CPMS ID: 56060 IRAS ID: 324034
INDIGO Community: Investigating DIGital Outcomes in a community setting for patients living with and beyond a diagnosis of cancer. A questionnaire based study to understand more about the long-term outcomes and service use of patients living with and beyond a diagnosis of cancer.Â
Updated 27/02/2025
Inclusion Criteria
1. Anyone over the age of 16 who has been diagnosed (receiving treatment is not an inclusion criteria although we expect as this is a long-term survivorship study all participants will have received treatment) for any type of cancer in the past (> 12 months) can participate.
2. Participants who self-identify as having previously (time unlimited) received a diagnosis of cancer, based on histological, radiological, or clinical grounds (primary and/or metastatic cancer). Current treatment is not a barrier to participation, but the emphasis is on patients who have completed treatment.
Participants need to be able to access the secure online platform, using a mobile device or computer.
3. Have capacity and be able to provide informed consent via the online platform.
4. To be able to understand, read and write English, with or without support from a trusted individual e.g., friends, family, carer.
Exclusion Criteria
1. Participants recently diagnosed with cancer (less than 12 months ago).
2. Participants unable to access secure online platforms.
3. Participants who do not have sufficiently good understanding of written English to complete the PROMs and are unable to be supported by a trusted individual to complete the questionnaire.
4. Participants lacking capacity and unable to give informed consent.
Disclaimer:
This search has been designed to only identify people who were over 16 at their time of diagnosis and who are more than a year after they have been diagnosed. The search identifies cancer diagnosis as recognised by QOF therefore low grade, indolent cancers are included in the search and these patients are eligible for the study.
Please note the resources provided are designed to assist with the identification of potentially suitable patients and to appropriately code these patient if required.
These resources have been developed based on the criteria provided by the relevant study team and whilst every effort has been made to make them universally implementable they rely on read codes and the data stored in the individual practice's clinical system. These resources are intended to assist with identification but should be used in conjunction with clinical oversight and a clear understanding of the study parameters.
While we endeavour to keep the information, tools and resources provided up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the tools provided for any purpose. Any reliance you place on such information is therefore strictly at your own risk.
In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from loss of data or profits arising out of, or in connection with, the use of the tools provided.