Why do you need to know about Autistic masking?
What is Autistic Masking?
"There is a misconception that Autistic Masking is a series of social strategies, used by Autistic people to navigate social sitations. Things are picked up, used and then discarded. It is so much more complicated than that though....Our understanding of Autistic Masking needs to be reframed, because Autistic Masking is a trauma response to stigma, invalidation and marginalisation....The Mask becomes a near permanent projection and uses up an enormous amount of energy to sustain itself. It causes schisms in an Autistic person's identity and research is now showing that Autistic Masking has direct links to the poor mental health outcomes in the Autistic community: the high rates of self-harm, the high suicide rate, the early average range of death."
--Kieran Rose, The Autistic Advocate
Autistic Masking includes:
conscious and unconscious coping mechanisms an Autistic develops to appear less Autistic so they can fit in to societal expectations of normal (Pearson & Rose, 2021)
is a trauma response which includes things like
making eye contact,
refraining from stimming (self-stimulatory actions which support self-regulation),
hiding sensory distress, and
changing body language to appease others (Pearson & Rose, 2021)
Why do Autistics mask?
rampant, yet detrimental survival technique for Autistics who can not exist authentically in their
workplaces and communities because they already face stigma and marginalization
(Pearson & Rose, 2022)
non-Autistics have preconceived limited expectations of Autistics, view them as child-like, and dehumanize them (Cage et al., 2019), so masking is a survival method
Autistic staff fear disclosing at work because they have seen or experienced the impact of disclosing
previously and are afraid they will be presumed incompetent and have limited career opportunities
(Wood & Happé, 2023).
Autistic Masking can manifest in the ethical dilemmas Autistics face as they perform their day-to-day
roles using required assessment tools and interventions which are not Neurodiversity aligned
(Manalili, 2022).
witnessing actions by colleagues or families who caused trauma to Autistics equates to a trauma response
in the Autistic observer; and coping with this can present a moral and mental health dilemma, causing internalized ableism or masking.(Guthrie, 2023).
Detrimental Impact of Masking
is a contributing factor to the high rate of suicide in the Autistic population (Cassidy et al., 2018)
significant decrease in energy levels amongst Autistics at the end of the day, not due to their work
with students, but rather because of the taxing nature of collegial small talk and ill-conceived sensory environments (Wood & Happé, 2023)
Barriers to Unmasking
Even though current research confirms that the demand to “pass” as non-Autistic is harmful,
passing demands are pervasive in the goals set for Autistics in and beyond clinical settings (Ne’eman et al., 2023)
Praise of disabled educators (and students) with seemingly lower support needs can unintentionally
increase the pressure to appear “normal”, reinforcing ableism and stigmatization (O'Connor, 2023).
In keeping with Autistic adults who have recalled their own traumatic experiences with ABA, which aimed
to make them appear non-Autistic (Anderson, 2023), Autistic staff who witnessed injustices against Autistic students (such as forced masking) have felt frustration, ethical turmoil and powerlessness or complicity,
particularly in settings 'designed' to support Autistics (Wood & Happé, 2023).
Above Infographics were created by Emily @21andsensory showing what Autistic Masking can include.
Take the Camouflauging Autistic Traits questionaire
The CAT-Q measures how much a person is camouflaging(now more commonly known as masking) and therefore suppressing Autistic proclivities. This is important because those who mask heavily may not be scoring very high on traditional autism diagnostic tools. If someone doesn't meet the criteria for Autism, but still thinks they have Autistic traits and could be Autistic, masking could be why.
There are three subcategories in the CAT-Q:
Compensation — Strategies used to actively compensate for difficulties in social situations.
(e.g., copying facial expressions and gestures, or learning how to engage socially from books or movies (see Autism & movie talk).
Masking — Strategies used to hide autistic characteristics or portray a non-autistic persona.
(e.g., forcing eye contact and making face and body look relaxed)
Assimilation — Strategies used to try to fit in with others in social situations.
(e.g., avoiding interactions or forcing interactions with others, playing a role in situations)
High-masking Autistics are statistically the most susceptible to Autistic Burnout because masking takes a huge amount of brain energy and work, and this diminishes reserves very quickly. Many who are high masking are also less likely to have in place needed supports because they "pass" as not having the needs. Learn about Autistic Burnout below.
Autistic Burnout
What is Autistic Burnout?
Autistic burnout is what can happen when Autistics expend all their resources trying to function in a world that is not made for them. It's a full exhaustion of internal resources.
“Autistic burnout is a syndrome conceptualized as resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports. It is characterized by pervasive, long-term (typically 3+ months) exhaustion, loss of function, and reduced tolerance to stimulus.” (Raymaker et. al, 2020)
What to Watch For
Pervasive fatigue Increased sensitivities Loss of executive functioning skills (and more)
Check, Reflect and Apply Your Learning
There are three tools to support your learning and reflection:
1) Use the Flash Cards to familiarize yourself with key terms and concepts.
2) Reflect using prompts in the Autistic Insights and Reflection Journal. Should you prefer to reflect in another format, here they are for your reference:
Reflect on what you have learned about the concept of Autistic Masking as a trauma response to stigma, invalidation, and marginalization. How does Autistic Masking impact the mental health outcomes in the Autistic community? How can you make a difference?
Consider the impact of lack of support and recognition on the development of Autistic Burnout. How does a lack of understanding and support from family, friends, educators and coworkers contribute to the risk of burnout?
3) Participate in the Camouflauging Autistic Traits Questionnaire (CAT-Q), which measures how much a person is camouflaging(now more commonly known as masking) and, therefore suppressing Autistic proclivities. This is important because those who mask heavily may not be scoring very high on traditional autism diagnostic tools. If someone doesn't meet the criteria for Autism, but still thinks they have Autistic traits and could be Autistic, masking could be why.
For Digging Deeper into Autistic Masking and Burnout
The Autistic Girls' Network created
Autism, Girls and Keeping it all Inside. It provides a variety of helpful strategies for understanding the causes of masking, its impact on mental health and what to do about it.