We believe in a patient driven research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
You are the real experts in your journey. We ensure your insights guide everything we do, from working with industry to teaming up with academia.
Our partnerships and research are all about making life better for every patient.
Lynn Wilson
DM
President
Manuel Lubinus
IBM
PhD
CSO, Director
Laura Martinez Prat
PhD
Scientific Affairs Mgr, Autoimmunity, Werfen
Mgr. Special Projects
Austin Cyphersmith
MDA5 DM
PhD
University of Illinois, Microscopy Core Lab
Mgr., Medical Communication
Pai Hu
MS
Mgr. Survey Design & Statistical Analysis
Stephen Moore
DM
PhD
Neuroscientist, UAB
Researcher & Education CommunicationsLiaison - Rheumatology & Neurology
William Tiller
IBM
M.Sc.
Forensic Psychologist
Patient Researcher & Advisor
Dr. Raiha Shabaz
Clinical Researcher
Marta J. Narvaez
M.Sc.
Translational Medicine Project Lead
Benita Moyers
MDA5 DM
M.Ed
MSU
MDA5 Project Lead
Rodney Jansen
IBM
Myositis Canada VP
Coping for IBM Caregivers Project Lead
Marlene Jansen
Care Partner
Coping for IBM Caregivers Project Lead
Prateek Gandiga, M.D. FACP
Emory Rheumatology
Didem Saygin, M.D.
Rush University, Rheumatology
Lauren Graham, M.D. PhD, FAAD
UAB Dermatology / Rheumatology
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Salman Bhai M.D.
VP, Clinical Development, Secretome Therapeutics
Assistant Professor, Neurology, UT Southwestern
Abhiram Bhashyam M.D., PhD
Massachusetts General, Harvard Medical School
Meaghan Arnold
M. A. CCC-SLP
Speech Swallowing & Neurological Rehabilitation (SSNR)
People like you from our diverse myositis family help guide how clinical trials are designed.
MSU's team of advocates make sure your voice is heard by policymakers to help speed up access to better treatments.
Join us in shaping a brighter future for myositis patients and families!