18. Patient and Public Involvement and Engagement (PPIE)

18.1. 1. Ensure engagement with the RDN Public Partnerships Community of Practice with RRDN representation through a nominated representative. These RRDN representatives will be expected to attend regular meetings as well as actively contribute to any working groups or other activities that arise.

18.1.2. Deliver the Research Ready Communities initiative: identifying engagement opportunities with underserved communities using local and co-produced community engagement strategies aimed at increasing awareness and diversity of participation in research.

18.1.3. Support engagement and involvement of the public and patients in specialty areas and settings, including through the public Research Champions scheme.

18.1.4. Conduct the Participant in Research Experience Survey (PRES) with Delivery organisations, working with the RDNCC for national collation, using PRES to support improvement in research delivery and participation at both a national and local level. The survey will elicit participants’ views of their experience of taking part in research and will also demonstrate to participants, and all those in delivery of care or services to them, that we value their contribution and their experience of taking part in research.

18.1.5. Work with patients and the public, partners, researchers, health and social care staff, and communities to increase volunteer registrations to JDR and Be Part of Research.

18.1.6. Support the involvement of local public partners with RDNCC opportunities, including speaking events, national consultations and strategic national groups.

18.2.1. The research that the NIHR RDN helps to carry out is for patient and public benefit. Patients and the public are central to what we do.

18.2.2. Additional supporting information is available in the RDN POF Support Pages.