"According to the last census, one in five people in the United States lives with a disability. Some are visible, some are hidden–but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together an urgent, galvanizing collection of personal essays by contemporary disabled writers.There is Harriet McBryde Johnson’s “Unspeakable Conversations,” which describes her famous debate with Princeton philosopher Peter Singer over her own personhood. There is columnist s. e. smith’s celebratory review of a work of theater by disabled performers. There are original pieces by up-and-coming authors like Keah Brown and Haben Girma. There are blog posts, manifestos, eulogies, and testimonies to Congress.
"Taken together, this anthology gives a glimpse of the vast richness and complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own assumptions and understandings. It celebrates and documents disability culture in the now. It looks to the future and past with hope and love."
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Reading (From the Anthology): "For Ki’tay D. Davidson, Who Loves Us" by Talila A. Lewis pp. 43-49
AND
"If You Can’t Fast, Give" by Maysoon Zayid pp. 50-52
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Supplemental Reading: "HARRISON BERGERON" by Kurt Vonnegut, Jr.
Be polite and considerate (obviously).
Be cool with people having different opinions about the book.
There is no wrong opinion to have about a book (or parts of a book). Say what you feel.
You are allowed to dislike the book.
Yes, even if everyone else loves it.
If you have trouble engaging with the book at any point, we still encourage you to show up. Please discuss why.
Reading the book is not a prerequisite for attending. We are also looking for curious and active listeners for people to yap at. Ask respectful questions. This isn't homework. It's a reprieve.
If enough people hate a book, we can pick a new one. We do not choose to suffer here. If you are miserable, speak up. Maybe other people are too.
Books do not have to center around disability, although you can imagine why we recommend them. Books can also just be an escape.
“Demystifying Disability: What to Know, What to Say, and How to Be an Ally” by Emily Ladau
“Disability Visibility: First-Person Stories from the Twenty-First Century” edited by Alice Wong
“Black Disability Politics” by Sami Schalk
“Not So Different: What You Really Want to Ask About Having a Disability” by Shane Burcaw
“Being Heumann: An Unrepentant Memoir of a Disability Rights Activist” by Judith Heumann
“Crip Kinship: The Disability Justice & Art Activism of Sins Invalid” by Shayda Kafai
“Care Work: Dreaming Disability Justice” by Leah Lakshmi Piepzna-Samarasinha
“Crip Up the Kitchen: Tools, Tips, and Recipes for the Disabled Cook” by Jules Sherred
"The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures" by Anne Fadiman
“The Poisoner’s Handbook” by Deborah Blum
“Medical Apartheid: The Dark History Experimentation on Black Americans from Colonial Times to the Present” by Harriet A. Washington
"Stigma: Notes on the Management of Spoiled Identify" by Erving Goffman
“The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love with Me” by Keah Brown
“Year of the Tiger: An Activist's Life" by Alice Wong
“Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body” by Rebekah Taussig
“Haben: The Deafblind Woman Who Conquered Harvard Law” by Haben Girma
“Look Me in the Eye: My Life with Asperger’s” by John Elder Robison
“A Face for Picasso: Coming of Age with Crouzon Syndrome” by Ariel Henry
“We’ve Got This: Essays by Disabled Parents” Edited by Eliza Hull
“The Story of My Life” by Helen Keller
“Nothing Without Us” Edited by Cait Gordon and Talia C. Johnson
"Planet of the Blind" by Stephen Kuusisto
“A Curse So Dark and Lonely” by Brigid Kemmerer
“A Time to Dance” by Padma Venkatrama
“Show Me a Sign” by Ann Clare LeZotte
“One Two Three” by Laurie Frankel
“True Biz: A Novel” by Sara Novic
"Cathedral" by Ray Carver
“Her Body and Other Parties” by Carmen Maria Machado
"The Hollow Places" by T. Kingfisher
"The Secret History" by Donna Tartt
"Just an Ordinary Day" by Shirley Jackson