Over 7000 rare diseases impact people worldwide and have insufficient research and treatment available due to how infrequently these conditions occur. Historically, research has placed time and resources into topics that have profit, repeatedly underrepresenting rare diseases. For rare disease patients, they often do not receive a diagnosis for their disease, let alone be supported by treatment that makes a difference. RAREserved seeks to amplify voices to make knowledge about rare diseases accessible and engaging by telling real stories of those impacted by a rare disease. RAREserved conducts interviews and creates narrative articles that shares an individual's experience. We seek to educate our audience on rare disease topics and advocate for change and awareness of rare diseases as a marginalized community in healthcare. RAREserved recognizes the importance of diversity, equity, and inclusion in healthcare and research. Our mission is to raise awareness and knowledge for the pursuit of better change.
The Interviewing team manages outreach to individuals for interviews, conducts interviews, and prepares scripts for the Writing and Research teams to follow.
The Writing team works on the writing and editing of articles, ensuring accurate reporting of the rare disease topic while working closely with the Research team.
The Research team works with the Writing team to perform in-depth research on the rare disease of focus, ensuring accuracy and high-quality content.
Ready to be part of the Team? Come meet with us!
We will be at HSEB 145 from 4:30-5:30 PM every Monday for Winter Quarter '26