Research

The Neonatal Ethics Lab centers is developing multiple concentration "nodes" the highlight the expertise and interests of our researchers.

Our research focuses currently include:

Prenatal consultation and shared decision-making for periviability and congenital anomalies
Perinatal risk stratification and care coordination
Tracheostomy shared decision-making
Research ethics and technical innovations in the newborn intensive care unit
Ultra-long hospitalizations for children
End-of-life decision-making for children on extracorporeal life-support

Prenatal Counseling Research

Risk Stratification and Care Coordination Research

Thomas I, Laventhal NT, Yu S, Lowery R, Gelehrter S. Impact of standardized prenatal documentation among newborns with ductal-dependent heart disease. J Perinatol. 2020 Oct;40(10):1531-1536. doi: 10.1038/s41372-020-0674-5. Epub 2020 May 12. PMID: 32398739.
Danziger P, Berman DR, Luckritz K, Arbour K, Laventhal N. Severe congenital anomalies of the kidney and urinary tract: epidemiology can inform ethical decision-making. J Perinatol. 2016 Nov;36(11):954-959. doi: 10.1038/jp.2016.107. Epub 2016 Jul 28. PMID: 27467564.
Lynema S, Fifer CG, Laventhal NT. Perinatal Decision Making for Preterm Infants with Congenital Heart Disease: Determinable Risk Factors for Mortality. Pediatr Cardiol. 2016 Jun;37(5):938-45. doi: 10.1007/s00246-016-1374-y. Epub 2016 Apr 1. PMID: 27037550.

Prenatal Consultation Empircal Research

Kim BH, Feltman DM, Schneider S, Herron C, Montes A, Anani UE, Murray PD, Arnolds M, Krick J. What Information Do Clinicians Deem Important for Counseling Parents Facing Extremely Early Deliveries?: Results from an Online Survey. Am J Perinatol. 2023 Apr;40(6):657-665. doi: 10.1055/s-0041-1730430. Epub 2021 Jun 7. PMID: 34100274.
Danziger P, Laventhal N. Prenatal consultation: perspectives on training, relevance, and utilization among pediatric subspecialty program directors. J Perinatol. 2018 Aug;38(8):989-996. doi: 10.1038/s41372-018-0121-z. Epub 2018 May 8. PMID: 29740188.
Kukora S, Gollehon N, Weiner G, Laventhal N. Prognostic accuracy of antenatal neonatology consultation. J Perinatol. 2017 Jan;37(1):27-31. doi: 10.1038/jp.2016.171. Epub 2016 Sep 29. PMID: 27684414.
Kukora S, Gollehon N, Laventhal N. Antenatal palliative care consultation: implications for decision-making and perinatal outcomes in a single-centre experience. Arch Dis Child Fetal Neonatal Ed. 2017 Jan;102(1):F12-F16. doi: 10.1136/archdischild-2016-311027. Epub 2016 Sep 16. PMID: 27638112.
Myers P, Laventhal N, Andrews B, Lagatta J, Meadow W. Population-Based Outcomes Data for Counseling at the Margin of Gestational Viability. J Pediatr. 2017 Feb;181:208-212.e4. doi: 10.1016/j.jpeds.2016.10.021. Epub 2016 Nov 1. PMID: 27814911.

Prenatal Consultation Normative Scholarship

Laventhal N. Negative Studies and the Future of Prenatal Counseling at the Margin of Gestational Viability. J Pediatr. 2023 Jul;258:113440. doi: 10.1016/j.jpeds.2023.113440. Epub 2023 Apr 22. PMID: 37088184.
Arbour K, Laventhal N. Prognostic value of clinicians' predictions of neonatal outcomes in counseling at the margin of gestational viability. Semin Perinatol. 2022 Apr;46(3):151523. doi: 10.1016/j.semperi.2021.151523. Epub 2021 Nov 9. PMID: 34844787.
Arnolds M, Laventhal N. Perinatal Counseling at the Margin of Gestational Viability: Where We've Been, Where We're Going, and How to Navigate a Path Forward. J Pediatr. 2021 Jun;233:255-262. doi: 10.1016/j.jpeds.2021.02.006. Epub 2021 Feb 7. PMID: 33567323.

Investigating Neonatal Decisions for Extremely Early Deliveries (INDEED) Study Group - PI Dr. Dalia Feltman

Lawrence C, Laventhal N, Fritz KA, Carlos C, Famuyide M, Tonismae T, Hayslett D, Coleman T, Jain M, Edmonds BT, Leuthner S, Andrews B, Feltman DM. Ethical Cultures in Perinatal Care: Do They Exist? Correlation of Provider Attitudes with Periviability Practices at Six Centers. Am J Perinatol. 2021 Aug;38(S 01):e193-e200. doi: 10.1055/s-0040-1709128. Epub 2020 Apr 15. PMID: 32294770.
Tonismae TR, Tucker Edmonds B, Bhamidipalli SS, Fadel WF, Carlos C, Andrews B, Fritz KA, Leuthner SR, Lawrence C, Laventhal N, Hayslett D, Coleman T, Famuyide M, Feltman D. Intention to treat: obstetrical management at the threshold of viability. Am J Obstet Gynecol MFM. 2020 May;2(2):100096. doi: 10.1016/j.ajogmf.2020.100096. Epub 2020 Feb 27. PMID: 33345962.
Feltman DM, Fritz KA, Datta A, Carlos C, Hayslett D, Tonismae T, Lawrence C, Batton E, Coleman T, Jain M, Andrews B, Famuyide M, Tucker Edmonds B, Laventhal N, Leuthner S. Antenatal Periviability Counseling and Decision Making: A Retrospective Examination by the Investigating Neonatal Decisions for Extremely Early Deliveries Study Group. Am J Perinatol. 2020 Jan;37(2):184-195. doi: 10.1055/s-0039-1694792. Epub 2019 Aug 22. PMID: 31437859.

Tracheostomy Decisions Research Group

Yan H, Kukora SK, Pituch K, Deldin PJ, Arslanian-Engoren C, Zikmund-Fisher BJ. Adapting user-centered design principles to improve communication of peer parent narratives on pediatric tracheostomy. BMC Med Inform Decis Mak. 2022 Jul 25;22(1):197. doi: 10.1186/s12911-022-01911-9. PMID: 35879768; PMCID: PMC9316812.
Yan H, Deldin PJ, Kukora SK, Arslanian-Engoren C, Pituch K, Zikmund-Fisher BJ. Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making. Med Decis Making. 2021 Apr;41(3):305-316. doi: 10.1177/0272989X21990693. Epub 2021 Feb 9. PMID: 33559518; PMCID: PMC9574471.

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