ODP Terms and Conditions of Use

Content last updated: 14 May 2024. Changes made to address change of legal body from CRNCC to RDNCC under new contract from 1 April 2024.  Change of presentation on site to show all content on one page but also leave distinct site links to separate pages.

Introduction

In agreeing to these Terms and Conditions of Use, you are undertaking to ensure the protection and security of all data accessed by you in ODP​ ​and to process all such data in accordance with the following conditions. 

The NIHR RDNCC reserves the right to change these Terms and Conditions of Use at any time. The date of issue of this version can be found at the top of this page.

Acceptable Use: What you are agreeing to do

Data within this service is owned by Department of Health and Social Care. Department of Health and Social Care is the Data Controller. Data can only be copied, downloaded or shared with 3rd parties with written permission and in line with these Terms and Conditions of Use. Specific queries can be made through the information contact listed below.  

Data contained within the Open Data Platform (ODP) is UNPUBLISHED and can be used for internal management information only, to support day operations and decision making. 

Users of this service will respect the privacy of personal data as described in the ODP Privacy Notice​.  

You are expected to adhere to standard information security good practice, for example: 

• not sharing accounts

• choosing secure passwords

• only accessing confidential information when you cannot be overlooked

• not sharing data with people who are not authorised to see it

This list is not exhaustive. 

You are expected to: 

• Retain data only for as long as it is necessary and securely destroy it when no longer required

• Only present data if you have a clear understanding of its limitations and ensure that the audience is aware of the source of the data

• Adhere to any relevant data sharing agreements

• Maintain the integrity of the data that you download from ODP.  If data is fundamentally amended or changed in any way, ODP must no longer be referenced as the source in wider materials

• Only use data in relation to research related activities.  These are defined as activities along the research delivery pathway conducted in relation to, but not limited to, the research idea; study development; study planning, monitoring and performance managing; study set-up and start-up; study recruitment and follow-up; and/or study closure

• Not download and/or archive any data from ODP and not share the information with anyone who do not have access to the system in their own right

• Respect the data that you are using in line with the ​ODP Privacy Notice

• Adhere to any prevailing legislation

• Seek permission from the RDNCC (ODP@nihr.ac.uk) if you wish to re-use any data from ODP for any other purpose i.e. referencing ODP data in materials to be published and/or be made publically available.  It is the decision of the RDN CC as to whether to allow such re-use

• Use the data to; analyse and/or identify current and/or historical trends / make assumptions regarding future trends; use it in metrics, indicators and management dashboards/reports; use it to inform decisions and arising actions; bring it to the attention of other managers where access has also been granted

Service Availability: What RDNCC provide

The NIHR RDNCC endeavours to ensure that all information on this system is accurate and available in a timely manner. If you find inaccurate information please let us know by using the contact details below or provided through the system. We endeavour to provide high levels of service availability. However availability at any point, particularly out of support hours, is not guaranteed. Support is limited to core service hours (weekdays hours). 

Breaches of these Terms of Use: Who to contact 

If you become aware of any breaches in use of this service and the data involved, then you should report it to rdncc.ig@nihr.ac.uk. 

 Access to accounts may be suspended without notice. 

Intellectual Property: Who owns the information

The intellectual property of this service and all materials relating to it belong to Department of Health and Social Care. 

Some information is sourced externally (please see individual apps for detailed listings) for instance: 

• Prevalence and incidence data is sourced from NHS England Digital and Public Health England, licenced under the current version of the Open Government Licence

• Population data (ONS) and Boundary information is sourced under the terms of the Open Government Licence and UK Government Licensing Framework and contains National Statistics data

Further Information and Contacts

Further sources of information are:

• ODP Privacy Notice​ for this service, which includes within it contact details for GDPR related information requests

• Email address for reporting security breaches: ​rdncc.ig@nihr.ac.uk

• For queries about these terms and conditions please contact InfoRequest@nihr.ac.uk