The National ALS Registry was signed into law in October of 2008.
This database will gather information from ALS people living with ALS across the country to create that will help find common links and lead researchers in the direction of effective treatments, and an eventual cure for ALS
It is easy, and anonymous. Go to http://www.cdc.gov/als .
If you are interested or need assistance, contact the Care Services Department at (203) 874-5050.