Click on an underlined term to jump to its explanation, or browse through all of the drop-down options.
Medical Waiver Programs help ensure that people with intellectual disabilities receive the services and support they need to lead self-determined and valued lives within their communities. Services are based on the income of the person with a disability and provide funding for a personal attendant, respite, therapies, adaptive aids, home and vehicle modifications, etc.
The demand for community-based services and support is greater than the allocated services, therefore there are long lists for those interested in receiving services. These lists are up to 10-12 years, so get on the lists as soon as possible!
For a list of the seven Medicaid Waiver Programs in Texas, click here and scroll to the section titled, "Independent Living."
(Blackboard, Inc., n.d.)
The Texas ABLE Program was established to "encourage and assist individuals with disabilities and their families in saving funds to pay for many disability-related expenses critical to maintaining the individual's health, independence, and quality of life."
This is a tax-favored vehicle, similar to a 529 college savings plan, but has a "payback provision" (requires the trust, upon the death of the beneficiary, to use remaining trust funds to repay Medicaid or any other program benefits the beneficiary received while alive).
For a person to qualify for an ABLE account, they must:
Have a disability that began before age 26,
Be a recipient of Social Security Income (SSI) or Social Security Disability Insurance (SSDI), or
Meet other disability requirements.
ABLE account money can be used for ANYTHING, as opposed to a Special Needs Trusts.
You can only contribute $17,000 a year to most ABLE accounts as of 2023. If the account, in addition to other resources, exceeds $100,000, SSI benefits will be suspended. Manage these accounts carefully to protect eligibility.
To learn more, click here.
The ADRC provides a person-centered, community-based environment that promotes independence and dignity for individuals. They also provide easy access to information and one-on-one counseling. This counseling assists consumers in exploring a full range of long-term services and supports to meet their needs and/or situations. Other resources are available to support the needs of family caregivers. Find your local ADRC here.
A healthcare program for children without health insurance whose family income exceeds the Medicaid limit. Their website can be found here.
This is a program that provides home and community-based services to people with related conditions as a cost-effective alternative to a care facility for individuals with intellectual disabilities. Those interested in receiving CLASS are placed on an interest list by calling 877-438-5658 and asking for the CLASS Waiver Program. Their website can be found here.
This is a program that provides individualized services and support to people with intellectual disabilities who are living with their families, in their homes, or in other community settings, such as small group homes where no more than four people live. To sign up for HCS lists, parents should contact their local MHMR agency. There is no age limit. Individuals must be intellectually disabled or have a related condition, such as autism, that results in deficits in adaptive behavior, have a full-scale IQ of 75 or below, and be eligible for Medicaid. Their website can be found here.
This is a program that offers low-cost Medicaid services to children with disabilities in families whose income exceeds the Medicaid limit . Their website can be found here.
Local agency that is administered through ADRC and offers services to individuals who have an intellectual disability (ID) or a related condition that occurred prior to age 18, (IQ below 75). Services cannot be refused due to an inability to pay. If a person deems eligible, MHMR will assist in applying for Medicaid. To apply, you must go to your local agency for an intake evaluation. A case worker will be assigned and help with applying for or scheduling the following services:
Respite funds
Supported employment
Group homes
Home and Community-based Services (HCS) waiting lists
Other supports
Google your local MHMR agency.
Program that pays benefits to you and certain family members if you are "insured." Their website can be found here.
A way to store an unlimited amount of money or property for a person with a disability or health care needs without affecting their federal and state benefits.
Two common types:
Self-funded trust: holds money or property that your child puts directly into it. This kind of Special Needs Trust has a "payback provision" (requires the trust, upon the death of the beneficiary, to use the remaining trust funds to repay Medicaid or any benefits the beneficiary received while alive).
DO NOT list their name directly as a beneficiary on the trust or anywhere else or else they will directly get the money and lose their SSI benefits. It will need to say something like, "Testimentory trust for ____." Talk with your attorney about this.
Third-party funded trust: funded by pretty much anyone other than the child. A properly designed third-party trust does NOT have to include a payback provision, meaning that the government has no right to the funds when the beneficiary dies. This is most likely the type of trust you want for your child.
How to create a Special Needs Trust
Work with an estate attorney to help you with both a will and the legal side of setting up your trust.
Work with a financial advisor who can help you plan and manage the money or property that you'd like to put into the trust.
Tax Returns
File Form 1041 and use the Trust's Federal Identification Number/Employer Identification Number/Taxpayer Identification Number when doing a tax return for a Special Needs Trust.
Never use your social security number or the disabled beneficiary's social security number for Trust taxes.
Never complete Form 1040 for the Trust.
Take Note
Trust tax rates are generally higher than individual tax rates.
Special Needs Trusts cannot pay for food, rent, or pay cash directly to the beneficiary.
Special Needs Trusts can put money into ABLE accounts.
The assets in a Special Needs Trust are NOT the assets of the Disabled Beneficiary or of the Grantors.
A Special Needs Trust MUST have its own Federal Identification Number (FIN, EIN, or TIN) to be valid.
Federally funded income supplement program that provides cash in the form of a monthly check to meet the basic needs for food, clothing, and shelter for people with disabilities. Their website can be found here.
Formerly known as Food Stamps; provides low-income individuals assistance with purchasing food through an electronic debit card. Their website can be found here.
Serves youth and students with disabilities to help prepare for post-secondary education and employment opportunities. Students may be eligible for vocational rehabilitation services if they
Have a disability that results in substantial barriers to employment,
Require services to prepare for, obtain, or advance in employment, or
Are able to obtain, retain, or advance in employment as a result of services.
Services are based on eligibility and individual need, to help the students prepare for post-secondary education and employment opportunities. Their website can be found here.
This was formerly known as the Texas Department of Assistive and Rehabilitative Services, or DARS. This program can help people with physical or mental disabilities prepare for, find, or keep a job. Their website can be found here.
Offers grants for medical treatment, transportation, lodging, vehicle modifications, assistive technology equipment, and other costs not covered by insurance. Their website can be found here.
Offers free and low-cost home health care equipment, vehicle or home modification support, and more. Their website can be found here.
Gives medical and sensory equipment to children 6 weeks through 10 years with disabilities and special health care needs. Their website can be found here.
This page on the Navigate Life Texas website has a list of more organizations that may be able to help with different special health care need costs. Their website can be found here.
Offers care for children with disabilities or special health care needs even if a family cannot pay. Their website can be found here.
Offers care for children with disabilities or special health care needs even if a family cannot pay. Their website can be found here.
Helps families pay for medical costs for children 16 years and younger. Their website can be found here.
Variety of Texas is a charitable organiation that provides resources and empowering experiences. By providing funding for therapy, wheelchairs, walkers, specially designed adaptive bicycles, vehicle modification for wheelchair accessibility, prosthetic limbs, life experiences like throwing out the pitch at an MLB game, or even going to the movies for the first time, they aim to strengthen not only a child's physical abilities, but their confidence as well. Their website can be found here.
Gives financial help to people with certain conditions for copayments, premiums, and more. Their website can be found here.
Mark Cuban's Cost Plus Drug Company offers safe, affordable medicines at the lowest possible price. Find a medication price here.
Helps you find the cheapest prescription drug costs in your area and has coupons for drug discounts, too. Their website can be found here.
Has a database of drug discount coupons to download and print, and offers a free prescription discount card. Their website can be found here.
Gives grants for treatment, assessments, and equipment. Their website can be found here.
Offers scholarships for swimming lessons, iPads, equine therapy, film school, and gift cards during the holidays. Their website can be found here.
A need-based grant for medical treatments and for nutrition and personal needs not covered by insurance. Their website can be found here.
Offers scholarships for education after high school. Their website can be found here.
For a printable version of this page's information, click here.
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