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The PPROM Foundation is a parent-led nonprofit organization and public charity providing resources and support to people impacted by Preterm Premature Rupture of Membranes (PPROM).
PPROM affects approximately 150,000 pregnancies in the United States each year and is associated with approximately 1 in 3 preterm births.
Established in 2013 by parents with lived experience of PPROM, the Foundation was created to address the unique needs of PPROM parents and families and to bring together parents, healthcare providers, and researchers to improve understanding, care, and outcomes related to PPROM.
Parent-Led From the Beginning
Parent-Led From the Beginning
The PPROM Foundation has been parent-led since its founding in 2013. Our lived experience continues to inform our work in education, awareness, advocacy, partnerships, and research.
We recognize that every PPROM experience is different and may include Expectant Management, hospitalization, premature birth, NICU care, pregnancy or infant loss, recovery, future pregnancy, and long-term effects on parents, families, and communities.
Our Work
Our Work
Education & Awareness
Education & Awareness
We provide person- and family-centered information and resources about PPROM and work to increase awareness of this serious pregnancy complication.
Our education and awareness efforts include:
developing resources for parents, families, healthcare providers, and researchers;
participating in public speaking, educational presentations, panels, and community outreach;
bringing parent and family lived experience into professional education and training; and
sharing information about PPROM, maternal and neonatal health, research, and family experiences.
June is recognized as PPROM Awareness Month, providing an opportunity to expand public understanding of PPROM and highlight the experiences of affected parents and families.
Advocacy
Advocacy
The PPROM Foundation works to ensure that the experiences and needs of parents and families affected by PPROM are represented in public and policy discussions.
Our advocacy includes:
supporting state and federal legislation and budget initiatives related to PPROM, maternal health, pregnancy care, and affected families;
meeting with legislators and legislative staff;
sharing parent and family perspectives to inform policy discussions;
requesting and supporting state PPROM Awareness Month proclamations; and
encouraging greater recognition of PPROM within maternal and neonatal health policy.
Our advocacy is grounded in lived experience and in the needs of parents and families impacted by PPROM.
Partnerships
Partnerships
We collaborate with healthcare providers, researchers, professional organizations, and parent- and family-led organizations working across maternal, fetal, neonatal, and family health.
Society for Maternal/Fetal Medicine
National Perinatal Association
Family-Centered Care Taskforce
Research
Research
The PPROM Foundation supports research focused on PPROM and the experiences and outcomes of affected parents and families. The PPROM Patient Registry is a Patient-Reported Outcomes registry focused specifically on PPROM.
Learn About the PPROM Registry
Our Impact
Our Impact
Since 2013, The PPROM Foundation has worked to increase awareness, strengthen parent/family resources, and bring the lived experience of PPROM into research, education, advocacy, and professional training.
Our work has included:
establishing the PPROM Patient Registry (NCT02997345);
developing and sharing PPROM Awareness Month education and awareness campaigns;
requesting and supporting state PPROM Awareness Month proclamations;
participating in state and federal legislative advocacy;
supporting legislation related to PPROM, maternal health, pregnancy care, and affected families;
meeting with legislators and legislative staff to share parent and family perspectives;
creating parent and family education resources focused specifically on PPROM;
contributing parent and family expertise to professional education and training;
participating in published work related to high-risk pregnancy, NICU families, and peer support;
participating in public speaking, educational presentations, and outreach related to PPROM;
training peer supporters, advocates and Certified Patient-Family Partners;
supporting research collaboration and opportunities to include PPROM parent perspectives in research; and
advocating for greater recognition of PPROM and the experiences of affected parents and families.
Selected Collaborative Work
Selected Collaborative Work
The Value of Peer Support for High-Risk Pregnant Women and Their NICU Infants
The PPROM Foundation contributed to The Value of Peer Support for High-Risk Pregnant Women and Their NICU Infants, published by Oxford University Press in Behavioral Health Services with High-Risk Infants and Families.
The chapter addresses the value and development of peer support for families experiencing high-risk pregnancy and NICU care.
View the Publication on Oxford Academic
https://academic.oup.com/book/43978/chapter-abstract/369519219
Caring for Pregnant Patients & Their Families
The PPROM Foundation contributed parent and family perspective to the development of Caring for Pregnant Patients & Their Families: Providing Psychosocial Support During Pregnancy, Labor and Delivery through My Perinatal Network.
The interdisciplinary professional education program addresses psychosocial support, communication, trauma-informed care, perinatal mental health, and support for patients and families experiencing complicated pregnancies.
View My Perinatal Network
https://www.myperinatalnetwork.org/my-perinatal-network.html
Connect With Us
Connect With Us
PPROM Resources for Parents & Families
Resources for Healthcare Providers & Researchers
Donate to The PPROM Foundation
The PPROM Foundation is recognized as tax-exempt under Section 501(c)(3) of the Internal Revenue Code.
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