Digital PRES (Policies)

Overview

Digital PRES (Participant Research Experience Survey) is a survey that enables people who have participated in a Research study to give their feedback centrally. 

It enables the RDN to evaluate the research experience centrally. 

• Access to real-time participant feedback via local and national dashboards. 

• Access to data to improve the understanding of study participants for purposes of inclusiveness and to identify any site-specific issues with the recruitment of specific groups. 

• It is a true ‘one network solution’ meaning consistency of service and removes the need for multiple local solutions and technologies to manage PRES 

• It is scalable and the onboarding process for new users is remote and self-initiated

• It offers reduced costs and environmental impact by removing the need for high-cost/high-volume paper processing.

• It meets the IG needs and is currently running across multiple delivery organisations and geographical/regional boundaries 

• It offers additional accessibility and translation options to meet the needs of under-served populations

Key Policies 

• Use of PRES is governed by its Terms and conditions (link to follow) which apply to all people who use it.

• Digital PRES SAC

• Digital PRES SLSP

• The app and data is hosted on Google Firebase servers in the UK 

• How an individual's data is used is governed by a Privacy Notice 

• How Digital PRES meets accessibility requirements is detailed on the Accessibility Status (link to follow)

• How Digital PRES  uses cookies is detailed in the Cookie Policy (Link to follow)

Access 

Each region will have a designated user that will be able to access their own Home Page and have access to the Google Sheets document.  (Steve Errington in NENC will grant them access once we identify the users in each region). 

CC (Steve and Developing team) will pre approve nhs.net or NIHR.ac.uk email address’. 

To create an account  a user needs to be connected to nhs.net or hospital email/NIHR/University.

Data governance

The Data Controller for Digital Pres is the Department of Health and Social Care. This system is managed by NIHR RDNCC on behalf of the Data Controller.

The responsible manager within NIHR RDNCC for Digital Pres is the RRDN Study Participation Inclusion community, Data and Analytics team 

Security

RDNCC have a current ISO27001: 2022 certification and Cyber Essentials; the provision of Digital Pres falls within the scope of these. 

RDNCC review that the above controls are current and effective on at least an annual basis. This includes verification with DHSC as Data Controller.