In Loving Memory

Shannon Marie had a profound purpose in this life. As a child, she loved playing with her siblings and neighbors. She loved fishing, quadding, sports, animals, music, poetry, family vacations and spending time in New Hampshire. As her health declined, Shannon never stopped caring for others. She unwittingly taught and gave so much to those around her, despite the suffering she faced for many years. She held on and she fought hard for her family and the future she dreamed of, which consisted of things that most of us take for granted every day. But rather than suffering, her family wishes to remember her by her gorgeous smile, her crazy clowning around and the gifts and lessons that underlie all of her pain and misery, and that we can all grow from. In Shannon's eulogy, her loved ones were told to make a difference in memory of her, because "if we are not here to be awesome, then what are we here for?" Shannon was awesome. She had a heart of gold and the wit of a comedian. She wanted to help others in any way she could, even after she was gone. Her final gift to this world was to donate her brain for research on EDS. "All that she and other EDSers have endured will unquestionably help sufferers in the future, because she and many others have been the pioneers on this difficult journey toward healing. This is what is so beautiful about what she has done with her life. All of her suffering has been for this admirable intention...to help others", her mother wrote. "So, as a concluding message from my sweet angel... find the divinity within yourself and practice it, it's not how long you live those matters, do good things, love the unlovable, get involved and BE AWESOME." Written by Shannon's Mother

“Arielle Sheri Davis, beloved daughter, sister, granddaughter, niece, cousin, colleague, student, tutor, patient advocate, and friend, passed away during the early hours of Wednesday, December 18, 2019, after a multi-year, courageously fought battle against an interconnected set of rare, debilitating autoimmune diseases: MCAS (Mast Cell Activation Syndrome), Autoimmune Angioedema, POTS (Postural Orthostatic Tachycardia Syndrome), Sjogren's Syndrome, immune deficiency, osteoporosis, and EDS (Ehlers Danlos Syndrome). She is survived by her father Gregg Davis, her stepmother Beth Davis, her brother Cody Davis, and her mother Rachel Davis. Arielle was born in Castro Valley, California, on June 5, 1996. At the age of 11, she received her Black Belt in WCWMA Karate, and her brother Cody Davis was born. Arielle was an avid, hard-working, brilliant, and successful student, and also contributed to her community in many ways, including working as a volunteer and later interning at the Ronald McDonald House in Stanford, California. Arielle was an extremely gifted writer, public speaker, and communicator, and was also proficient in Spanish, Hebrew, and American Sign Language. Arielle also worked as an Online Tutor at Chegg Inc., from 2016 up until just a few weeks before her passing and was much in demand for her expertise, compassion, and great ability to explain, educate, and inspire. After attending Pitzer, Arielle worked as a Family Resource Coach at Children's Hospital Los Angeles (CHLA) and in 2019 began the UCLA Extension Online Patient Advocacy Certificate Program. Arielle excelled in her academic and professional pursuits while facing tremendous personal challenges in dealing with her various autoimmune disorders, in particular MCAS (Mast Cell Activation Syndrome), which was first identified in 2007, is exceptionally rare, difficult to diagnose and treat, poorly understood, and sadly, as of yet, incurable. Arielle was an exceptionally articulate, knowledgeable, hard-working, and compassionate patient advocate, educator, and support to her clients, and to so many other patients around the world struggling with MCAS/POTS/EDS, both in person, online, and through her blog: "ABCD MCAS what? Arielle's Journey with MCAS, POTS and EDS" (https://abcdmcas.blogspot.com/).” -Arielles father, Gregg Davis 

Beautiful Lilly was only seven years old when diagnosed with Chiari, Ehlers Danlos Syndrome, POTS, Mast Cell and MALS. She passed away on 06/08/2020, at just eleven years old. "Our Lilly was an angel on earth. The kindest little girl you would ever have the privilege of meeting. She was spunky, brave, loving and kind. She loved her family, the color red, Mario Cart and her dog Cookie, she was an animal whisperer. She went through too many surgeries and constant pain but you would never know with a smile that always lit up a room. Losing her has devastated our family in a way you cannot understand before. She deserved better, she deserved a long healthy life." - Lilly's Mother, Jillian.