Please join by clicking the "Join OpenChat" button below.
Note: This OpenChat is currently operated in Japanese only
under the name of "皮膚筋炎/多発性筋炎のお喋り”.
The participants are required to have Japanese language proficiency.
After sending your request to join, please wait a little while for an approval.
Please select the main chat room "Myositis Chat Japan."
You may join by-topic sub-chat rooms later per your interests.
Please set a nickname and a profile picture.
Please introduce yourself using the provided template within two weeks; we ask that
you fill in as much information as possible.
To ensure that everyone participating in the LINE OpenChat "Myositis Chat Japan"
can use the space safely and comfortably, please be considerate of others and observe the following rules.
【Upon Joining】
Please post a self-introduction in the "Notes" section within two weeks of joining. You may use the provided template and fill in only the information you are comfortable sharing at the moment; you can add to or update it at any time.
Please set a custom profile image. Using a unique image makes it easier for others to recognize you compared to the default icon. You can change this image at any time.
【When and What to Post】
Please consult a doctor regarding matters requiring medical judgment. While we can share personal experiences, we are patients, their families, and related individuals and so we cannot provide medical diagnoses or advice.
Solicitation for personal health regimens lacking scientific or medical evidence (such as unilaterally stopping medication or promoting "steroid withdrawal" methods), multi-level marketing schemes, or religious groups is prohibited. The purpose of this group is healthy, constructive interaction.
Please refrain from excessive using "stamp" or posting frequent updates that link to personal social media accounts. However, moderate use of "stamps" and sharing links to blogs or YouTube videos that provide useful information are welcome.
The recommended posting hours are between 7:00 AM and 11:00 PM. Unless it is an emergency, please avoid posting during hours when most people are likely asleep.
Remember that everyone’s symptoms and physical conditions vary, and some members may be hospitalized.
【Anonymity and Prohibition of Defamation】
Please refrain from posting content that could reveal a person's identity or compromise anonymity. This applies to the names of medical institutions and healthcare professionals as well.
Defamation targeting specific individuals is prohibited. In particular, please refrain from directly criticizing specific medical institutions, doctors, or healthcare professionals.
【LINE OpenChat Safety and Security Guidelines】
Please refer to the guidelines via the "LINE OpenChat Safety and Security Guidelines" button below.