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Informatics is the study of the collection, integration, and application of information. The field grew out of the medical profession, with an emphasis on integrating data contained in medical records. Biobehavioral informatics broadens this field to incorporate developmental and behavioral information. My particular interest is in creating protocols for linking public health information systems in ways that increase the flexibility of the information contained within them, as well as strategies for doing so in a manner that maximizes security and privacy.
My informatics work also involves partnering with the Early Hearing Detection and Intervention (EHDI) Program at the Centers for Disease Control and Prevention in Atlanta (CDC-EHDI). Their website provide valuable information regarding newborn hearing loss and other developmental disabilities, as well as service and research activities being conducted by the CDC in these areas. A focus of our work involves helping states and territories develop data systems that can improve public health surveillance, improve the timeliness of diagnosis and early intervention services, and reduce loss-to-follow-up for infants identified as at-risk for hearing loss. These goals are reflected in what is referred to as the EHDI 1:3:6 Plan for newborn hearing screening, which includes the goals that...
All newborns should be screened by 1 month of age
Newborns who do not pass their hearing screen should receive a diagnostic evaluation by 3 months of age
Infants identified as having hearing loss should receive early intervention services by 6 months of age
Representative Work
Representative Work
Deng, X., Ema, S., Mason, C.A., Nash, A., Gaffney, M. (2020). Receipt and timeliness of newborn hearing screening and diagnostic services among babies born in 2017 in nine states. Journal of Public Health Management and Practice. doi: 10.1097/PHH.0000000000001232.
Subbiah, K., Mason, C.A., Gaffney, M. and Grosse, S.D. (2018). Progress in documented early identification and intervention for deaf and hard of hearing infants – Assessment of CDC’s Hearing Screening and Follow-up Survey (United States, 2006-2015). Journal of Early Hearing Detection and Intervention, 3(2), 1-7.
Grosse, S.D., Riehle-Colarusso, T., Gaffney, M., Mason, C.A., Shapira, S.K., Sontag, M.K., Van Naarden Braun, K., and Iskander, J. (2017). CDC Grand Rounds: Newborn Screening for Hearing Loss and Critical Congenital Heart Disease. MMWR - Morbidity and Mortality Weekly Report, 66(3), 888-890.
Chung, W., Beauchaine, K., Hoffman, J., Coverstone, K., Oyler, A., and Mason, C.A. (2017). Early Hearing Detection and Intervention- Pediatric Audiology Links to Services: Building a national facility database. Ear and Hearing, 38(4), e227-e231. DOI: doi.org/10.1097/aud.0000000000000426.
Chung, W., Beauchaine, K., Hoffman, J., Oyler, A., Coverstone, K., and Mason, C.A. (2017). Reporting newborn audiologic results to state EHDI programs. Ear and Hearing, 38(5), 638-642. DOI: doi.org/10.1097/aud.0000000000000443
Alam, S., Satterfield, Mason, C.A., and Deng, X. (2016). Progress in the standardization of the reporting and analysis of data from Early Hearing Detection and Intervention (EHDI) programs. Journal of Early Hearing Detection and Intervention, 1(2), 1-6.
Mason, C.A., Tu, S., and Song, Q. (2014). Linking Maine Department of Education and Maine Department of Health and Human Services Early Childhood Data. Orono, Maine:University of Maine, Center for Research and Evaluation/Maine Education Policy Research Institute. [Technical report for Maine State Legislature]
Mason, C.A., and Tu, S. (2008). Data linkage using probabilistic decision rules: A primer. Birth Defects Research, Part A: Clinical and Molecular Teratology, 82, 812-821. DOI: doi.org/10.1002/bdra.20510; PMID: 18988225.
Tu, S., Mason, C. A., & Song, Q. (2006). Second-order linkage and family datasets. In L. M. Glidden (Series Ed.), R. C. Urbano & R. M. Hodapp (Vol. Eds.), International Review of Research in Mental Retardation: Vol. 33. Developmental Epidemiology of Mental Retardation and Developmental Disabilities (pp. 53-78). San Diego, CA: Elsevier. DOI: doi.org/10.1016/s0074-7750(06)33003-0.
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