The PPROM Registry

About 

The PPROM Patient Registry was created to help researchers better understand Preterm Premature Rupture of Membranes (PPROM) and the experiences of parents and families affected by it.

PPROM can look very different from one pregnancy to another. The Registry collects information about diagnosis, care, Expectant Management, pregnancy and birth outcomes, NICU experiences, and longer-term effects.

There are still many unanswered questions about PPROM. By sharing their experiences, parents and patients can help build a clearer picture of:

• how PPROM is managed;

• what outcomes families experience;

• where care may differ;

• what questions need more research; and

• how PPROM affects parents and families over time.

The Registry is an observational study, which means participation does not involve receiving a treatment or changing medical care.

Your Experience Matters

Every PPROM experience adds to what we know. The Registry includes a wide range of pregnancies, care experiences, and outcomes. There is no single PPROM experience that someone must have had in order to participate.

Participation is voluntary.

The PPROM Patient Registry is registered with ClinicalTrials.gov as NCT02997345.

See our information on ClinicalTrials.gov