Welcome to Joshua Joel SMA Life Inc.

Joshua Joel SMA Life, Inc. mandate is to campaign for funding for the advancement of a comprehensive research program and cure for Spinal Muscular Atrophy.  It is our purpose to help accelerate the development of a treatment for Spinal Muscular Atrophy (SMA), the number one genetic killer of infants and toddlers.  We strive to help facilitate help to Parents and the Medical Community through Education.  We provide quality education with the highest standards, lofty goals, leadership training, development programs and services geared toward providing the utmost quality in care in a loving, caring and professional environment. 

News and Announcements

  • Potential SMA Therapy Ready for a First Clinical Test January 12, 2016Roche's RG7916, an SMA2 splicing modifier, entering Phase 1 study after predecessor put on holdBY MAGDALENA KEGELRoche recently announced that a new investigational medicine ...
    Posted Jan 23, 2016, 1:42 PM by Patrice Fletcher
  • In Spinal Muscular Atrophy, Vascular System May Play a Key Role December 8, 2015Study finds insufficient blood supply likely contributes to motor neuron lossBY DANIELA SEMEDO, PHDFor the first time, scientists have shown that insufficient blood supply is ...
    Posted Jan 23, 2016, 1:26 PM by Patrice Fletcher
  • Impaired Mitochondrial Dynamics Play Role in SMA Pathology December 1, 2015Abnormal mitochondrial transport and morphology may cause SMABY KARA ELAMThe degeneration of spinal motor neurons in spinal muscular atrophy (SMA) may be the direct result ...
    Posted Jan 23, 2016, 1:18 PM by Patrice Fletcher
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RECENT BLOG ENTRY

  • Tribute to Dr. Carla Phillips
    Posted Mar 18, 2016, 1:24 PM by Patrice Fletcher
  • Happy New Year
    Posted Dec 30, 2015, 9:12 AM by Patrice Fletcher
Showing posts 1 - 2 of 20. View more »

Press Release

  • For kids in need, a gift of donated video game fun This copy is for your personal, noncommercial use only. You can order presentation-ready copies for distribution to your colleagues, clients or customers here or use the "Reprints" tool that ...
    Posted Oct 21, 2015, 5:49 PM by Patrice Fletcher
  • Video-game drive helps raise awareness, support for little-known disease This copy is for your personal, noncommercial use only. You can order presentation-ready copies for distribution to your colleagues, clients or customers here or use the "Reprints" tool that ...
    Posted Oct 21, 2015, 5:48 PM by Patrice Fletcher
  • Give6 Making a Difference GTN News :Create Account|Log InLocal CouponsSITE SEARCHWEB SEARCH BY Give 6 Making a Difference One local family is turning their tragedy into a good cause - and it's all ...
    Posted Oct 21, 2015, 5:45 PM by Patrice Fletcher
  • Give6 Article Published by World News
    Posted Sep 1, 2014, 6:48 PM by Patrice Fletcher
  • Give6’s Video Game Drive Official Launch and Ribbon Cutting FOR IMMEDIATE RELEASE June 26, 2014 CONTACT: Shareen Baptiste Public Relations Specialist c: 407-967-0237 shareen.baptiste@hotmail.com  Give6’s Video Game Drive Official Launch and Ribbon Cutting ...
    Posted Sep 1, 2014, 6:59 PM by Patrice Fletcher
Showing posts 1 - 5 of 5. View more »