Parent/Guardian Support
Parents and caregivers play a key role in preparing their child for the transition from school to adult life, and support them well beyond. Oftentimes, this can feel like an inordinate task but it is not a journey parents and caregivers need to go through alone.
Special Needs/Silver Alert Program:
The Suffolk County Police Department is pleased to inform you of the availability of our Special Needs/Silver Alert program. This free program enables relatives or caregivers to register persons with special needs in the Police Department’s database. This information will be furnished to first-responders and police officers responding to an emergency situation involving the registrant.
Registrants can also request to receive an identification bracelet by checking the box on the Special Needs/Silver Alert Registry form. The bracelet is free of charge and contains a distinctive I.D. number as well as a Suffolk County Police Department phone number which first responders can utilize to obtain information regarding that person.
Application:
suffolkpd.org/Portals/59/scpd_pdfs/PDCS-8060.pdf
Contact Information:
Suffolk County Police Department
30 Yaphank Avenue, Yaphank 11980
631-852-6308
Suffolk Independent Living Organization (SILO):
SILO is Suffolk County’s only independent living center and has long had the reputation of providing the most comprehensive cross-disability related services to the disabled community. SILO empowers people with disabilities to take an active role in the community in which they live, work and play.
Some of the services they provide include, advocacy, assistive technology classes and computer lab, employment readiness, housing assistance, independent living services, support groups, peer counseling, and information and referral services.
Contact Information:
3253 Route 112
Building 10
Medford, NY 11763
631-880-7929
Email: info@silo.org
Facebook: Suffolk Independent Living Organization (SILO)
Parent to Parent of NYS:
Parent to Parent of New York State is an organization that builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. Parent to Parent provides many different resources including, free webinars on a variety of different topics, 1:1 support through their parent matching program, and parent support groups.
Contact Information:
Dodie Daniels
Parent to Parent of NYS
415 A Oser Ave.
Hauppauge, NY | 11788
631-434-6196
ddaniels@ptopnys.org
Facebook: Parent to Parent NYS
Supporting Our Youth & Adult Network (SOYAN)
SOYAN is an organization of family members and self-advocates dedicated to preserving dignity and self-determination for people with intellectual and developmental disabilities, safeguarding the progress gained for them and protecting and enhancing their quality of life in the community.
Each month SOYAN invites parents, guardians, and Caregivers of Self-Direction Participants and those who are thinking about pursing Self-Direction to their Family Education & Support Workshops
To receive future meeting notifications and relevant information about SOYAN and Self-Direction, sign up at eepurl.com/glFE3D
Contact Information:
Leslie Feinberg/SOYAN Organizer at
soyan.long.island@gmail.com
Facebook: Supporting Our Youth & Adults Network
Self -Advocates Association of New York State (SANYS)
The Self-Advocacy Association of New York State, Inc., is an organization founded, and led, by people with developmental disabilities for people with developmental disabilities. SANYS promotes the awareness and recognition of the civil rights and responsibilities which include the opportunities and choices of equal citizenship. SANYS’s mission is to help individuals with disabilities become more independent by building self-advocacy skills. SANYS provides training and support for self-determination and provide guidance to help individuals discover new ways to create the life they envision.
Contact Information:
500 Balltown Road
Building 12
Schenectady, NY 12304
(518) 382-1454
Facebook: Self-Advocacy Association of New York State
The Parent Support Network
The Parent Support Network is a program of The Youth Mental Health Project that seeks to provide support for parents and guardians who are concerned about the mental health of their children through confidential, peer-to-peer meetings. Parents and caregivers need support to navigate the challenges that arise when raising kids who struggle with their mental health. By sharing experiences and personal stories, parents and will connect with each other and gather strength from the knowledge that they are not alone.
www.supportgroupscentral.com/ymhp
Contact Information:
westernsuffolkpsn@ymhproject.org
Facebook: The Parent Support Network
Specialized Autism Support and Information (SASI):
SASI is an organization that is run by parents and caregivers of children with special needs. SASI is a central resource for parents and caregivers. SASI provides emotional and financial support as well as advocates in the community for autism awareness and understanding.
Contact Information:
Priscilla Arena
sasigroupinfo@gmail.com
2233 Nesconset Highway, Suite 202
Lake Grove, NY 11755
631-676-7274
Long Island Advocacy Center (LIAC):
LIAC provides family support services, and can help families navigate through services.
Contact Information:
409 Wheeler Road
Suite 165 C
Hauppauge, NY 11788
631-234-0467
New York Self-Determination Coalition
New York Self-Determination Coalition is a grassroots organization of parents of people with developmental disabilities that live self-determined lives. Their website has information on utilizing community support services through OPWDD for transition and post-secondary plans.
Contact Information:
nyselfd@gmail.com
Parent Center Hub
Your central “Hub” of information and products created for the network of Parent Centers serving families of children with disabilities. The CPIR is made possible through funding from the Office of Special Education Programs (OSEP) at the U.S. Department of Education. OSEP supports the Parent Center network and the role that Parent Centers play in educating parents and improving outcomes for children with disabilities.
Center for Parent Information and Resources
c/o Statewide Parent Advocacy Network (SPAN)
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100
Grant and Funding Resources
www.itaalk.org/single-post/2020/04/13/new-york-funding-sources
Disability Friendly Access to Leisure Activities
2023 DIRECTORY OF BEHAVIORAL HEALTH SERVICES (1).pdf