Welcome to my collections of articles about CFC. As I run across research about CFC I keep adding, and any time I find news articles I also add them here. One good method to further your research is to take a look at the citations at the end follow the citations from article to article to gain a better understanding of the condition. I have learned a lot by reading these. I have posted only articles that were freely posted online. The most important article is the Pediatrics Treatment Guide published in September 2014, if you would like help getting a copy of that article please contact CFC International info@cfcsyndrome.org. If you have any additional articles please feel free to comment below.
Cardio-Facio-Cutaneous Syndrome: Clinical Features, Diagnosis, and Management Guidelines - This is a thorough evaluation of CFC syndrome body system by body system and what common ailments are seen in affected individuals. It is now freely available on PubMed.
CFC.info Resources Galore - This website has tons of blogs, materials, and links for CFC and Rasopathy families. Thanks Claire for sharing.
CFC Syndrome Parents Survey Draft - This is a survey I have been developing with all the questions I wish I could ask the parents of CFC kiddos. Maybe some day we can use it to gather more information on CFC.
CFC Syndrome Website Journal Article Listing by Specialty - This is a comprehensive listing of journal articles for CFC Syndrome.
New Drug Blocks Rapid Cell growth - Possible Rasopathy Treatment
Pediatrics journal article - Cardio-Facio-Cutaneous Syndrome: Clinical Features, Diagnosis, and Management Guidelines