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by Barbara Karnes, R.N. (1986, Revised 2021)
END-OF-LIFE, DEATH, GUIDEBOOKOften called "The Hospice Blue Book", this simple booklet was handed to me by care workers when my mother began hospice care treatment. It includes the poem "Gone from My Sight", attributed to Henry Van Dyke that I found quite fascinating. The concept of that poem is what inspired me to investigate further into what my mother's death experience might have been like in the last internal moments she had with her mind and memories.
by Elizabeth Hallam and Jenny Hockey (2001)
OBJECTS AND MEMORY, MEMENTOS, ANTHROPOLOGY, WESTERN CULTURE,This is the book I wish I had found earlier in my MFA thesis research. This book should be of particular interest to artists who also use found objects, or work with reliquaries and the like. Hallam and Hockey expound upon the desire to remember the dead through objects—the linkages between "personhood" (identity) and body, and body to the material (posessions, etc.). It also calls out the fear of "social erasure" that we all contend with when we think of our own mortality, and how we keep various objects and artifacts to perpatuate the "myth" of someone has died.
by Sherwin B. Nuland (1995)
DEATH, THANTOLOGY, EOL CARENuland portrayals of his beloved family members help you realize that he frames himself as a person first, instead of a surgeon. As a medical professional, he would go on to witness death in various ways. This book includes many of the physiological aspects of death from his surgical knowledge, but also includes observations and thoughts on the quality of end-of-life.
by Rodrigo Quian Quiroga (2017)
NEUROSCIENCE, MEMORYI was fascinated with what my mother's internal (mental) end-of-life experience must have been like, so I listened to Quiroga's book to help me understand how the last memories we keep might affect us when we are dying.
by Mary-Frances O’Connor, PhD (2022)
GRIEF, LOSS, NEUROSCIENCEDr. O’Connor breaks down what happens to our brains and bodies when we grieve. I found this extremely helpful to understand how I grieve and to also understand how my mother was grieving the end of her life.
by Edwidge Danticat (2017)
DEATH, MOTHER-DAUGHTER, LITERARY ARTSDandicat processes her mother's terminal diagnosis by telling her story while recalling what the literary greats she studied have said about death. I related to Dandicat as a daughter grieving her mother, living the diasporic family life in the United States.
by Bronnie Ware (2012)
END-OF-LIFE, ANECDOTESDoughty is a mortician who traveled the world to see how cultures around the world prepare for death.
by Maggie Callanan, R.N. and Patricia Kelley, R.N. (2012)
END-OF-LIFE, ANECDOTESCallanan and Kelley compile their experiences in working as hospice nurses and are able to find commonalities in what we look for, wish for, and leave as wisdom. This also has a great list at the end of recommended books for children and adolescents who are grieving.
by Caitlin Doughty (2017)
GLOBAL CULTURES, DEATH RITUALS, THANTOLOGY, GOOD DEATHDoughty is a mortician who traveled the world to see how cultures around the world prepare for death.
by Paul Koudounaris (2017)
GLOBAL CULTURES, DEATH RITUALS, THANTOLOGY, GOOD DEATHKoudounaris will take you on a visual journey around the globe of how different cultures honor their dead. He once said to me, “There is no wrong way to honor the dead,” and those words have stuck with me in my art about my mother.