Hot Topics in Pediatric Ethics PAS 2024

Agenda

Introduction –Jonathan Fanaroff, Naomi Laventhal

7:00 - 7:15    Call to order, orientation

What’s New at the Margin of Gestational Viability – Stephanie Kukora

7:20 - 7:50    Presentation

7:50 - 8:05    Discussion

 Pharmaceutical Ethics: Soaring Costs, Drug Shortages, Vaccines – Helen Williams

 8:10 – 8:40    Presentation

8:40 – 8:50    Discussion

BREAK  8:50 - 9:05               

Panel - Reproductive Justice and Gender Identity

9:05 - 9:15    Introduction – Kyle Brothers

9:15 - 9:30    Navigating the post-Dobbs landscape - Alaina Pyle

9:30 - 9:45    Ethical Considerations in gender-affirming care - Julia Taylor

9:45 - 10:00   Discussion – Kyle Brothers

BREAK   10:00 - 10:00

Panel - Controversies in End-of-Life Care

10:10 - 10:20 Introduction – Naomi Laventhal     

]10 20 - 10:35 Futility - Deena Levine

10: 35 - 10:50 ECMO - Erica Andrist

10:50 - 1:05   Donation After Cardiac Death –Carrie Henderson

-       11:05 - 11:20 Discussion – Naomi Laventhal

 LUNCH (provided) 11:25-12:00

Genetic testing, screening, disorders, and treatment – KP Callahan 

-       12:00 - 2:30   Presentation

-       12:30 - 12:40 Discussion

Emerging Technologies and Experimental Therapies – Marin Arnolds

12:45 - 1:15   Presentation

1:15 - 1:25    Discussion

WRAP-UP – Jonathan Fanaroff

1:25 - 1:30

SPEAKERS

PROGRAM CHAIRS

Jonathan Fanaroff, MD, JD

Case Western Reserve University School of Medicine

Cleveland, Ohio

Dr. Fanaroff is a Professor of Pediatrics at Case Western Reserve University (CWRU) School of Medicine in Cleveland. He is a Neonatologist as well as Director of the Rainbow Center for Pediatric Ethics at Rainbow Babies & Children’s Hospital. Dr. Fanaroff earned his law degree from the University of Virginia School of Law and his medical degree from the CWRU School of Medicine, where he was elected to the AOA Medical Honor Society. During his second year of neonatology training at Rainbow, he commuted to Chicago and completed an ethics fellowship at the University of Chicago. Dr. Fanaroff’s research interests center on ethical and legal issues in neonatology and pediatrics.  He is the immediate past Chair of the American Academy of Pediatrics Committee on Medical Liability and Risk Management. He lives in Cleveland with his wife Kristy, a Neonatal Nurse Practitioner, and children Mason, Cole, and Brooke.

Naomi Laventhal, MD, MA, HEC-C, FAAP

University of Michigan Medical School

Ann Arbor, Michigan

naomilav@med.umich.edu

Dr. Naomi T. Laventhal joined the University of Michigan in August 2009, after completing her residency in pediatrics, fellowships in neonatology and clinical medical ethics, and a master’s degree in public policy at the University of Chicago. She is a Clinical Professor and Associate Chair for Faculty Development in the Department of Pediatrics. She is the Director of the Neonatal Ethics Lab and a clinical ethicist at CBSSM. She cares for critically ill neonates in the Newborn Intensive Care Unit at C.S. Mott Children’s Hospital and is Service Chief for Neonatal-Perinatal Medicine. The focus of her scholarly work is on prenatal counseling and complex care coordination for infants with complex congenital anomalies, and perinatal decision-making for infants born at the margin of gestational viability. Her research interests are in neonatal bioethics and clinical research ethics, and her current work focuses on the prognostic value of healthcare providers’ predictions of neonatal outcomes. These areas are also the focus of her teaching activities to students, medical trainees, and faculty throughout the University of Michigan campus. She serves on the American Academy of Pediatrics Committee on Bioethics.  

PRESENTERS

Stephanie K. Kukora, MD

Children's Mercy Hospital

Kansas City, Missouri

Learn more about Dr. Kukora here.

Helen Williams, MD, MAB

Emory University

Atlanta, Georgia

Learn more about Dr. Williams here.

Kyle Brothers, MD, PhD

Norton Children's Research Institute
Louisville, Kentucky

Kyle Brothers, M.D., Ph.D. is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Dr. Brothers’ research focuses on the ethics of genetic research and the translation of genomic technologies into clinical care. Dr. Brothers is a pediatrician and practices pediatric primary care at University of Louisville Pediatrics Downtown Clinic. He is also an experienced clinical ethicist and serves as the chair for the ethics committee of Norton Children’s Hospital. Dr. Brothers received his Doctor of Medicine from the University Of Louisville School Of Medicine. He completed his residency training and chief residency in Pediatrics at Vanderbilt Children's Hospital and his PhD in Ethics and Society at Vanderbilt University. 

 Alaina Pyle, MD, FAAP

Connecticut Children's Medical Center
Monroe, Connecticut

Dr. Alaina Pyle is an Assistant Professor in the Department of Pediatrics in the Division of Neonatal-Perinatal Medicine at Connecticut Children's. She completed medical school at University of Texas Southwestern Medical School and pediatrics residency at Children's Health in Dallas. This was followed by a neonatology fellowship at Yale School of Medicine, during which she completed the Certificate Program in Pediatric Bioethics at Children's Mercy in St Louis. Dr. Pyle's academic interests include quality improvement, antibiotic stewardship, ethics committee, and shared decision-making processes in the context of complex and life-limiting diagnoses in the neonatal period, with a focus on trisomy 13/18. 

Julia Taylor, MD, MA, HEC-C

University of Virginia
Charlottesville, Virginia

Dr. Taylor is a board-certified pediatrician and adolescent medicine specialist. She completed a fellowship in adolescent medicine at Indiana University, where she also received her master’s in bioethics and completed a clinical ethics fellowship. She returned to Charlottesville in 2015 to become part of the team at the UVA Teen and Young Adult Health Center. She is a core faculty member at the UVa Center for Health Humanities and Ethics where she is a member of the Ethics Consult Service and Ethics Committee. Her passion is helping adolescents and young adults navigate complicated medical challenges and decisions. 

Deena Levine, MD

St. Jude Children's Research Hospital
Memphis, Tennessee

Learn more about Dr. Levine here.

Erica Andrist, MD, MBE

C.S. Mott Children's Hospital
Ann Arbor, Michigan

Erica Andrist is a clinical assistant professor in the Department of Pediatrics in the Division of Pediatric Critical Care Medicine. She completed medical school at the University of Wisconsin School of Medicine and Public Health, followed by residency in categorical pediatrics at Children's Hospital Oakland (now UCSF Benioff Children's Hospital at Oakland) and critical care fellowship at Cincinnati Children's Hospital and Medical Center. Early in her faculty career, she earned a Master of Bioethics from Harvard Medical School, where her capstone work focused on the clinician's duty of care and the ethics of quitting for health care providers. Her interests in clinical ethics center on optimizing shared and unshared decision-making at the end of life, particularly when decision-making involves the withdrawal of life-sustaining technologies. 

Carrie M. Henderson, MD

Louisiana State University Health Sciences Center
New Orleans, Louisiana

Learn more about Dr. Henderson here. 

Katharine P. Callahan, MD, ­MSME

Children's Hospital of Philadelphia
Philadelphia, Pennsylvania

Learn more about Dr. Callahan here.

Marin Arnolds, MD

University of Michigan Medical School
Ann Arbor, Michigan

Dr. Marin Arnolds is a Clinical Assistant Professor in the Department of Pediatrics and Associate Program Director of the Neonatal-Perinatal Medicine Fellowship at Michigan Medicine. She completed her medical degree at Loyola University Stritch School of Medicine, followed by residency training in Pediatrics at Northwestern University and a Neonatal-Perinatal medicine fellowship at the University of Chicago. During her time at University of Chicago, she completed a fellowship in Clinical Medical Ethics from the MacLean Center for Clinical Medical Ethics. 

Dr. Arnolds’ academic interests include ethical questions surrounding neonates born at the margin of gestational viability, as well as parental communication in the NICU. Her current projects involve mixed methods research to improve communication and shared decision-making during antenatal consultation for threatened extremely preterm birth and fetal anomalies.