Muscular Dystrophy
Muscular Dystrophy
There is not an IDEA definition, but muscular dystrophy is a group of diseases that cause progressive weakness and loss of muscle mass. Abnormal genes interfere with the production of proteins needed to form healthy muscle.
3 Types of Muscular Dystrophy
INCLUSIVE EDUCATION/ PHYSICAL EDUCATION CONSIDERATIONS
Walks with waddling gait and lordosis.
Walks with waddling gait, lordosis, and needs assistance stepping up.
Walks with waddling gait, lordosis, and cannot step up but can rise from a chair.
Walks with severe waddling gait, lordosis, and cannot rise from seated position but keeps functional movement.
Uses a wheelchair but independently preforms daily tasks.
Uses a wheelchair but needs assistance .
Uses a wheelchair for a short period of time.
Bed ridden and needs assistance.
When designing activities for student ensure they are activities that assist with maintaining functional movement. For example, picking things up off the ground, holding their body weight, getting out up from the ground/chair independently. (Check Fitness Training Link Below)
Muscular dystrophy is a degenerative disability that affects all the muscles so as an combative counter to that, increasing the students strength as much as one can is important to prolong their decay of motor function. (Check Exercise Advice Link Below)
All programming should be designed and geared toward the students abilities. (Check Caring Muscles Link Below)
As the student progresses through the stages, adjust the intensity levels accordingly.
May experience symptoms such as headaches, mental lapses, difficulty concentrating, or staying awake during the day due to respiratory difficulties. These may affect his demeanor in class.
Allowing for breaks and the use of break boards alongside can better aide this. (Check Break Board Link Below)
Working with one students paraprofessional or pairing the student with a peer-mentor to work with the student throughout the activities to allow for my individuality. (Check Cultivating Leadership Link Below)
Consider using sensory aids such as noise-canceling headphones, sunglasses, or fidget toys to help regulate sensory input and reduce stimulation when needed. (Check Sensory Supplies Link Below)
As the student weakens, he naturally will find it difficult to exert themself, which can lead to tightening of muscles and shortening of tendons, resulting ultimately in further loss of mobility.
Mainly, most stretching will be done with a PT, but incorporating a warm-up routine for the individual student with emphasis on stretching may assist with prevention of mobility loss. Focus stretching on the areas the student will need it, but also where they have the ability to. (Check Yoga Link Below)
If the student is younger or doesn't know how to properly advocate for themselves, setting timers for activities can better help prevent exerting themselves. (Check Time Tracker Link Below)
Links & Supports