Til' the Calm Comes-Smendik

Thank you Amy for sharing this video with moving lyrics. It reflects the struggle of parents as well, I commend them for their strength and how positive they are dealing with their little daughter's epilepsy.

Noha

Thank you Amy for this wonderful video. Its very touching.

Wow Amy,

This is very inspiring as a parent there is nothing you would not do for your child, I can totally relate this. From the lyrics you can see the love for the child from both parents overflowing and enveloping Adelaide. It just left me thinking that if love could cure epilepsy Adelaide would have been cured in no time. I am confident that she will be fine with the advancement in science and growth in epilepsy knowledge field they will one day find a cure for this disease.

Once again, thank you for sharing.

Ifeyinwa okeke.

Lisa,

You are not the only one who cried with this, there was not a dry eye in the house! It is really great to have a Cervantes devote this kind of attention to this disease. Letting other parents know that you are not the only parent struggling and there are groups that can help. ( Amy)

Amy,

WOW! That was incredibly touching, and I'll admit that I cried when I watched it because I was so moved by the emotion behind Cervantes' singing (okay, and partly because it's 4:30am and I'm tired). I was really inspired by the unconditional love that I saw in the Cervantes family. How sweet was Adelaide's older brother when he gave her hugs and kisses. It's also impressive that his Hamilton castmates and crew pitched in for the cause. Unfortunately, the prognosis for infantile spasms is very poor. I made the mistake of looking up Adelaide for a current update, and was disappointed to find that she has regressed since the video was made. More crying ensued. While the family remains committed to finding ways to help Adelaide and generate research funds, it's clear that her condition is also very stressful for them. I know he would give back every Hamilton success if he could find a way to improve her life. I'll remember to be more empathetic to similar patients in the future, and make sure to reach out to caretakers to assess well being in addition to the actual patient.

Lisa Chang

Lisa,

I agree with you. It seems that with infants who experience seizures that it sometimes takes a village to care for them. It is sad to hear that she has regressed. One can see how parents take all costs to try and find relief for their child. Cindy Maciak

Yes Amy,

One of the most effective ways to diminish the stigma associated with certain medical conditions is to have celebrities and opinion shapers, put their star-power behind the cause. Favorable public opinion, education and understanding can impact access to care, social support and general feeling of acceptance from those normal people like the rest of the society. Thanks for the post!

Tosh BOLANLE

Amy, this is very touching! I live in chicago and have heard about the CURE benefit that the Hamilton team raised funds for during their tour in Chicago last year. Her parents are dedicated to raising awareness and finding a cure! Very inspiring! Thank you for your post!

Marian Ayad

I was lucky to see him perform live for the Spectrum Health Gala Foundation fund raiser. They are raising money for epilepsy treatment in the Grand Rapid Hosptial System: I did not realize who he was, but my kids recognized his name immediately. ( Amy)

Incredible song. Incredible love. I posted something earlier about this young girl and infantile spasms. Your comments are correct, she will have co-morbid conditions and all of their lives will continue to change as she grows and expectations will be modified for what her quality of life will be. Every time we see a patient whether in the clinic, pharmacy, hospital we have to recognize that we really dont know what their life is and our compassion and passion for what we do as health care providers is important even on our worst days. Ruth Nemire PS, you cant help but cry in empathy for these parents. Ruth Nemire