Definitions

Public: In these standards we refer to the ‘public ’ throughout. When we talk about the public this also includes; patients, service users, survivors, carers and family members. 

Public involvement in research: Research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Also referred to as Patient and Public Involvement (PPI) or Consumer Involvement.

Public involvement standard: a statement of good practice that describes one of six core elements in public involvement in research.

Questions: Each standard is accompanied by some reflective questions to help you decide if you meet the standard. These are not comprehensive and you and your organisation may be working towards, meeting or exceeding a standard in a way that is relevant to your own setting.