How Harper and her mom are using their voice and their story to change how the world sees Harlequin Ichthyosis.
Why awareness, education, and equitable research are critical for families affected by HI.
Unique challenges of rare disease research, and the importance of advocacy and collaboration in finding cures with Dr. Christina Lam.
Meet Christopher Anselmo and learn how he has grappled with the weight of his LGMD2B diagnosis, drawing from it to discover a new source of strength.
Why awareness, education, and equitable research are critical for families affected by LGMD.
