Research in Pediatric Nephrology

CKiD U25 GFR estimation

Derived using data from the Chronic Kidney Disease in Children Study (CKiD), the CKiD U25 GFR estimating equations (Pierce, et al. 2021) are latest and greatest iterations of estimating GFR in patients with CKID using serum creatinine and/or cystatin C.

• CKiD U25 GFR calculator

  • Citation information can be found in the "info" tab.

• A downloadable spreadsheet is also available to help researchers calculate GFR on large data sets.

  • Citation information can be found in the spreadsheet documentation.

  • Download: Excel | Google Drive

Researcher Academy

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ASN List of Fellow-Friendly Journals

A curated list of nephrology journals that are indexed in PubMed, publish case reports, and may or may not have fellow-specific sections.

Chronic Kidney Disease in Children (CKiD)

• The Chronic Kidney Disease in Children Study is a multicenter, observational, prospective cohort of children, adolescents and young adults with a history of mild to moderately impaired kidney function.

Improving Renal Outcomes Collaborative (IROC)

• The Improving Renal Outcomes Collaborative (IROC) is a network-based learning health system of patients and caregivers, clinicians, and researchers from the most advanced pediatric institutions in the country. We work together to solve difficult problems for children with kidney disease by sharing best practices and data about medical care and health outcomes, and applying quality improvement methods to improve health outcomes.

North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS)

• NAPRTCS is the definitive source of information for serious kidney disease in children. NAPRTCS Registries include information from over 20,000 children with kidney transplants, on dialysis, or with chronic kidney disease from over 100 participating institutions in the United States, Canada, Mexico and Costa Rica. NAPRTCS has initiated eight NIH-funded prospective clinical trials resulting in over $20,000,000 of funding. NAPRTCS has also worked with major pharmaceutical companies to develop multi-center clinical trials.

• NAPRTCS is the only registry to collect information on children at all stages of chronic kidney disease. As such, NAPRTCS is able to follow children as their chronic kidney disease progresses to end-stage kidney disease and continues to monitor their care after dialysis is initiated and/or a kidney transplant is performed. NAPRTCS’ clinical trials have enrolled more than 2000 children from over 90 participating centers.

Pediatric Nephrology Research Consortium (PNRC)

• The PNRC is an organization that continues the same mission of the Midwest Pediatric Nephrology Consortium (MWPNC), which is to improve the care of pediatric patients with kidney disease and hypertension and facilitate collaborative research in the field of pediatric nephrology. The PNRC facilitates multi-center retrospective and prospective research that cannot be adequately addressed at a single center. The PNRC helps train the next generation of pediatric nephrology investigators by encouraging the development and research efforts of both fellow and junior faculty.

PEDSnet

• PEDSnet is a large, national community of patients, families, clinicians, scientists, and healthcare system leaders who work together in a distributed learning health system (LHS) that is dedicated to discovering and implementing new ways of providing the best care and ensuring the best outcomes most efficiently. PEDSnet’s goal is to conduct research as inexpensively and quickly as possible, while engaging all stakeholders in the research process along the way.

Standardizing Care to Improve Outcomes in Pediatric Endstage Kidney Disease (SCOPE) Collaborative

• The Standardizing Care to Improve Outcomes in Pediatric Endstage Kidney Disease (SCOPE) collaborative prevents infections in children and adolescents on peritoneal dialysis and hemodialysis using large-scale collaboration to identify and spread effective interventions across pediatric care settings.

• Organizations participating in SCOPE help families provide essential and complex care in the home for children with kidney disease. The evidence shows that patients at SCOPE centers: have reduced risk of infections, have fewer hospitalizations, maintain health for transplant, and maintain normal school and family life.