Our questions
We are interested in how people shape their previvorship by navigating information about cancer genetic risk while they carry on with their everyday life.
We aim to investigate how social media uses are embedded in personal decision making about previvorship and in the encounter of lay and expert understandings of cancer genetic risk. We are tackling three specific questions:
How do social media privacy settings – and users’ understandings of them - shape what personal narratives of previvorship are shared on different platforms - and different ‘spaces’ on each platform (e.g., public hashtag stream, Facebook public page)? What, if any, impact does this have on those accessing these narratives?
How do social media moderation policies, and users' understandings of them, shape the information and narratives related to genetic risk management presented on social media?
How does the hidden work of algorithmic recommendation systems influence interactions within communities centred on inherited genetic conditions? What users and content become ‘credentialed’ – that is, relevant for recommendation - in a context where relevance is defined by engagement metrics?
