group). Advancing patient-reported outcomes through the APERSU Primary Care Networks Working Group: Multiple methods. Alberta College of Family Physician Research Summit. Oral presentation, March 6-9, 2026, Calgary, AB.

Giroux K, Soprovich A. PROM-ing perspectives: Engaging patients to shape outcome measures. Centre for Health Service and Policy Research. Pre-conference workshop, March 11, 2026, Vancouver, BC.

Giroux K, Soprovich A.  Empowering patients through knowledge: Co-developing a Tip Sheet focused on explaining patient-reported outcome measures (PROMs) to patients. Centre for Health Service and Policy Research. Poster presentation, March 12-13, 2026, Vancouver, BC.

Duquette D., Kiryanova K., Soprovich A. PROM-ising perspectives: Transforming care through patient-reported outcomes to advance person-centered health and healing. Covenant Health Engaged and Empowered, April 27-28, 2026, Edmonton, AB.

Yan W, Short H, Johnson JA, Pickard S, Al Sayah F.  Measurement Properties of the EQ-HWB-9 Among Older Adults in Five English-Speaking Countries. 2026 NorthWest SPOR Collaborative Forum, May 12-13, 2026, Edmonton, AB.

Roy, LM, Swampy K, Auger Elder J, Chatwood S, Al Sayah F, Johnson, JA. Content validity of the EQ-5D-5L for Indigenous people: Is it insufficient or inappropriate? Poster presentation. 2026 Northwest SPOR Collaborative Forum, May 12-13, 2026, Edmonton, AB.

Roy, LM, Swampy K, Auger Elder J, Chatwood S, Al Sayah F, Johnson, JA. Appropriateness of health valuation tasks for Indigenous people in Alberta: Does health valuation cross worldviews? Poster Presentation. 2026 Northwest SPOR Collaborative Forum, May 12-13, 2026, Edmonton, AB.

Roy, LM. Insufficient or inappropriate? Validity of the EQ-5D-5L for Indigenous people in Canada: A qualitative study. Oral presentation. 2026 Northwest SPOR Collaborative Forum, May 12-13, 2026, Edmonton, AB.

Brower K, Soprovich A, Short H, Ali A-B, Ul Alam A, Al Sayah F, Ohinmaa A, Johnson J. Comparing primary care program participants with Alberta population norms using EQ-5D-5L. Canadian Evaluation Society 2026, May 25-27, 2026, Edmonton, AB.

Roy, LM. Insufficient or inappropriate? Validity of the EQ-5D-5L for Indigenous people in Canada: A qualitative study. Oral presentation. Canadian Association for Health Services and Policy Research (CAHSPR) Conference 2026, May 25-28, 2026, Ottawa, ON. 

Roy, LM, Swampy K, Auger Elder J, Chatwood S, Al Sayah F, Johnson, JA. Appropriateness of health valuation tasks for Indigenous people in Alberta: Does health valuation cross worldviews? Poster Presentation. Canadian Association for Health Services and Policy Research (CAHSPR) Conference 2026, May 25-28, 2026, Ottawa, ON. 

Simon R, Soprovich A. Advancing patient-reported measures (PROMs and PREMs) through the APERSU Primary Care Networks Working Group: Multiple methods. Nurse Practitioner Association of Alberta Conference, May 29-30, 2026, Canmore, AB.

Brower K, Kiryanova V, Schmitt-Boshnick M, Sidhu S, Soprovich A. Listening to patients in primary care practice: Using Patient-Reported Measures (PROMs and PREMs). Workshop. Primary Care Strategic Forum, May 1-3, 2025, Edmonton, AB.

Ahmed S, Bruce M, Duquette D, Kiryanova V, Seyoum M, Sidhu S, Soprovich A, Wilkinson G. Empowering patients through knowledge: Co-developing a Tip Sheet focused on explaining patient-reported outcome measures (PROMs) to patients. Poster presentation. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Soprovich A and Wilkinson G. A network of patient partners: the story of APERSU’s Patient Engagement Network model. Oral presentation. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Duquette D, Kiryanova V, Sidhu S, Soprovich A. PROM-ising Perspectives: Engaging patients to shape outcome measures. Workshop. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Singh A. Click, share, advocate: A social media toolkit for patient partners in healthcare research. Workshop. AbSPORU Northwest Collaborative Forum, May 12-14, 2025, Calgary, AB.

Itiola AJ, Sajobi TT, Marshal DA, Johnson JA. Evaluating response shift in total knee arthroplasty patients. Paper Discussion. EuroQol Plenary Meeting 2025, Sept 23-25, 2025, Vienna, Austria.

Nguyen T, Ohinmaa A Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPHNIE project in five countries. Poster presentation. EuroQol Plenary Meeting 2025, Sept 23-25, 2025, Vienna, Austria.

Wen J, Itiola AJ, Johnson JA, Janssen MF, Lorgelly PK, Sajobi TT, Al Sayah F. Country-related differential item functioning in the EQ-5D-5L: Insights from the EuroQol Data Assessment of Population Health Needs and Instrument Evaluation (EQ-DAPHNIE). Paper Discussion. EuroQol Plenary Meeting 2025, Sep 23-25, 2025, Vienna, Austria.

Short H, Rencz F, Janssen MF, Johnson JA, Al Sayah F. Comparison of the EQ-5D-5L cognition bolt-on and EQ-HWB cognition dimensions: results from EQ-DAPHNIE data in China and Japan. Paper Discussion. EuroQol Plenary Meeting 2025, Sep 23-25, 2025, Vienna, Austria.

Wen J, Itiola AJ, Johnson JA, Janssen MF, Lorgelly PK, Sajobi TT, Al Sayah F. Country-related differential item functioning in the EQ-5D-5L: Insights from the EuroQol Data Assessment of Population Health Needs and Instrument Evaluation (EQ-DAPHNIE). Poster presentation. Alberta Health Economics Study Group, Oct 3, 2025, Edmonton, Alberta, Canada.

Nguyen T, Ohinmaa A, Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPNIE project in five countries. Poster presentation. Alberta Health Economics Study Group, Oct 3, 2025, Edmonton, Alberta, Canada.

Duquette D. PROMs: Powering patient-centred care. Oral presentation. The Family Medicine Innovation Forum, October 4, 2025, Edmonton, Alberta.

Yan W, Short H, Johnson JA, Pickard S, Al Sayah F.  Measurement Properties of the EQ-HWB-9 Among Older Adults in Five English-Speaking Countries.  The Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting 2025, October 20-21, 2025, Canmore, Alberta.

Itiola AJ, Sajobi TT, Marshal DA, Johnson JA. Evaluating response shift in total knee arthroplasty patients. Poster presentation. The Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Canmore 2025.

Short H, Al Sayah F, Janssen MF, Lubetkin EI, Viney R, Johnson JA. The performance of the EQ-5D-5L, EQ-HWB, and PROMIS-10 in screening for anxiety and depression symptoms in the general adult population in 15 countries. Poster presentation. Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Oct 20-21, 2025, Canmore, Alberta, Canada.

Short H, Rencz F, Janssen MF, Johnson JA, Al Sayah F. Comparison of the EQ-5D-5L cognition bolt-on and EQ-HWB cognition dimensions: results from EQ-DAPHNIE data in China and Japan. Poster presentation. Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Oct 20-21, 2025, Canmore, Alberta, Canada.

Wen J, Itiola AJ, Johnson JA, Janssen MF, Lorgelly PK, Sajobi TT, Al Sayah F. Country-related differential item functioning in the EQ-5D-5L: Insights from the EuroQol Data Assessment of Population Health Needs and Instrument Evaluation (EQ-DAPHNIE). Poster presentation. Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Oct 20-21, 2025, Canmore, Alberta, Canada.

Nguyen T, Ohinmaa A, Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPNIE project in five countries. Poster presentation. Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Oct 20-21, 2025, Canmore, Alberta, Canada.

Saroya J, Singh A, Soprovich A. PROMs: Alberta’s Primary Care Context. Poster presentation. Joint EuroQol North American Regional Meeting and APERSU 10th Anniversary & End-User Meeting, Oct 20-21, 2025, Canmore, Alberta, Canada.

Itiola AJ, Sajobi TT, Marshal DA, Johnson JA. Evaluating response shift in total knee arthroplasty patients. Poster presentation. ISOQOL Conference, Milwaukee, Wisconsin, USA, October 22-25, 2025.

Short H, Al Sayah F, Janssen MF, Lubetkin EI, Viney R, Johnson JA. The performance of the EQ-5D-5L, EQ-HWB, and PROMIS-10 in screening for anxiety and depression symptoms in the general adult population in 15 countries. Oral presentation. ISOQOL Conference, Milwaukee, Wisconsin, USA, October 22-25, 2025.

Short H, Rencz F, Janssen MF, Johnson JA, Al Sayah F. Comparison of the EQ-5D-5L cognition bolt-on and EQ-HWB cognition dimensions: results from EQ-DAPHNIE data in China and Japan. Poster presentation. ISOQOL Conference, Milwaukee, Wisconsin, USA, October 22-25, 2025.

Nguyen T, Ohinmaa A, Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPNIE project in five countries. Oral presentation. ISOQOL Conference, Milwaukee, Wisconsin, USA, October 22-25, 2025.

Al Sayah F, Short H, Ramos-Goñi JM, Viney R, Lubetkin EI, Janssen MF, Johnson JA. Design and Implementation of Data Quality Controls in the EQ-DAPHNIE Study: Insights from the Pilot Phase and 15-Country Analysis. Poster presentation. ISOQOL Conference, Milwaukee, Wisconsin, USA, October 22-25, 2025.

Soprovich, AL. Enhancing healthcare through the integration of patient-reported outcome measures (PROMs). Acute Care Alberta i4 2025. November 5-6, 2025. Online.

Wen J, Itiola AJ, Johnson JA, Janssen MF, Lorgelly PK, Sajobi TT, Al Sayah F. Country-related differential item functioning in the EQ-5D-5L: Insights from the EuroQol Data Assessment of Population Health Needs and Instrument Evaluation (EQ-DAPHNIE). Poster Presentation. ISPOR Europe 2025, November 9-12, 2025, Glasgow, UK.

Nguyen T, Ohinmaa A, Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPNIE project in five countries. Oral presentation.  ISPOR Europe 2025, November 9-12, 2025, Glasgow, UK.

Itiola AJ, Sajobi TT, Marshall DA, Johnson JA. Evaluating response shift in total knee arthroplasty patients. Oral presentation. International Conference on Canadian Outcomes Matter, November 19-21, 2025, Ottawa, Ontario, Canada.

Short H, Al Sayah F, Janssen MF, Lubetkin EI, Viney R, Johnson JA. The performance of the EQ-5D-5L, EQ-HWB, and PROMIS-10 in screening for anxiety and depression symptoms in the general adult population in 15 countries. Oral presentation.  International Conference on Canadian Outcomes Matter, November 19-21, 2025, Ottawa, Ontario, Canada.

Short H, Rencz F, Janssen MF, Johnson JA, Al Sayah F. Comparison of the EQ-5D-5L cognition bolt-on and EQ-HWB cognition dimensions: results from EQ-DAPHNIE data in China and Japan. Poster presentation. International Conference on Canadian Outcomes Matter, November 19-21, 2025, Ottawa, Ontario, Canada.

Ahmed S, Bruce M, Duquette D, Kiryanova V, Seyoum M, Sidhu S, Soprovich A, Wilkinson G. APERSU’s Patient Engagement Network mode: Spreading awareness of PROMs from patients to patients. Oral presentation. International Conference on Canadian Outcomes Matter, November 19-21, 2025, Ottawa, Ontario, Canada.

Nguyen T, Ohinmaa A, Short H, Al Sayah F. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPNIE project in five countries. Oral presentation. International Conference on Canadian Outcomes Matter, November 19-21, 2025, Ottawa, Ontario, Canada.

Roy, LM, Swampy, K, Auger, Elder J., Chatwood, S, Al Sayah, F, Johnson, JA. Feasibility of valuation tasks for Indigenous people: Does health cross worldviews? Poster presentation. This Is Public Health, November 5, 2025, Edmonton, Alberta, Canada.

Roy, LM, Swampy, K, Auger, Elder J., Chatwood, S, Al Sayah, F, Johnson, JA. Content validity of the EQ-5D-5L for Indigenous people: Is it insufficient or inappropriate? Poster presentation. This Is Public Health, November 5, 2025, Edmonton, Alberta, Canada.

Brooks, H. & Soprovich A. Quali-TEA: Managing bots and imposter participants in research. International Institute of Qualitative Methods. Workshop. December 4, 2025.

Al Sayah F. PROMs: How to walk the talk? ICHOM Conference, October 21-22, 2024, Amsterdam, The Netherlands.

Wen J, Yao P, Liang W, Ohinmaa A, Jin X. Parameter uncertainties in mapping algorithms: A case study of mapping PedsQL Generic Core Scales to EQ-5D-Y-3L among children with neurofibromatosis type 1. ISOQOL 2024, Oct 13-16, 2024, Cologne, Germany.

Al Sayah F. EQ-5D evolution into health systems. Oral Presentation. EuroQol Academy Meeting, Copenhagen, March 6-7, 2024. 

Soprovich A. Harnessing data visualization techniques to enhance patient decision-making using a Sankey diagram. Northwest SPOR Collaborative Forum Workshop, May 23 & 24, 2024. Calgary.

Roy LM. Exploring relevance of the EQ-5D-5L with Urban Indigenous People Living in Alberta, Canada. EuroQoL PhD Network invited oral presentation. June 05, 2024.

Al Sayah F, Soprovich A. Enhancing the use of patient-reported outcome measures (PROMs) in Alberta. Physician Learning Program Fishbowl presentation. June 11, 2024. Edmonton.

Roy, LM, Neill, A, Swampy, K, Elder Auger, J, Campbell, SM, Chatwood, S, Al Sayah, F & Johnson, JA. (2023, March 7th). Preference-based measures of health-related quality of life in Indigenous people: A systematic review. EuroQoL Early Career Researcher Meeting, Milan, Italy. 

Wen J, Currie GR, Marshall DA, Ohinmaa A. Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis. 3rd EuroQol Early Career Researchers Meeting, March 7, 2023, Milan, Italy.

Johnson JA, Itiola A, Rahman S, Smith C, Soprovich A, Wozniak LA, Marshall DA. Patient Perspectives on EQ-5D-5L Data Visualization within an Individualized Decision Aid for Total Knee Replacement (TKA) in Alberta, Canada. 40th EQ Plenary 2023. Paper Discussion. Rome, Italy. September 20-21, 2023.

Al Sayah F., Short H., Ohinmaa A. & Johnson JA. Shaping the path forward: Stakeholder’s perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems – insights from Alberta, Canada. 40th EQ Plenary 2023. Paper Discussion. Rome, Italy. September 20-21, 2023.

Soprovich AL, Affleck E, Pathak S, McBrien K. What’s the value? Integrating multiple sources of data to provide quality care to patients. Northwest SPOR Collaborative Forum 2023. Panel Presentation. October 3-4, 2023.

Marshall DA, Wen J, Currie GR, Benseler SM, Swart JF, Vastert SJ, Yeung RSM, Ohinmaa A. Responsiveness of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis. Oral Presentation. International Society for Quality of Life Research (ISOQOL) 30th Annual Conference, Calgary, AB, October 18-21, 2023.

Al Sayah F, Short H, Ohinmaa A, Johnson JA. Shaping the path forward: Stakeholder’s perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems – Insights from Alberta, Canada. Oral Presentation. International Society for Quality of Life Research (ISOQOL) 30th Annual Conference,Calgary, AB, October 18-21, 2023. Qual Life Res, 2023;32(Suppl 2):S49.

Soprovich AL, Short H, Al-Bakir A, Brower K, Johnson JA, Ohinmaa A. Using patient-reported
outcomes in clinical program evaluation: Two program examples measuring health-related quality of life in primary care. Oral Presentation. North American Primary Care Research Network (NAPCRG), San Francisco, USA. October 31-November 4, 2023.

Soprovich A. Selecting patient-reported outcome measures (PROMs). Family Medicine Forum 2022. Toronto, Ontario. November 8-12, 2022.

Soprovich A. Selecting appropriate patient-reported outcomes (PROMs) for your research. North American Primary Care Research Group (NAPCRG) 50th Annual Conference. Phoenix, Arizona. November 18-22, 2022.

Soprovich A. Overcoming common challenges to using patient-reported outcome measures (PROMs) in primary care. North American Primary Care Research Group (NAPCRG) 50th Annual Conference. Phoenix, Arizona. November 18-22, 2022.

Schick-Makaroff K, Wozniak L, Short H, Davison SN, Klarenbach S, Buzinski R, Walsh M, Johnson JA. How the routine use of PROMs for hemodialysis care influences patient-clinician communication: a mixed methods study. 54th Canadian Society of Nephrology (CSN) Virtual Annual General Meeting, May 12-14, 2022.

Wen J, Al Sayah F, Simon R, Lahtinen M, Johnson JA, Ohinmaa A. A longitudinal analysis on health-related quality of life during the COVID-19 pandemic in Alberta, Canada. 2nd EuroQol Early Career Researchers Meeting, Apr 20, 2022.

Le CY, Troung LK, Holt CJ, Filbay SR, Dennett L, Johnson JA, Emery CA, Whittaker JL. Measuring Health-Related Quality of Like in Active Youth: A Systematic Review.  World Physiotherapy Congress, Virtual Event, April 9-11, 2021. 

Le CY, Truong LK, Holt CJ, Filbay SR, Dennett L, Johnson JA, Emery CA, Whittaker JL. The search for the holy grail: a systematic review of health-related quality of life measures for active youth. Canadian Physiotherapy Association Congress2021, Virtual Event, May 14, 2021.

Schick-Makaroff K, Wozniak L, Davison SN, Klarenbach S, Buzinski R, Walsh M, Johnson JA. How the routine use of PROMs for hemodialysis care influences patient-clinician communication: a mixed methods study. 28th Annual Conference of the International Society for Quality of Life Research.  Qual Life Res 2021;30(Suppl 1):3102:S132. https://doi.org/10.1007/s11136-021-02976-1

Al Sayah F, Lahtinen M, Simon R, Higgens B, Ohinmaa A, Johnson JA. The Impact of COVID-19 pandemic on health-related quality of life of adults visiting emergency departments and primary care clinics in Alberta. EuroQol Academy Meeting, March 1, 2021.

Soprovich A. Selecting appropriate patient-reported outcomes (PROMs) for your research. North American Primary Care Research Group (NAPCRG) 49th Annual Meeting. November 19-23, 2021.

Soprovich, AL, & Al Sayah, F. Using patient-reported outcomes (PROs) in your clinical practice. The College of Family Physicians of Canada, Family Medicine Forum. November 4-7, 2020.

Soprovich, AL, Brower, K., & Schmitt-Boshnick, M. Illuminating patient voices: Using patient-reported outcome measures (PROMs) at multiple levels. North American Primary Care Research Group (NAPCRG) 48th Annual Meeting. November 20-24, 2020.

Schick-Makaroff K, Wozniak L, Short H, Davison S, Klarenbach S, Buzinski R, Johnson J. Burden of mental health symptoms and perceptions of their management in hemodialysis care: a mixed methods study. [Poster Presentation] 27th Virtual Annual Conference of the International Society for Quality of Life Research (ISOQOL), October 19-23, 2020.  Qual Life Res 2020;29(Suppl 1):S49.

Al Sayah F, Lahtinen M, Bonsel G, Ohinmaa A, Johnson JA. A multi-level approach for the use of routinely collected patient-reported outcome measures (PROMs) data in health systems. 27th Virtual Annual Conference of the International Society for Quality of Life Research (ISOQOL), October 19-23, 2020. Qual Life Res 2020;29(Suppl 1):S194.

Al Sayah F, Churchill K, Warner L. Using routinely collected patient-reported outcome measures (PROMs) data in evaluating community rehabilitation services in Alberta, Canada. Virtual ISOQOL 27th Annual Conference, Oct 19-23, 2020.

Jin X, McClure NS, Al Sayah F, Ohinmaa A, Johnson JA. Minimally Important Differences for EQ-5D instruments: A Systematic Review of Estimates in Published Literature.  [Poster Presentation]  4th EuroQol Academy Meeting 2020, Prague, Czech Republic, March 3, 2020.

McClure NS, Xie F, Johnson JA. Unpacking small differences in the EQ-5D-5L health utility scores: Are you better, worse or the same?  [Poster Presentation]  4th EuroQol Academy Meeting 2020, Prague, Czech Republic, March 3, 2020.

Wen J, Jin X, Al Sayah F, Short H, Ohinmaa A, Johnson JA. Mapping the Modified Edmonton Symptom Assessment System – Renal onto EQ-5D-5L in patients with chronic kidney disease.  [Poster Presentation] 1st EuroQol Early Career Researchers Meeting 2020, Prague, Czech Republic, March 1, 2020.  

Jin X, Al Sayah F, Ohinmaa A, Johnson JA. Estimating minimally important difference of the EQ-5D-3L and -5L in patients following total hip or knee replacement: An exploratory analysis of a novel approach using the misery index.  [Poster Presentation] 1st EuroQol Early Career Researchers Meeting 2020, Prague, Czech Republic, March 1, 2020.