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The Early Hearing Detection and Intervention (EHDI) Program at the Centers for Disease Control and Prevention (CDC), in collaboration with the Marion Downs Hearing Center, convened a workshop entitled “Accountability and EHDI Systems: Achieving Successful Outcomes: Strategies for Overcoming Obstacles” on July 9, 2008, in Breckenridge, Colorado. More than 50 national experts representing the areas of clinical practice (e.g., audiology, speech-language pathology, primary care, pediatrics, and early intervention), parent and national organizations, and state and federal agencies attended the workshop. The goal was to identify strategies for reporting and exchanging information related to hearing loss among children, including data related to amplification, communication, behavioral and social development, and intervention outcomes.
The workshop began with plenary presentations addressing relevant topics, including measuring outcomes among children with hearing loss; factors that affect follow-up; audiologist, Part C, medical home, and parent perspectives on data collection and management regarding children with hearing loss; accountability and EHDI systems; and the effect of federal privacy regulations on EHDI programs. Discussions among four breakout groups addressed data elements for amplification, strategies for sharing data, strategies and data elements regarding assessment tools for children with hearing loss, and confidentiality and data sharing as it relates to the medical home of individual families.
Objectives for the workshop were to identify major issues and barriers to collecting outcome data, develop short- and long-term strategies for the reporting and exchange of information related to hearing loss among children, and identify relevant data items where applicable.
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