Our Aims & Objectives
With funding from Cure Parkinson’s, the UK Parkinson’s Disease Clinical Studies Group (UK PD-CSG) launched in April 2022. The UK PD-CSG’s goal is to further develop and support Parkinson’s Clinical Research across the UK and to ensure more people with Parkinson's will have the opportunity to participate in clinical trials.
With funding from Cure Parkinson’s, the UK Parkinson’s Disease Clinical Studies Group (UK PD-CSG) launched in April 2022. The UK PD-CSG’s goal is to further develop and support Parkinson’s Clinical Research across the UK and to ensure more people with Parkinson's will have the opportunity to participate in clinical trials.
The group has 90+ members, including neurologists, geriatricians, PD specialist nurses and Allied Health Professionals, stakeholder representatives (Cure Parkinson's, Parkinson's UK, BGS Movement Disorders SIG, ABN Movement Disorders SIG, PD Nursing Specialist Association) and people with Parkinson's, all with a particular interest and expertise in PD, MSA and PSP clinical research. The group is operated by chair Professor Oliver Bandmann, Coordinator Emma Fargher and co-deputy chairs Professor Camille Carroll and Professor Tom Foltynie.
The group has 90+ members, including neurologists, geriatricians, PD specialist nurses and Allied Health Professionals, stakeholder representatives (Cure Parkinson's, Parkinson's UK, BGS Movement Disorders SIG, ABN Movement Disorders SIG, PD Nursing Specialist Association) and people with Parkinson's, all with a particular interest and expertise in PD, MSA and PSP clinical research. The group is operated by chair Professor Oliver Bandmann, Coordinator Emma Fargher and co-deputy chairs Professor Camille Carroll and Professor Tom Foltynie.
The UK PD-CSG regular, virtual meetings provide a forum to disseminate research information, opportunities, and resources to enhance the information flow throughout research studies by establishing effective communication streams. The meetings facilitate meaningful discussion and collaboration between researchers, people with Parkinson’s and research organisations.
The UK PD-CSG regular, virtual meetings provide a forum to disseminate research information, opportunities, and resources to enhance the information flow throughout research studies by establishing effective communication streams. The meetings facilitate meaningful discussion and collaboration between researchers, people with Parkinson’s and research organisations.
A key strength of the UK PD-CSG is the geographical spread of the members, with each of the 18 NIHR Clinical Research Network Regions represented by at least one member. In addition to experienced researchers, the group also supports individuals who are new to research to grow the number of research active sites across the UK.
A key strength of the UK PD-CSG is the geographical spread of the members, with each of the 18 NIHR Clinical Research Network Regions represented by at least one member. In addition to experienced researchers, the group also supports individuals who are new to research to grow the number of research active sites across the UK.
The UK PD-CSG continues to grow and engage with those interested in PD, MSA and PSP clinical research. To enable the sustained growth of the clinical trial scene, the UK PD-CSG plays an integral, strategic role in ensuring the UK maintains and develops a trial-ready workforce and infrastructure to successfully deliver clinical research and provide more people with Parkinson’s the opportunity to take part in research.
The UK PD-CSG continues to grow and engage with those interested in PD, MSA and PSP clinical research. To enable the sustained growth of the clinical trial scene, the UK PD-CSG plays an integral, strategic role in ensuring the UK maintains and develops a trial-ready workforce and infrastructure to successfully deliver clinical research and provide more people with Parkinson’s the opportunity to take part in research.
The UK PD-CSG is working hard to achieve the following key objectives:
The UK PD-CSG is working hard to achieve the following key objectives:
1) Improve access for professionals & people with Parkinson's to study information.
1) Improve access for professionals & people with Parkinson's to study information.
2) Develop improved research infrastructure by supporting research sites.
2) Develop improved research infrastructure by supporting research sites.
3) Support researchers who are new to research to increase the research active workforce.
3) Support researchers who are new to research to increase the research active workforce.
4) Raise awareness of training opportunities for researchers.
4) Raise awareness of training opportunities for researchers.
5 ) Improve opportunities for people with Parkinson's to participate in clinical trials across the UK.
5 ) Improve opportunities for people with Parkinson's to participate in clinical trials across the UK.
6) Enhance the information flow throughout research by establishing effective communication streams.
6) Enhance the information flow throughout research by establishing effective communication streams.
7) Increase the voice of people with Parkinson's in the research development, design and delivery.
7) Increase the voice of people with Parkinson's in the research development, design and delivery.
8) Facilitate collaborations between researchers, people with Parkinson's and other research organisations.
8) Facilitate collaborations between researchers, people with Parkinson's and other research organisations.
Equality & Diversity
Equality & Diversity
The UK PD-CSG is strongly committed to the promotion of equality and diversity.
We endeavour to be open and fair in providing opportunities that are responsive to our people’s needs.
