Meet Our Team
Meet Our Team
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EDS West Connect was established in 2023 by a family consisting of a mother and her two daughters, all of whom are affected by EDS and POTS. Our organization is proudly owned and operated by women with disabilities.
Our team at EDS West Connect is united by a shared commitment to improving the lives of those with Ehlers-Danlos Syndrome (EDS) and empowering communities in Ventura, Santa Barbara, and Los Angeles counties through education, advocacy, and comprehensive support services. By collaborating across different areas of expertise and actively engaging with those we serve, we strive to create meaningful, lasting change. Our efforts focus on developing sustainable solutions that promote health equity, enhance quality of life, and foster long-term well-being for individuals and families affected by EDS. Through outreach, partnerships, and innovative programs, we aim to bridge gaps in care, raise awareness, and ensure that those living with EDS have access to the resources and support they need to thrive.
Kylee, Maysun, Dena and LaShon with service dogs Winnie and Gus
Dena Piquette-Garcia
President (B. Msc.)
Dena Piquette-Garcia is a dedicated leader committed to improving the lives of individuals with Ehlers-Danlos Syndrome and related conditions. As a triple certified advocate with 16 years of experience in awareness, advocacy, and support, she brings strategic vision and compassion to EDS West Connect. Her leadership fosters empowerment, drives positive change, and strengthens the organization’s mission.
Kylee Piquette
Co-President
Kylee Piquette is a dedicated leader committed to EDS West Connect’s mission. With a strong background in advocacy and personal experience with Ehlers-Danlos Syndrome, she brings valuable expertise to her role. Working closely with the leadership team, she helps shape strategies and initiatives while fostering a supportive community. Her dedication drives meaningful impact for those affected by these conditions.
Maysun Piquette
Secretary
Maysun Piquette is a dedicated and detail-oriented professional ensuring the smooth operation of EDS West Connect. Committed to transparency and efficiency, she manages records, documents key meetings, and facilitates communication among board members and stakeholders. Her organizational skills and reliable support contribute to the organization’s success and professionalism.
LaShon Sneed
Event Coordinator
LaShon Sneed is a passionate and detail-oriented event coordinator dedicated to creating meaningful experiences for the EDS community. With a strong background in planning, organizing, and executing impactful events, she brings creativity, precision, and heart to every project she leads. Her commitment to building connection and awareness through events plays a vital role in advancing the mission of EDS West Connect. Through her leadership, LaShon ensures that every gathering is not only successful but also inclusive, empowering, and inspiring.
Join the team
Join the team
EDSWC is looking for board members!
EDSWC is looking for board members!
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