Below you will find a list of the videos I found helpful as I began my journey to understand Cardio Facio Cutaneous Syndrome. If you know of any other videos that may be helpful please comment below or email me at leslierogers@sbcglobal.net.
2009 Keynote Address from the RAS MAPK Conference in Berkeley - This address is fairly esoteric, but it is still valuable in giving visuals as to what the researchers are doing to help our children.
Awesome Animation of the Inside of our Cells - This video shows how complex the signaling processes are inside our cells. Not really related to CFC directly but the video does give a good idea of how the general process of cell signaling works.
Clinical Features of CFC and Other Rasopathies - A bit of the basic genetics revolving around Rasopathies and what we knew as of 2011. Another British Conference.
Ian Brown Author of The Boy in the Moon A Book About Raising his CFC Child - He talks about life raising a CFC child. I really don't know how I feel about the book after reading. I grew up with a disabled adopted sister and it prepared me in ways that most people aren't for raising my daughter.
Liam's Lodge- A CFC Family Story - This family shares their story of coping with raising CFC children.
Listing of the Rasopathies - Lisa Schoyer President of Rasopathies Network listing the Rasopathies.
Managing Feeding Disorders for Rasopathies - This video covers some of the issues that surround the prennial feeding issues of Rasopathy children. If only our kids could eat and not vomit ten times a day life would be so much better. Good news is that CFC international has funded some GI research and with our help the researchers will hopefully get some answers.
Rasopathies and the Heart - This video covers the impact of the heart defects associated with Rasopathies.
Understanding Rasopathies UK Conference - This link covers the basics of Rasopathies and shares some of the related disorders: CFC, NF1, Noonan, Costello etc.
Video from 2010 posted by Kyle Stowell About CFC - This video is a bit dated on some of the stats but covers the basics and has pics of lots of the kids my family got to know at the 2015 CFC conference.
Why Rasopathies Benefit from Cancer Research - This is a brief video that explains why there is already so much research on the Ras Pathway (the pathway that our CFC kids have mutations in).