For more info: https://www.precisionmedicineinautism.org/contact-us
This study aims to understand the experiences and opinions of people on the autism spectrum, their families, and the physicians who care for them on genetic testing for autism. Our goal is to identify barriers to genetic testing and find ways to improve patient care and the healthcare system in Alberta for those on the spectrum.
Recruitment is now open! We are currently enrolling:
Individuals who have received a formal diagnosis of autism
Physicians who practice in Alberta and care for individuals on the autism spectrum
Participants will be asked to complete an online survey with questions about genetic testing for autism. Additionally, some participants may be invited to a follow-up interview to share more in-depth experiences.
Interested? We'd love to hear from you! Please see the attached flyer with more information for you to share it with your network. If you have any questions, you can reach us at prisma@ualberta.ca.
Your support will be invaluable in reaching those whose insights will contribute to positive change.