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Our Mission
Our Mission
At EDS West Connect, we provide support and resources for individuals and families affected by Ehlers-Danlos Syndrome. Our services include educational materials, support groups, and access to a better educated medical community. Our goal is to bring awareness and improve the quality of life for those with EDS.
Raising Public Awareness
Raising Public Awareness
Through a large-scale awareness campaign, including billboards, magazines, TV commercials, and social media, we strive to make Ehlers-Danlos Syndrome as widely recognized as conditions like cancer, diabetes, and heart disease, addressing the health disparities and neglect EDS patients face daily.
Professional Education & Training
Professional Education & Training
We equip medical professionals, child protective services (CPS), social workers, attorneys, school nurses, medical students, and other professionals with the knowledge needed to better understand and support those with EDS.
Comprehensive Support & Resources
Comprehensive Support & Resources
We provide vital programs, advocacy, and essential resources to individuals living with EDS, ensuring they receive the care and support they need.
Questions?
Questions?
Contact [edswestconnect@gmail.com] to get more information
Where can I donate?
Where can I donate?
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