A Montage of Gloria's First 4 Years - This is a video put together by her talented aunt Monique.
Gloria's First Birthday - She also ate frosting for the first time and it was the first thing in a while she really swallowed some of.
Gloria's is Talking with Daddy - Gloria liked to chat it up around 3 months.
Gloria's Tent Cot Travel bed - We utilized this for her trip to Texas for her syndrome conference at 3 years old and her trip to Disneyland at 4 years old.
Gloria able to see again at 11 Months. - Gloria playing with the monkey in her activity gym, and vocalizing.
Gloria and her Ball - Gloria interacting with her ball at about 2 months. She could definitely see the ball and reached for it and grabbed it.
Gloria asking Daddy to play with sign language and by speaking - This is Spring 2016. We encourage her to use both sign and speech. She seems to learn best when she anchors concepts in kinesthetic movements.
Gloria at the Ronald McDonald House - Gloria at 5 months. Gloria could still see some as evidenced by her hitting the mobile on purpose, and she was on ACTH. Soon after she lost her ability see due to Cortical Visual Impairment.
Gloria climbing on and off the couch 5 yrs - Gloria can cruise along furniture and started climbing on and off the couch. She still can't go from seated to a stand. 5 yrs old.
Gloria Crawling Summer 2017 - This is Gloria at 3 years old attempting to crawl. She never really was able to master crawling and has never really crawled more than this even 8 months after later.
Gloria Drinking Out of a Cup for the First Time - She has licked cups a lot, but this was the first time she really sipped a drink. We are still working on it months later, but there is progress.
Gloria Expressive Language Spring 2016 - Gloria showing off her sign language and verbal skills.
Gloria helping put away diapers at 4 years and 5 months - This is one of Glo's chores helping put away diapers when they arrive every month.
Gloria Holding Her Head Up Again on ACTH - Gloria at 6 months. She had CVI pretty bad at this point, and had regressed pretty much to new born. She also was at the peak of CVI.
Gloria in her Bouncy Chair October 2016 - Gloria was 3 and we won a Bouncy chair from the UCP conference. She was really working her core. She has not progressed much and probably back slid on her ability to stand and walk since 2015.
Gloria in her Bumbo Seat - Gloria at 3.5 months. She was starting to lose weight due to failure to thrive at this point and vomiting. She also was hypotonic and not really holding her head up. You can really see some of the features of CFC.
Gloria in her Gait Trainer December 2016 - We had finally received the environmental modification approval to get smooth flooring so she could independently move around the house. The transitions were still a bit of a challenge for her.
Gloria Laying on a Boppy Pillow at a few weeks old - She was cute, but we wondered about the tongue thrusting and her inability to keep food down. At this point she was gaining weight.
Gloria Licking a Chip April 2016 - Gloria continues to taste things in 2016, but still no chewing or swallowing more than a few mls.
Gloria Licking Fruit Leather May 2016 - It is a glacial pace of progress on feeding with Gloria. The Infantile Spasms robbed her of the ability to eat by mouth, but we will get there eventually.
Gloria Mobility Technique at 4 years - We call this movement technique the boot scoot. She went away from this and has tried to stand up, but just doesn't have the strength.
Gloria Reading with her Teacher Spring 2016 - Gloria blossomed once she finally got into private pre-school with the help of the K plan. Head Start wouldn't take Gloria, because we didn't qualify, which left only the private option till she entered ECSE.
Gloria sipping from her sippy cup Summer 2016 - We have been stuck at this phase for a while she will drip things in her mouth, but struggles to swallow it all. We believe lip sensitivity is a big issue. August 2016
Gloria Smiling at Momma 1-2 Months Old - Gloria definitely responded to her mom, and loved to smile.
Gloria Standing Up - Gloria Stood up for the first time at 15.5 Months from a seated position.
Goria Moments Before she left to get her Gastronomy and Fundoplication Done - Gloria at 7 months. Gloria was pretty uncomfortable and practically blind so you had to get close so she could hear, smell, and feel you to comfort her. At this point the ACTH was done and we were on to Sabril. She was still deflating from the ACTH, and suffering from CVI. The Sabril ironically corrected the Hypsarrhythmia and the CVI for the most part. She soon passed her eye exams.
Infantile Spasms Video from February in Kaiser Oakland - Gloria at 4 months. Gloria presented with Nystagmus and arm jerks. Gloria was seizing while on Keppra. This is the seizure that made them switch to Phenobarbital. Knowing what I know now I would have demanded another EEG, because the seizures had changed so much. Also, watching this video for a few seconds caused the Portland Hospital Neuro to immediately order another EEG.
Infantile Spasms Video while on Prednisone - Gloria at 4.5 months. Gloria had started Prednisone, and we had just started to work on ACTH. This was the day that they upped the dosage of prednisone.
One of Glo's favorite past times Riding in her Wagon around the House - January 2017. This has been Gloria's favorite thing for quite some time. She loves to listen to music and be pulled round the house. Usually she does this with Aunt Monique or Grandma Sue.