Research and Clinical Trials

ALS Therapy Development Institute- https://www.als.net/

Northeast Amyotrophic Lateral Sclerosis Consortium- https://www.neals.org/

Clinical Trials for people with ALS (ALS Association) http://www.alsa.org/research/clinical-trials/

Mass General- Study and contact information http://www.massgeneral.org/als/assets/pdf/NCRI-studies.pdf

ALSUntangled-helps patients with amyotrophic lateral sclerosis (ALS) to review alternative and off-label ALS treatments. Instructions for using ALSUntangled, as well as our published and active reviews can all be found on this website. http://www.alsuntangled.com/

National ALS Registry-a program to collect, manage and analyze data about persons with ALS (PALS). It includes data from existing national databases and information provided by persons with ALS who choose to participate. Researchers can use Registry data to look for disease pattern changes over time and try to identify whether there are common risk factors among PALS. Additionally, the Registry provides updated links for participant resources like ALS clinical trials. https://wwwn.cdc.gov/als/AboutRegistry.aspx