1. INVOLVE Conference
Thank you to everyone who came to the Standards drop-in session at the INVOLVE conference on 28 November. We really enjoyed being able to meet and hear from so many people in person.
We have now collated the conference materials, which can be downloaded from below:
PI Standards - Public Consultation Summary Report
PI Standards - INVOLVE Conference Slides set (including the revised versions of the standards)
2. Piloting the standards in 2018
In mid January we will be putting out a call for expressions of interest to be one of a maximum of 10 pilot sites during 2018/19. At the same time we want to encourage as many other groups and organisations to carry out their own form of testing out the standards in 2018/19. More information about piloting will follow in January.
We would like to take this opportunity to thank you for your continued interest and support and wish you a wonderful holiday period and a Happy New Year.
A big thank you to all the people, groups and organisations that took part in the consultation. 670 responses in total with 57% of responses coming from members of the public.
We have reviewed a draft report summarising feedback (numbers and free text) from the consultation. The final report will be made publicly available in early 2018.
We will incorporate the main themes of the feedback into the next version of the standards and indicators. Keys actions include:
By the INVOLVE conference (28 November), producing a revised version of the Standards (but not indicators).
In December, we will put out a call for expressions of interest to get involved as pilot sites for the Standards in 2018.
During December, we will revise all of the indicators for each standard.
All members of the Standards Partnership will be at the INVOLVE conference to discuss the next version of the standards, piloting and implementation of the standards.
We reflected on the response rate to the consultation and agreed a variety of actions to encourage and increase participation. Particularly amongst communities who as yet, had not responded in the numbers expected
An easy read version of the draft PI Standards has been produced. Not producing this at the start of the consultation was an error on our part for which we apologise. So as not to disadvantage any group or individual who has had to wait to be able to respond via this route, there is an extension to the consultation deadline - Friday 6th October - for responses by this route only.
We will be hosting a Tweetchat on Thursday 31st August @ 4pm (TBC) to have a conversation about next steps and to encourage any last minute responders.
We advanced our plans for the lunchtime drop in session that we will be holding at the INVOLVE Conference in November. A great opportunity for us to meet conference delegates, gather more views and feedback and talk about next steps.
The latest draft standards and indicators were reviewed by the Standards Partnership. We discussed and agreed further changes in readiness for seeking views from others.
The draft standards will go out for review and comment from mid June to mid August 2017. We will invite responses from a wide range of individuals, groups and organisations and encourage others to cascade information about the consultation through their own networks and communities. We will provide a resource pack for running meetings to gather feedback from groups.
We are working on the consultation process with the NIHR Research Design Service. This includes absorbing lessons learned from the ‘Going the Extra Mile’ consultation and shared with us by Rachel Matthews (NW London CLAHRC) who led that consultation.
We reviewed and agreed a core budget for funding to support further work in 2017/18. Costs will be shared amongst members of the Partnership.
The Partnership is pleased to welcome and to be working with the involvement of Northern Ireland and Scotland, our ‘pathfinders’.
Following feedback from a national meeting of NIHR PI Leads, the Partnership has agreed to delay plans for consultation on one or two of the draft standards as all the standards and indicators need to be drafted and consulted at the same time.
The Partnership will now work to develop indicators for each PPI standard and plans to go out to consultation with these and at least one full example of a standard with its indicators and guidance on implementation.
In February/March 2017, the Partnership will launch this website to provide a source of up to date information about the project and to encourage potential users of the standards to get involved in the project.
The Partnership will create a sharing online space (probably a website) for updates on progress of developing PI standards. This will include information about timelines of activity and consultation, partnership meeting minutes, signposting to resources being used for the project and an expression of interest function.
The Partnership has agreed a draft set of 6 core PI standards; these will comprise a headline word or two, a one sentence summary, and the rationale behind each standard and why it is important.
The Partnership will expand these 6 core PI standards and 'sense check' that they work with the everyday business of PI in research from research organisation, research project and individual (involved public and researcher) perspectives.
Once there is a set of 6 core PI standards that the Partnership are confident about then we will consult on these widely for comment and feedback. It is likely that this will be in February 2017
The Partnership will take every opportunity to 'test out' our ideas with groups of PI professionals and involved public in Wales and England where there are meetings scheduled before the end of 2016. This will probably take the form of workshop and discussion based activity.
The National Institute of Health Research (NIHR) and Health and Care Research Wales have agreed to jointly develop a set of public involvement (PI) standards, which builds on work already undertaken on values and principles for public involvement. This work will be delivered by a PI Standards Development Partnership, with representatives from INVOLVE, NIHR Central Commissioning Facility, Health and Care Research Wales and members of the public.
Any PI standards will need to be useful and applicable.
The standards will build on existing examples, experience and good practice from Scotland and Northern Ireland (our ‘pathfinders’).
A draft set of standards will be developed and shared with stakeholders and wider community for consideration by early 2017.
This wider dialogue will enable the NIHR and Health and Care Research Wales communities, members of the public and other interested organisations/individuals to provide feedback on and rank/prioritise the most helpful/useful standards for NIHR and Health and Care Research Wales.
As a priority, we will build on the existing groups who have informed these discussions and develop a PI Standards Community, open to anyone who wants to get involved. Community members will have access to the materials that have, and are, being developed alongside the opportunity to provide feedback and take part in any discussion events.