Standard 1: Inclusive Opportunities
We offer public involvement opportunities that are accessible and that reach people and groups according to research needs.
We want research to be informed by a diversity of public experience and insight so that it leads to treatments and services which reflect our needs.
Standard 1: Indicators
A public involvement indicator is a statement of good practice that describes what is needed to demonstrate meeting the standard. Examples are different ways that demonstrate how you could meet the standard in different settings and contexts. These are not comprehensive and you and your organisation will be working towards, meeting or exceeding an indicator in a way that is relevant to your own setting.
1.1 We involve people affected by and interested in the research at the earliest stage
Examples of how 1.1 could be met:
- organisations encourage research teams to involve the public in the exploration of new research and/or research prioritisation processes
- research teams involve a range of public with experience of a health condition in reviewing and developing outcomes (and measurements) for clinical trials in that health condition
- an involved member of the public who has a visual impairment can expect to take part in writing research plans.
1.2 We identify and address barriers to taking up public involvement in research
Examples of how 1.2 could be met:
- organisations have an efficient payment process for out of pocket expenses and this process is reviewed regularly
- project teams involve the public in deciding the location, timing and frequency of meetings
- involved members of the public have the option to request ‘book ahead’ transport so that they don’t bear the cost up front.
1.3 We make information about opportunities for public involvement in research available, using different methods so that we reach relevant and interested people
Examples of how 1.3 could be met:
- an organisation has an up to date database of potential public members and communities that they can approach with opportunities for involvement
- a clinical trial team recruits young people by social media to join the research planning group
- a member of the public wants to get involved in research and is able to find and read plain language summaries of the ongoing, and planned research opportunities available.
1.4 We have fair and transparent processes for involving the public in research
Examples of how 1.4 could be met:
- organisations advertise their public involvement opportunities widely for example; website, NHS, local papers
- a research project team advertises for new people to get involved, rather than approaching the same people each time
- a member of the public expresses interest in an involvement opportunity. A short description of what they can expect is part of the information pack they receive.
1.5 We offer choice and flexibility in opportunities for public involvement in research
Examples of how 1.5 could be met:
- organisations make clearly available all the different ways that people can get involved in different types of research
- within research project teams information about everyone’s different interests and aptitudes is shared and used to negotiate tasks and activity
- involved members of the public take part in regular review meetings with research partners to discuss their experiences, preferences and progress.