Research Inclusion

Below are some resources and links to further reading we have compiled to help with creating equity of access to research and embedding a culture of diversity and inclusion in health and care research - from design through to dissemination.

Research design

Trial Forge - Ensuring your trial is designed for all who could benefit

PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes

Helping to ensure public involvement informs ethical review: checklist for applicants

How to make a decision on ethnicity

Addressing the gap for racially diverse research involvement: the King’s Model for Minority Ethnic Research Participant Recruitment

The inclusion of adults with intellectual disabilities in health research - challenges, barriers and opportunities: a mixed method study among stakeholders in England

Commercial

PharmaTimes September 2023 magazine

Advancing Clinical Trials

Engaging under-served communities in commercial research: A scoping exercise

Evidence of inequalities

Rural digital health inequalities

Enhancing Minority Participation in Clinical Trials (EMPaCT)

Addressing health inequalities in diabetes through research

The disease of disparity

The disproportionate impact of COVID-19 on BME communities

Health equity in England - the Marmot Review 10 years on

Exeter Health Library resources on Health Inequalities Research

Including older people in health and social care research: best practice recommendations based on the INCLUDE framework

Ageing in coastal and rural communities

Evidence hub: What drives health inequalities?
VIDEO: Population health

Multiple long-term conditions (multimorbidity) and inequality- addressing the challenge: insights from research

Barriers to recruiting underrepresented populations to cancer clinical trials

The forgotten, the ignored and the under-served – trials cannot continue to fail large parts of society

Poverty stigma: a glue that holds poverty in place

Addressing inequalities in clinical trials

Workforce

Making the UK a global leader in inclusive and diverse trials

What is Research Inclusion in the NIHR?

Leading for all: supporting trans and non-binary healthcare staff

Health and Care LGBTQ+ Inclusion Framework

Trans allyship action checklist

Training

CRN Yorkshire and Humber Cultural Competency poster

CRN Yorkshire and Humber Reverse Mentoring scheme

The Together Project: supporting the delivery of good practice in maternity services for parents with learning disabilities

RDS Equality, Diversity and Inclusion Toolkit

Improving inclusion of under-served groups in clinical research: Guidance from INCLUDE project

Webinars from Health Education England on health inequalities

Including older people in health and social care research: best practice recommendations based on the INCLUDE framework - Professor Vicki Goodwin

Addressing the barriers to people-centred clinical research

Communications and engagement

Writing in plain English - the inclusion challenge

Improving inclusion of under-served groups in clinical research

Equality, Diversity and Human Rights Week 2023

Understanding who is and isn’t involved and engaged in health research: Feasibility of capturing and analysing demographic data related to patient and public involvement and engagement within a clinical translational research environment

Government Communication Service Equality, Diversity and Inclusion action plan

Ethnic Minority Research Inclusion videos

COVID + Me monologue series videos

NHS England - Increasing diversity in research participation

University of Exeter EDI calendar 2023