Who Helped Us
There is a very long list of people who helped us, unfortunately too many for me to have kept track of. If I accidentally missed you, please let me know, and I'll add you here too. A special thank you to Jose Santos Lizcano Who helped us on almost every detail, had numerous Skype calls with us, taught us about electronics, coding, helped design and tweak the arm braces whenever we needed them to.
In Alphabetical order
Actuonix Motion Devices - Donated various actuators to our project
Alex Sutherland - General help and support
Alexandra Komlossy Vejnovic - General support, Crowdrise support, advice
Ana Duarte - General support
Andi Ackroyd - General help and support
Angie Andersen - General support, Mom of another AFM sufferer
Anouk Wipprecht - General inspiration and support.
Ashley Ballanger - General help and support
Audrey Lee - helped with the design of the joint and figured out the torque requirements...
Bendeth Family - General support, Crowdrise support, advice
Blair Lock - Awesome advice on pattern recognition, also helped us by sending us an evaluation unit from CoApt that validated things could work!
Brian Kaminski - Founder of Advancer Technologies that makes the MyoWare sensor we used, provided us general help and support.
Bruce Smith Canadian Medical Association (CMA) - Invited us to speak at their event.
Cathy Robinson - General support and hundreds of lovely cards and letters
Christian de Saint-Rome - General help and support
CoApt - Provided us an evaluation unit to test with and practice with. This was a super amazing way for Lorelei to continually practice her arm
Daniel Su - Helped with some joint designs, and support on the Arduino
David Broiles - Help with 3d scanning and donated to us a XBOX Connect, which allowed us to get an accurate scan of Lorelei's arm!
de Saint-Rome family - General support, Crowdrise support, advice
Derek Zaraza - General help and support
Duncan & Chantal Barnes - General support, Crowdrise support, advice
Frederic Bonn - General support
Frederic Bonn - General support, Crowdrise support, advice
Gert Jan van Lang - General help and support, Parent of another AFM sufferer
Gogol Bhattacharya - Advice on neural networks, general support
Guy Bradley - General support, Crowdrise support, advice
Hackaday.io - awarded us a prize and invited us to speak at their Hackaday event in 2016 where we gained further support and help:
Ian Chia - General advice and support
James Chin - General advice and support
James Newton - Helped with Machine learning
Jason - General support, Crowdrise support, advice
Jason Huguet - General support, Dad of another AFM sufferer
Jay Laing - General advice and support
Jeff Jarvis - General help and support, We visited them in California to meet their daughter with AFM and see what we can do to help. They further supported by raising funds for further development.
Jessica Tomei - General help and support, We visited them in California to meet their daughter with AFM and see what we can do to help. They further supported by raising funds for further development.
Joel Leonard - General support and help, pushing our story to anyone who would listen :)
Joel Telling - 3D printing support
John Baker - General support, Crowdrise support, advice
Jose Santos Lizcano - helped us on almost every detail, had numerous Skype calls with us, taught us about electronics, coding, helped design and tweak the arm braces whenever we needed them to.
Josh W - General support, Crowdrise support, advice
Judit and Dee - General support, Crowdrise support, advice
Kaki Flynn - General help, Advice, and support
Kate and Wolf - General support, Crowdrise support, advice
Katie Rose - Helped Lorelei with PT and OT and taught her how to swim
Katy Kasmai - General support, Crowdrise support, advice
Kieran Ricardo - Help with developing Open Source EMG signal processing and pattern recognition code.
Kyle Wood - Support on pyEMG open source coding
Lila Ghayour - General support, Crowdrise support, advice
Luca Randazzo - Helped us in Geneva to set up a hackathon to develop updated prototypes for Lorelei
Mark Dalton - General help and support
Matt Kenigson - A good friend who helped us with Advice, support, and encouragement
Matthijs Cox - General help with pattern recognition software, electrodes, advice and much more!
Melissa Young - Helped spread the word about our project
Michael & Zona - General support, Crowdrise support, advice
Michael Hansel - General support
Nick Loya - Advice and support
Patient Innovation Foundation - Gave us an award and invited us to speak at the Patient Innovation event in 2017, through which we gained further support.
Peppe D. Missale - Helped with updating the design, prototyping new electronics and code.
Phaedra de Saint-Rome - General help and support
Prashant Gade - Helped us with prototyping some joint and pully mechanisms
Roberto Diula Pupú - General support
Robinson Family - General support, Crowdrise support, advice
Romain Laugier - Advice on Machine learning, Arduino's, electrodes...
Samantha Szostak - General support, Crowdrise support, advice
Sean & Sarah McKenzie - General support, Crowdrise support, advice
Signora Family - General support, Crowdrise support, advice
Sonia Gines - General support, we tried to also help Sonia get a team to build her one for her son.
Stacie Williams Jackson - General support, parent of another AFM sufferer
Stephanie Martin - Helped us in Geneva to set up a hackathon to develop updated prototypes for Lorelei
Stuart Wilson - General support
Tariq Rahman - General advice
The Enable the future community - http://enablingthefuture.org/
The Kelch Family - General support, Crowdrise support, advice
Tomit Huynh - General advice and help with pattern recognition
Tracey Wood - General support, Crowdrise support, advice
Vaibhav Chhabra - General help and support, we ended up going to his maker space in India to help create assistive devices for various other people..
Wilfried Poirier MyMiniFactory - Supported us by putting our project on their site
Also, check the Resources and Advice pages for help received.
On a side note, Attribution and providing credit to those who supported open work is important to me and is a key part of an audacious project I am working on. Check it here: https://www.dev4x.com/osi