🌺May Updates💐

Home.

May 22nd, 2025

Well, he made it through all of the radiation and even started to feel better as the day went on. Here's hoping we can continue this beautiful climb upwards to ensure his pain is gone and the cancer takes a hike!

One more treatment on his spine tomorrow and then we are done!

GammaKnife.

May 21st, 2025

This was certainly eye-opening.

From what I was told, back in the day - they used to use metal frames on people and would screw them into your head for these types of radiation treatments.

Thank you 9lb 8oz baby Jesus for technology paired with brilliant minds.

Instead, Carson received an MRI to plan out the head Gamma Knife treatment. Then, had a pliable & breathable mask molded to his face and then a special sticker on his nose to know where to position him while in the machine for the Gamma Knife radiation on his head. He got to listen to Eminem and they were all incredibly sweet to him and made sure he was calm and relaxed over this whole crazy situation. He even got to keep his mask after! While it looks glow-in-the-dark, it isn't.

He is moving more and smiling more. He is feeling better and better as the days go on. They adjusted his meds a bit and things are looking better and better as the days progress for him mentally and physically.

I hope this continues for his sake! We missed his cheeky smiles and humor!

Medicated.

May 20th, 2025

Carson struggled with pain as well as being coherent from pain control. 

It was heartbreaking. 

In fact, he doesn't remember the day prior... barely remembers the ER.

When we came back to the room from radiation, he asked what time it was then looked at the clock and immediately asked why there were EIGHT clocks on the wall... then said "ohhhh I don't like this". 

Yup. Same kiddo.

After the clock situation, he fell asleep for a few minutes with the remote to the Roku in his hand. The Roku had a space theme on the TV as a screensaver. He woke up and asked if we were in a spaceship. Before I could answer, he said to me "turtles, bowls and measuring cups... amiright?!".

😐

When his pediatrician came to visit us a little bit after that debacle... Carson was in and out of a sleep while she was standing there talking to me about this whole new finding after the already devastating relapse, then out of nowhere, he said "hey I remember you" then fell back to sleep.

The nurse and I discussed how being on all of those meds were clearly helping the anxiety part but was seemingly overmedicating and making this even more extra than it needed to be. We opted to dial back on the anxiety meds mixed with the opiates he was being given IV. All in charge agreed and we were finally getting our boy back.

We also discussed how the chemo that we were told he would start today has changed to something different per our oncologist. She hung the new chemo and started that this afternoon. I was elated that our onocologist got this changed before I had to step in and advocate. We are SO lucky to have her.

I will continue putting on a brave face for him but I'd be lying if I told you that I didn't break down the minute he fell asleep. However, I try to also not let it consume me since time isn't on our side here. I got to work doing more research and more organization of the growing med list, doctors, treatments, etc. If you aren't on top of these things, it gets messy really quick. You have to turn on business mom mode and get to work. You aren't missing anything but sleep... and while still important, this research and organization is more important given the time you have right now.

Chemo treatment 1 of whothehellknows done. ✅

Radiation.

May 19th, 2025

Tumor board had their meeting and that included a large team of docs; Neuro surgeons, Radiation docs, oncologists, ortho docs, etc.

They came to the swift conclusion that doing spinal de-compression surgery as previously thought, would be detrimental to Carson's recovery from this disease.

As a collective unit they decided that emergent targeted radiation and chemo was his best bet to come out of this.

So, after their meeting and a lot of discussion, Bob and Carson were met by the Pediatric Transport Team called "STAT" to transport them from J12 at Oishei through the hallways of Oishei, Buffalo General Hospital and then finishing their transport at the holding day hospital at Roswell(the hallways connect each building - pretty amazing!) to start planning for the targeted radiation therapy.

The planning portion consists of MRI/CT images to plan out where is the safest spots to target the bad cells with the least amount of healthy cells so to speak. They will then map out on Carson's body where to "shoot" the radiation. He received small stickers the size of quarters on the target along with paint markers on his body.

I arrived just as they got to Roswell and then was able to go through the consult phase that most people have an appt for but we were an emergency case so we got ALL the appts in a speed round, per se, and then the planning then, the initial treatment began. We added his scapula to the therapy as that was where the relapse had occurred and we had nothing to gain from omitting it from treatment at this point.

Oh, and the lesion they found on his skull... that will be targeted in a different type of radiation called "Gamma Knife". This will come Wednesday if treatment is going well. He should only need one of those treatments as of right now... but as we all can tell at this rate - every single day is bringing new challenges, new questions, new ideas and new obstacles.

It just doesn't seem real that this is our life again, yet now, there is ZERO protocol that fits...  

Sadness.

May 18th, 2025

So.much.sadness.

Unknowns inheritably make people scared, sad and anxious. That is putting it lightly. 

Carson spent most of the day heavily medicated. Falling asleep pairing his earbuds to his phone as you see above in the photo on the right. We had some moments of time together but that was mainly talking about random YouTubers or asking what I could get him to make him more comfortable, feel better, or, to eat/drink. The day was long...the minutes felt like hours and the day felt like moving through Jell-O.

We were told chemo would start tomorrow. One that has different side effects than we are used to. One that I heard doesn't do much in a situation like this while I was deep in the research, so it was hard to hear. I decided before worrying over that, I would consult our oncologist and not even bother asking the on-call that visited us.

We also heard things like "poor prognosis" "not good" "things are getting worse"... and all in front of this child. 

This almost 14 year old CHILD. 

Sure, when asked (in front of him) I said he knows where this is in his body in reference to his cancer but I didn't think I needed to say HE IS CONSTANTLY ANXIOUS AND CONSTANTLY WORRIED PLEASE DON'T BE REALLY REAL FOR HIS PSYCHE kthankssomuchreadtheroombye.

However, I guess that is something that you must explain now-a-days. Who would have thunk, but I digress... to put it simply, we aren't ok here.

I just, sobbed. I audibly sobbed, even the nurse walked out in tears...

For the first time in front of Carson and with Carson, in a hospital room, I sobbed with him sobbing in my arms. 

and we sobbed... 

and on the phone with Bob, I sobbed and he even asked if Carson was with me and awake while I sobbed because it wasn't like me to just sob like this with him in the room...

and then, he fell asleep and I sobbed more....

again and again and again...in the bathroom, in the hall, in the elevator, in the car... it felt like an effed up Dr. Seuss book!

And then, in pure bull-headed-mama-bear form I went home that night and instead of going to sleep early like I told Bob I would do(sorry not sorry, my love) I got to work on research, new ideas and reaching out to others that have relapsed. 

I refuse to give up as long as our baby will fight AND his quality of life is still optimal.

#whateverittakes #nomatterwhat wasn't a joke. Oh and F%&# Cancer. ESPECIALLY Ewing's Sarcoma.

Scared.

May 18th, 2025

When I tell you that we are scared, what I really mean is that we.are.petrified.

The way people were flooding into the room in the hours most are sleeping... trying to have you recall every little thing to help the ones asking the questions - was not for the weak. You had to be ON when all you want to do in this moment is SHUT OFF.

It started with being woken up every 5 seconds(maybe every 20 minutes but felt like seconds) with docs, residents and nurses asking all the "w" questions - who, what, where, when, why.

Then, they hook Carson up to oxygen with a humidifier connected to it. If you haven't experienced that situation (and while on little sleep) let me paint a picture for you really quick:

• The room already has a very faint fan sound, as each room on this floor has a specialized air purifier, per se, for the room. (You know when it stops working or is getting maintenance because your ears ring after you have been there a while - alternatively, when you leave the door open too long an alarm sounds!) 

• Then, once this humidifier is hooked up to the oxygen shushing sound, you now get an odd experience that seems like... a water feature in your room. The kind that makes you feel the need to pee - even after you empty your bladder.

Carson needed oxygen because he was "de-sating" (losing oxygen saturation) from being heavily medicated. The oxygen was essentially my babysitter because prior to that, I would have to raise the bed or say "hey love, can you take a big breath for me please?" and then he would groan and do a big ol' breath, then sigh... rinse, repeat for the next hour until I looked at the nurse and said - please, there has to be a better way of doing this, I will eventually need to sleep... she agreed that this was silly and got the cannula and the humidifier to keep his airways from drying out and causing a bloody nose.

After that, plus the questions... I was finally about to fall asleep, until I woke up to whispers(mom ears are no joke!) but then, I will be perfectly honest - I thought I was dreaming because I saw a nurse with bottles and she was shaking them and had tubes... I truly thought I was fusing reality with dreaming like a nurse was bartending... sleep deprivation is so bizarre! Come to find out, it was actually a nurse doing blood cultures as they were trying to make sure Carson didn't have a rogue infection to explain his fevers. They use small bottles and I have never seen this before so it was all brand new plus my sleep deprivation made for an interesting experience.

We will know more tomorrow... I hope. 

ER(Part 2).

May 17th, 2025

Part 2 isn't easy...

Part 2 will tell an awful part of the story...

Part 2... brings Bob to be with us right before we went from the MRI back to the ER room.

In between Carson spiking fevers and being heavily medicated, there were bright spots. 

He turned on the movie "Cars" for all of us because we always ask if he will turn that on instead of watching YouTube... when that was over, he turned on Super Mario Bros, because, why not have some random laughs? He held some conversations with us when before being medicated properly for his pain, those conversations consisted of the "please help me out get out of pain" type.

Then, he fell asleep. And snored like a little puppy. 

Bob and I nervously stared at the movie that I can assure you, we weren't watching but yet we were playing things over and over in our heads about how this was going to play out. Almost as if our subconscious knew what was about to be said. We held our heads up, we smiled at Carson when he would wake up, we smiled at each other. We held each others sweaty hands and made random comments like "you think no news is good news?" "Did they forget about us?"...

Every human that resembled a doctor or nurse made us sit a little taller when they walked by as we waited for the results from the MRI. Then, the resident that I met in the beginning, came in and asked us to come with her to a "Family Consult Room"... the ones you see on TV that the hard news gets told in. The one you feel like the walls are already closing in on as you sit and wait. The one that always has a restock of tissues in. Except, in true form for our luck - no tissues found in this closet, err, consult room.

This is the part that I didn't want to write nor did I want to hear come out of a mouth at 1am. None of us did.

She said(and not exactly verbatim but I will give you the cliffs notes version so I don't cry while typing this time):

The results of the MRI showed that Carson has tumors all over his vertebrae and there is one that is extra concerning because it is compressing his spinal cord. He will be admitted tonight on modified bed rest to the Hematology/Oncology floor(J12 where Carson used to stay for chemo). Also, we will have Neuro docs come in for a consult tonight to see you guys, hopefully before you go up. Do you have any questions?

Yes - what the actual #*$^#$*$#(&%$*(#@&%#$(*^%(*#^$@

Then - Neuro doc came in and discussed spinal decompression surgery but the tumor board will need to meet on Monday morning to decide best course of action since his cancer has spread in such a short time. Also, since he is only losing feeling in certain sections of his body and the weakness isn't paralysis, per se, they may be able to just get a handle on it with IV steroids and emergent chemo and/or radiation. He also found a lesion on his skull. Not his brain but the inside part of the bone of his skull. It wasn't on the report so he was going to make sure to point it out to the attending when they come in later in the morning.

So, we will be getting admitted at 1:30am (Bob will go home for Owen & Gavin) then Carson and I will get to our room. 

Then... our family is basically... living by the hour????????????????? I don't know. How can something so evil become so overwhelming so fast?!

ER(Part 1).

May 17th, 2025

His pain is growing and walking is becoming difficult. It isn't making any sense anymore. 

He also has numbing on the right side of his mouth. 

Something is off... but what it is if it isn't his distended bowel? His PET scan showed the cancer spread, yes, we know that but what is happening?!

His pain is breaking through all of the meds now... he is getting weaker and needing assistance for the smallest moves. He isn't eating well or drinking enough. He is struggling to get comfortable. Something is wrong and it is getting scary watching how fast things are changing.

I called the on-call doc at Roswell... he told us he would feel best if we went into the ER to get seen since there is weakness that is growing, meds aren't working and the numbing on one side of the face.

The photos of the socks my child picked out above come with the comment... "why not have a little fun going to the ER amiright?!"

Yes, they are dog paws... 

Yes, they made EVERYONE'S day that saw him. 

YES, he got 2nd looks thinking he was having SERIOUS issues with his legs & feet at first glance. 

AND, yes, there was a student nurse examining him after triage. I felt compelled to point them out to not add to the day for her...or me.

Luckily, I have some pretty amazing humans in my life that work all over the place, one of which works at Oishei and came in right when I needed to see a familiar face without me even telling her we were there. 

Then, as we got Carson comfortable, they finally came in and told us about the imaging that Carson would need to go for. It was a MRI of his head and spine and it would likely take up to 3 hours.

That amazing human I told you about... she made sure to continually check on me as I waited alone through the 3 hour MRI of his brain and abdomen. 💛A ~ I hope you know how much all of that meant to me!💛

Part 2 up next...

Southern Belle Diner.

May 17th, 2025

7am until 3pm is a fundraiser for Carson at Southern Belle Diner. They have basket raffles and 20% from all sales from the the day, go towards Carson's medical expense fund.

It is truly mind blowing the ways life deals it's cards. Everything happened so darn fast on Facebook, that I must admit, I don't know how it even came to fruition. 

I *think* the connection started with Dawn from Depew's Little Pantry posting about Carson's story and Southern Belle Diner picked it up. Cory, the owner of Southern Belle Diner, reached out to be sure it was ok to use his picture and name on his flyer and OF COURSE I agreed. The minute I told Carson, he was so excited especially when it comes to a chef reaching out! Southern cooking is right up his alley!

When I talked with the owner, Cory, he was so sweet, understanding and genuine. He gave me a sense of personal common ground... almost like he knew what we all were going through from a first person sense. That is to be determined at a later date when he invited Carson for breakfast & a private cooking lesson! (Carson lit up when he heard that!!)

Needless to say, Cory put the info out on Cumulus Media(the radio stations) and then Taylor Anthony from WKBW reached out to do an interview... here is that interview that both myself and Cory were in.

We wanted to be there today in some capacity - meaning - whether it was just one of us with 2 of the boys (since Carson was in pain and feeling absolutely awful) or even one of us with 1 of the boys. However, Bob and I took shifts with Carson all night so we could try to sleep a little since sleep wasn't happening for Carson. We heard from SO many people how incredible it was, so thank you to all who showed up for Carson! We love you all for showing this diner your support AND for Carson!💛

Flags.

May 16th, 2025

Life is funny sometimes.

Connections/friendships you make when you're younger become hit or miss as you grow. 

You never know who is still going to be there like they were when you were younger. Story of time I suppose. 

I happen to be very lucky, I have friends from when I was school-aged that have been there through good and bad. We can pick up where we have left off at any given time. I wish time was easier to navigate, and these days, it is more fleeting than it ever has been so sometimes staying connected is tough. However, I will say I am VERY lucky to have friends from school and beyond that understand more than ever.

Back to the point of this post...

Who would have ever thought though that you have kids and their friends, through familial connections, you find a commonality?

That very thing happened to us. And we are so lucky to have that!

Ace Flag created the amazing flags pictured above, from the designs that Carson and I worked on together. And executed them ever so beautifully! I could not be more pleased with how incredible these turned out! Click on the photos to be linked directly to the pre-order link fundraiser for them!

Thank you Ace Flag & the entire V Family for your incredible generosity! 💛🐧💙

Unrelenting.

May 14th, 2025

See that title, good grief, if there is a more powerful word than that, let me know but that is where it stands right now with this poor love of mine and the only way to describe Carson's mystery back pain.

No, not the pain that was in his scapula that we knew about, noooo of course not. 

This pain was middle back but also was lower back. It took turns. 

It gave constipation 'vibes' if you will. Yet - we did a full clean out the other day as if he was doing a colonoscopy the following day and still, no relief from the pain.  

After speaking with the visiting nurse, she talked with the RN at Roswell and ultimately, his doctor sent us for an X-Ray at Roswell on his abdomen and sacral/lumbar area.

The results? Large distended bowel from the sacral/lumbar imaging. SO, we started on bland foods for some bowel rest but also in case it was nerve related from his scapula cancer spiderwebbing into his muscle... we got some muscle relaxers and made sure to up his pain meds when needed.

I felt ok about the above but it's tricky when you are using narcotics for pain since they slow bowel motility. Time will tell I suppose. Never a dull moment.🙇‍♀️

Experiment716.

May 12th, 2025

AHHHHH!!! 26Shirts! This is incredible!

We were asked to be on the promo of the release to this shirt but unfortunately Carson had so much pain over the weekend that we had to decline. Well, then my crown & post fell out so that sealed it as well. So, being home together to watch the live segment of Del Reid from 26Shirts announcing the design (we saw it for the first time on tv with everyone else!!) was an incredible moment. I just wished that Owen was there since he has loved Stitch since he was super little!

Carson gasped and said "OMG love it!"

I, naturally, cried, because that is essentially all I do these days. SO YEAH.

I applaud Del trying to memorize an explanation of our story - he rocked it and even if he didn't - the fact that he did this for us is nothing short but incredible. Big thanks to him, the team and Andrew Bagilini for the promos and art. 

HUGE shoutout to Carson's elementary music teacher(Owen's current teacher and Gavin's middle school teacher), Miss H., that shared Carson's story with Del for this fundraiser! You better know that we love you!💙🐧💛

Mother's Day.

May 11th, 2025

Happy Mother's Day!

Carson has had a rough weekend full of pain. We aren't exactly sure why or what it is, but we are figuring it out. Not without lack of sleep and confusion but we are getting there. It is seemingly happens when he walks or moves. If he stays still he is ok.

So, stay still we did.

We watched random movies, the boys gave me Legos (of course) and Owen gave his class gift he made in school that you see me pictured with... and if you know me, it was accurate that the word "pizza" made the bigger word in the word cloud. I am basically made of 90% pizza at this rate... but his word cloud gave me some reassurance that I am showing my boys that through the crazy times we are in right now, that kindness, caring & optimism("optamistic" per Owen) should always prevail.

Then, my crown & post fell out while eating pizza(no, I didn't swallow it) and the optimism left my soul. Kidding, sort of but UGHHHH.

💜🩷Happy Mother's Day to all of the fabulous Mother's out there! That includes you, Fur Moms!💜🩷

Music.

May 9th, 2025

Carson's music teacher dropped off a package this afternoon and I was happy to be home when he opened it to capture him going through the box(albeit at the last portion of it but I digress...).

What's in the box? Why, it just so happens to be ALL BRAND NEW accessories/pieces for his Clarinet. All straight from the music company, D'Addario! Inside was a super soft limited edition 50th year anniversary t-shirt, stickers, new mouth piece, a reed case, reeds, etc. You can't exactly tell nor obviously hear this picture, but he knows how expensive these items are and how important they are to keep not only your instrument healthy and working properly but also for him too! He was SO excited and it gave him the push to try out his music again, I will always be grateful for nudges back to the things he loves.

Thank you to Mrs. V & D'Addario Music for your incredible gift & kindness! It is music to our ears! 😎

Steak.

May 9th, 2025

Carson was back at his favorite spot this afternoon - in the backyard grilling with dad and it appears as though that bright ball of light in the sky joined them too this day which is a bit scarce around these parts of WNY!

Although, he wishes for an awesome backyard grilling patio that him and dad have imagined for years - if I recall it goes something like this... A nice covered deck to shield them from the bright sun, rain and snow(yes, they grill all year), with comfortable tall chairs, sink to wash their hands and a countertop to rest things on... and a fridge for refreshments.

These types of days serve as a little reminder that he can supersede and make it through the hard days and get back to what he loves again. 

Kindness.

May 7th, 2025

Our friends are incredible. They want so badly to help us in any possible way they can.

One of our friends reached out to the owner, Dawn, of "Depew's Little Pantry" to ask if she could post Carson's GoFundMe on her FB page.

Well Dawn came through in an even bigger way. 

She read Carson's story, and felt compelled to help out more. One thing led to another and Dawn was raising funds to buy Carson something to make him smile... and also, his 2 brothers. 

This community is just incredible, strangers feeling the love for strangers that they have never met before and all to help a teenage boy and his brothers smile through the nightmare of cancer.

She raised money, shared his story and then dropped off the chest that you see Carson resting on in the above photo. Inside of that was over 60 pairs of penguin themed & silly patterned socks along with a penguin tote bag and stickers. all wrapped up to make the experience even more exciting for Carson. 

Please support the people that support us, because when we come out of this - we have a lot of people that we will be volunteering with to make sure that every single act of kindness is paid forward forever.

LAX.

May 5th, 2025

Our school district has a split of sides of town, so to speak, with an East side & West side... and no this is not a rapper dispute. There is, however, colors for each side - the East being Green & Gold with the West being Blue & Gold. For years our district has done many fundraisers with the home teams playing each other. Our Lacrosse teams are not excluded from that.

This Lacrosse fundraiser is named "East vs West - Sticking It To Cancer". The teams raise money to donate and to purchase specialty jerseys and on the back of said jerseys, you can choose who you are playing for. Some jerseys said "Playing for Grammy" or "Playing For A Cure"... The two young men pictured on my right in the photo above, are two kids that were "Playing for Carson".

One kid is a former soccer teammate of Carson's. He text Carson all last year with encouraging words and pep talks per se. That is the type of kid that he is and he certainly didn't stop when it came to his former teammate and friend. When his mom reached out to tell me she had a jersey for Carson that she purchase and invited us to the game, I just sobbed. What a selfless act when there are more than likely (unfortunately) someone else he could have played for or could have easily forgotten our boy. He didn't and he isn't the type of kid to ever forget his buddy Carson.

The other kid, is Carson's best friend's older brother. They have known Carson since he was in Kindergarten. When I was talking with mom, she expressed how her son felt like Carson was the "G.O.A.T." before by battling cancer and winning but now, even moreso. He has known the whole family since he was in elementary school, but haven't seen each other in quite some time. So, to even express that after not seeing someone in so long... it just goes to show the kind of kid he is and the heart he has - not just for Carson but for humans in general.

My heart is so full and it truly takes spectacular people to raise their kids to have kindness in their hearts and show support for others when they cannot even begin to imagine what they are going through. 

💛🎗️💙

Labs.

May 5th, 2025

Carson's first labs from the port with the visiting nurse were today. Which also meant, Carson needed to get de-accessed. 

De-accessing, for those who don't know, is when they remove the needle from the port. (The port is a button, per se, that is under the surface of the skin that has channels to not only deliver fluids or medicine but also can be drawn from.) It has been in since last Monday and he absolutely cannot leave it in any longer... recommended timeline is 7 days and last Monday is considered "Day 0". He chose to have our visiting nurse, Nurse Yvette, to de-access him today.

For whatever reason, Carson hypes himself up in the negative sense to HATE this process as much as accessing. While nobody can blame the kid, it can be VERY unnerving when you have to sit there and watch the trauma occur and yet, can't help.

Nurse Yvette is the G.O.A.T. though when here... she is patient, she is kind, she is easy going and understands he takes a few extra minutes. He needs to breathe and get in the right mind space and she lets him.

Now, I wasn't here for this but I already know how it went because he is the same no matter what. The kinder, more patient the nurse on the other side is, the shorter the time it takes to access or de-access. This time was less than usual but still, took time - especially being the first time!

He made it through though... and then said "I am still not sure why I act like this when I know it doesn't hurt." We will get through these one situation at a time and I can only hope that wherever we travel to, we have sweet nurses like Yvette to understand and help him through it.

Chemo Day 5.

May 2nd, 2025

Getting Carson to the car today wasn't as hard as the last few days(I chose to omit those stories because it was a small phase that we have since.) but he was super nauseous... like carry-an-emetic-bag-on-your-lap-just-in-case kind of nauseous.

There is this one amazing valet guy at Roswell that seriously changes the game when you pull up. I can honestly say that I have NEVER seen this man grumpy, mean, sad or without a smile! Truly, every single time I pull up, I catch him being nice to everyone that crosses his path - young, old, moving slow, grumpy, happy... all walks of life... he is sweet, genuine and takes time to care while also, keeping the cars moving safely. (I would like to add that he isn't the only one, but he is exceptional at it!)

Well, he hooked his "Champ" up with this awesome new hat! When we pulled up and mentioned how awesome his looked on him last week, I never expected him to bring Carson one! However, today, in true earth angel form, we pulled up and he is like "CHAMP! Wait, I have your hat!" And went to his car and got it out of the bag fresh with tags on it! 

This community of people, mannnn, I cannot stop saying it - such beautiful humans through and through! I will forever be indebted to each and every one of these people. I try to match their energy daily - no matter how my day is going. Especially because, as we know, you never know what kind of news someone just got or what kind of day someone just had. 

It costs nothing to be kind to others and unfortunately, it should probably be said that it ALSO costs nothing to teach your kids to be kind to others - family and friends. They are always watching, listening & overhearing your conversations at home, in the store, in the car, with friends, etc... they tend to repeat your behaviors, your words and feelings. The world is hard enough to navigate so this might be a time when, especially if you are close to Carson, you mind what you say or at least be sure you are educated on what he(and our family) are going through. 

We have a had quite a day. I have been noticing Carson's stomach and demeanor making him feel like not eating or drinking. Eating to me is less important than drinking fluids is, especially when he needs to flush this garbage out of his body!

We got to see Sara today at clinic, we haven't seen her since she went out on maternity leave! She was so excited to see Carson and likewise for us! I requested a bag of fluid to help with his hydration so I could at least get him a head start. He wasn't as pleased as I was when she said "ABSOLUTELY!" He was just mad that he would have to get up to pee more than usual. (Which again - is good because we are purposeful in getting the chemicals out while they kill the cancer!)

Whatever it takes, no matter what!

Chemo Cycle 1 - DONE✔️

Chemo Day 4.

May 1st, 2025

You see this little side smile?😊

Bob saw the doctor today and she explained that the one test that they send out the biopsy for (beside the clinical trial tissue), came back as positive for Ewing's Sarcoma in his scapula. Thankfully (or whatever, again - a win is a win though) it is something that we know and not some new or unknown cancer. Not today, Murphy's Law, not TODAY!

Like I said, he is getting better by the day - which means chemo is doing its thing to respond to his ugly cancer!💪He is not needing ANY pain meds whatsoever. Not even Tylenol! He is straightening his neck and upper body more and making strides back to how he was before the pain robbed him of walking without a cane... Which he was SO close to doing! I guess that just means that PT Tom can come back to help our buddy at home and get him outside and moving back to where he should be!

Whatever it takes, no matter what!

Chemo Cycle 1 - Day 4 - DONE✔️