Registry Text out

Join Dementia Research Registry- IRAS: NA

Aims: We are looking to increase awareness of the Join Dementia Research (JDR) Registry. The JDR Registry is a national service funded by the Department of Health and Social Care, and is run by the National Institute of Health and Care Research in partnership with Alzheimer’s Research UK, Alzheimer’s Society and Alzheimer Scotland.  JDR enables people diagnosed with dementia, their partners and carers, as well as those without a dementia diagnosis who have an interest in dementia research, to register their interest in taking part in dementia research. The registry can then be used to match people to suitable studies. There’s a wide range of studies on Join Dementia Research, including studies into diagnosis, prevention, new treatments and quality of life studies. Volunteers with a dementia diagnosis often report that being involved in research can help them to maintain a positive attitude to life. 

The JDR Registry could play a vital role in increasing the number of people who participate in dementia research, which will in turn help to drive progress in the diagnosis and treatment of dementia. 

Requirements:  We are asking practices to send the below text message to all patients over the age of 18:

"Join Dementia Research is a service supported by [GP practice name] to enable people to take part in vital dementia research. Everyone over 18 can register whether they have a diagnosis of dementia or not. For more information please visit the Join Dementia Research website."

Once the text messages have been sent please provide the following information to your ROC/ROO:

The postcode prefixes (e.g. NE7) they cover

Any translations that were used

The number of texts sent and the date they were sent

The text platform that was used

Payments: 

Service Support Costs

•  Text message sent to all eligible patients - £150

Paid by LCRN upon activity completion.