British Red Cross

The British Red Cross helps people in crisis, whoever and wherever they are.

They are part of a global voluntary network, responding to conflicts, natural disasters and individual emergencies.

They help vulnerable people in the UK and abroad prepare for, withstand and recover from emergencies in their own communities.

Emergency response

Every year they respond to thousands of emergencies in the UK, playing a key role supporting the emergency services. From floods and heavy snow to house fires and transport accidents, they are ready to respond.

First aid education

They train around 370,000 people in first aid in the UK every year, preparing them to cope with accidents and emergencies in the home, at work or out and about. Their volunteers also provide first aid cover at thousands of public events across the country.

Health and social care

They help thousands of people across the UK keep their independence by providing short-term support after a hospital stay – or by preventing admission in the first place. Their services include care in the home, medical equipment, transport and therapeutic care.

International emergency response

The British Red Cross responds to natural disasters and conflicts around the world, working with the rest of the International Red Cross and Red Crescent Movement.

Other international programmes

As well as preparing for and responding to emergencies, they also support longer term Red Cross and Red Crescent programmes around the world, helping communities tackle health and social crises.

Refugee services

They provide vital support to vulnerable refugees and asylum seekers in the UK, helping them access services and adjust to life in a new country. They also reunite families separated by conflict or disaster.

Humanitarian education

In an increasingly complex world, they recognise how important it is for children and young people to have a greater understanding of humanitarian issues. That’s why they work closely with schools across the UK, helping them provide valuable education on a range of local and global issues.

Tuberous Sclerosis Association

About Tuberous Sclerosis Complex

Each month 10 babies are born in the UK with TSC...

An estimated 1 million people world-wide have TSC. Some will be diagnosed with TSC very early in life whilst others may not be diagnosed until later childhood, adolescence or adulthood. This booklet has been produced by the Tuberous Sclerosis Association (TSA) to help those families and individuals newly diagnosed to understand more about the Tuberous Sclerosis Association.

It is important to keep in mind that TSC varies from person to person and that most people with TSC do not have all of the features described. If you find you would like further information on any particular aspect of TSC or would like advice or support please contact us.

What is TSC?

TSC is a genetic condition that can lead to growths in various organs of the body, but those most commonly affected are the brain, eyes, heart, kidney, skin and lungs. These growths may also be referred to as tumours but they are not cancerous. When they cause problems it is mainly because of their size and where they are in the body. TSC growths have different names depending on which organ they are found in.

The impact of TSC varies considerably, with some people being relatively mildly affected (they may not even know they have TSC) and others being more significantly affected. This impact may be evident in the early years, or not until adulthood. Thanks to research findings and with improved medical care, people with TSC can expect to live healthier lives with a normal life expectancy, in most cases.

About The Tuberous Sclerosis Association

The TSA is a registered charity compliant with all areas of charity law.

Launched in 1977 with a membership of 50 families and funds of £25, the Tuberous Sclerosis Association (TSA) has grown from a round robin support letter, to a professional organization providing support to families affected by TS across the UK. The TSA has 3 main objectives:

- To support individuals affected by TSC, together with their families or carers.

- To encourage and support research into the causes and management of TSC.

- To provide education and information.

Their Mission: “To provide care for today and hope for tomorrow”