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DESHIMARU, Keiko
Founder
In April 2017, I was diagnosed as dermatomyositis, polymyositis, and interstitial pneumonia.
I had been living my days while continuing treatment, but in 2023 my condition changed (PAH). Currently, I am living with home oxygen therapy.
Since the onset of my illness until now, not only have my symptoms and treatments changed significantly, but my daily life, including my work and going out, has also changed dramatically.
On the other hand, becoming a patient allowed me to see and feel things I hadn't seen before, and to meet others who had the same illness.
My own experiences as a patient have led me to establish this community and to engage in activities that "reveal patients' voices."
Patient with dermatomyositis ( anti-ARS-EJ antibody positive)
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TMA
The mission of The Myositis Association (TMA) is to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. Our programs and services provide information, support, advocacy, and research for the myositis community.
* "Myositis Chat Japan" is deligated to act as TMA Japan.
PeerHarmony
Putting patients' voices at the heart of healthcare.
Many patients have been saved by advancements in new drugs and medical technology, but the voices of patients with intractable diseases have not yet been heard sufficiently.
By gathering those voices and deliver them to healthcare workers,
we will create a society where people with intractable diseases
do not feel isolated.
Our mission is to use those voices to create a future filled with smiles.
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